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Old 11-06-2012, 12:09 PM   #1
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chronic pain

I am looking for a pain management Doctor in the southern tier of New York State. Binghamton,Vestal, Oneonta, Norwich. I have dealt with chronic pain since 1989. I have had numerous knee surgery's, open heart surgery, and recent brain surgery for a sub dural hematoma. I wanted to get both knees replaced but because of all other issues they say it's to risky because of being a high risk patient. I have no cartilage in both knees, chronic migraine headaches from brain trauma, fibro myalgia, arthritis, also deal with Bipolar as well. Vicadin doesn't do nothing I only get 3 - 750 mg's per day which is useless. I have never had problems with addiction. So I desperatly need help. I cannot take the pain anymore I don't sleep because of it can't rest, etc., etc., etc. I would appreciate any help.

Thanks

 
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Old 11-06-2012, 05:22 PM   #2
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Smile Re: chronic pain

hi

your broke my heart.someone in your area will give you help, it just takes a bit of time for all to read your post.
i,ve read these boards for years,theyre good people.I decided to jump in and join tonite hang on i know someone can direct you

Last edited by Administrator; 11-08-2012 at 07:09 AM.

 
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Old 11-07-2012, 11:19 AM   #3
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Re: chronic pain

Thanks for replying.The area I live in has issues with prescribing pain medication. I have shown them all my med. records, xrays etc. and it still doesn't help me. I think it's easier to score illegal drugs than legal ones, of course I would not go the illegal path. I have a service dog (phsyciatric service dog) and he is so helpful to me, but he hasn't learned to remove pain yet, as rediculous as that sounds that's what trying to find help around here. I am at witts end and can't deal with chronic pain any more. I hope so much some one out there can me out.

Thanks

Last edited by motodad870; 11-07-2012 at 12:01 PM.

 
Old 11-22-2012, 05:05 AM   #4
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Re: chronic pain

motodad870. Then you should move to another state. That is the only solution.
How many hours a night are you able to sleep and for how long has this been going on(I am talking about the sleep problems).

 
Old 11-23-2012, 11:03 AM   #5
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Re: chronic pain

Moving isn't an option right now, wish it was. My need for more sleep has been a problem for many years now. In a 24 hour day I am lucky to get over2 or 3 hours of sleep.I am woken up most of time from pain then can't get back to sleep. Thanks for the reply

 
Old 11-23-2012, 11:44 AM   #6
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Re: chronic pain

Sorry to hear about your situation...

One of the more helpful things to me was going on Ambien. I had tried all the other natural things like Melatonin...but after my last fusion surgery...the Dr. put me on Ambien and it has been a God send to me!

I also make sure my room is 68 degrees or less...And one of the more important things is to go to bed and wake up at the exact same time each night. As well as making sure that you get at least 30-45 minutes of exercise each day and no napping during the day.

We have to make sure that our bodies are "ready" to rest at night...

I make sure to shut off every single light...no tv..no computer....I have audiobooks on my phone so it's easy to drift off to sleep with it completely dark and being read a bed time story...LOL

I don't eat past 7pm and have about 6 tiny meals throughout the day instead of 3 large ones....

So....possibly talking to the Dr. about your sleep issues...they may be more apt to help out. Getting a decent night's sleep has helped tremendously with my pain levels both physically and emotionally.

The other thing is making sure that you are open to all forms of treatment for chronic pain and not just looking for pain meds from a Dr. There are many modalities from daily exercise, physical therapy, acupuncture, massage, ultrasound massage, injections, steroids, ice, heat, biofeedback, cognitive behavioral therapy, aqua therapy, TENS unit, not smoking, eating healthy, counseling, etc.....

So when you are speaking to a PM Dr. office, ask them if they believe in using all modalities to treat pain and that you want to find a comprehensive program.

With chronic pain...it's about trying to get to a level 5 or so as most of us will never be pain free again....And the more modalities I use every day...they all add up to get me to that level 5....

I wish you luck...

 
Old 11-27-2012, 12:47 AM   #7
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Re: chronic pain

Hello, and I am sorry that you are going through all this pain and no help . I know it is frustrating because it feels like it is a never ending sorry and you keep going around in circles. I have been in pain management for years due to my lupus, and a tumor in my pituitary gland. I have doctors for everything due to the Lupus attacking my organs and tissues. My body is hyperactive to the immune system (just means that my immune system dont fight off infections and things like that). It is really hard to find physicians that are wanting to give out pain medications. Narcotics has been getting a very bad reputation lately. But also if you show the doctors that you are not looking for a fix, you want relief they may be more willing to prescribe the meds you need. And how you do that is to let them know you are willing to try other forms of treatment. Physical Therapy, tens units, exercises, water therapy, etc. If you show that your number one goal is to get some sort of pain relief they see you are open minded and you are following their orders. It's worth a try. Even if none of the other options work they know you tried and maybe they can prescribe you a sort of pain medicine to see if that helps. Have you checked all the doctors where you live and even some out of your area. I mean it may take you an hour or two to get to one but sometimes it is peoples only option. Especially when you are in constant pain. Call the main hospital and see if they have any pain management clinics that are around town or even the neighborhood towns next to you. I am praying that you get some relief and get it very soon. Keep us posted!
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Old 11-30-2012, 09:45 PM   #8
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Re: chronic pain

Moto...have you tried Omega 3....the anti inflamatory advantages may help

 
Old 12-01-2012, 08:34 AM   #9
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Re: chronic pain

Moto-

There are several paths to getting what you need. In your case (and many others) it may be easier to begin with a GP or a Nurse Practitioner. These physicians will be well within their comfort zone prescribing Vicodin, Norco, or Percocet. In the future if your tolerance builds you may need more potent medications. Your GP or NP will let you know if and when they feel you need a Pain Specialist to take over your Pain plan. In the interim you should take advantage of your relative 'newbie' status and start with a non-specialist.

Iso~.

 
Old 12-04-2012, 05:27 AM   #10
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Re: chronic pain

Motto, if I were you, I would try Lyrica. Not gabapentin cause it's less potent.
Lyrica will allow you to sleep more than 3 hours.
That's a start. I don't think it takes all the pain away but it will help you sleep.
So what do you think? I believe you need to go to a neurologist for this but at least no need to go to the pain clinic.

 
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