I have switched to a new PM and he is aggressively treating my pain. My previous PM had me on 30 mgs of Oxycodone a day which barely touched the pain. On 30 mgs, I was bedridden (due to the pain) for about 60% of the day. My new PM has me on 90 mgs of Oxycodone and I find that I only have to lie down about 30% of the time. In addition, I am able to spend about an hour being 'active.' By active, I mean I can wash dishes or dust. However, I still pay for the activity - usually my pain level is around 7/8 after I am done. I am still in too much pain to do things like vacuum or ride the bus - the jostling on the bus really does a number on my back.
My question is this: What do YOU (anyone who is willing to respond to this thread) use as an example to tell yourself that your pain is well-managed? My doctor keeps telling me that my pain is still not well-managed, but I am not sure what I should consider 'well-managed' to mean. I have spent the last 5 years telling myself that if I'm not crying, then I am in a good place. But now I don't think that's right.
Honestly, I think the answer to that question can only be answered by you (individually). I feel like a pain level of 5 is doing pretty well. At least, that's my standard. However, what is acceptable to you might be totally different. I would think that you should be able to do more than an hour's worth of stuff around the house, but I could be wrong. However it works out for you, I wish you all the Best.
This is so varied by the person as to what is good control. I would agree that you should now set your goals higher. I think spending no time in bed and a few hours a day semi-active could be reasonable. Setting specific goals can be a good discussion to have with your doctor. You may just want to take a pause for a bit and adjust to this. As under dosed as you were, tripling a dose is a lot to take in as well (although I assume it wasn't done all at once). I have continued to work throughout my chronic pain so I of course have different goals...for many years I felt I was on that brink of needing to quit.
For me, the meds move me just above that so I feel I can manage better, and can do a few things in addition to work (instead of just coming home and crashing). A 50% average pain reduction has been my goal and at times has been sustainable. For me that is a huge difference in quality of life without feeling like I am taking too many meds. It can also depend on how fast you build tolerance, more of an issue for younger folks, but it varies. 50% is a pretty average/attainable goal. You don't want to be shooting for much more than that, but it doesn't sound like you are even close yet.
Have they added a breakthrough / as needed med to your regimine? Having something to take once a day on top of your meds for example may be a good idea...you could take it right before you want to be a bit more active. If not, you may want to ask about that before doing too many more dose increases.
For me, that is more important than having a higher baseline med dose, but I get big pain spikes a few days a week (not based on activity though...more random, but I have a different type of pain). Being able to treat my pain spikes is a very big part of my pain control. For me it takes a high med dose, but my doctor has been ok with that as its not even a daily thing for me. Best wishes.
constant head pain, fibro, and other fun!
chronic pain established in 2006
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