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Old 11-08-2012, 09:01 AM   #1
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Unhappy Update after my appointment this past Monday.

I had an appointment at a new pain management center this past Monday. It went...meh.

At least they're not wasting my time.

The bottom line is that the only option for me is medication management for the long term (the rest of my life). The problem is that, according to this guy, basically nobody in east TN does medication management for the long term. The place I just went to only does "interventional pain management" - injections, therapy, etc. He was honest about telling me that they can't offer me anything that would help.

BUT, he did offer to refer me to another doctor who does medication management, and likes to take on unusual cases (I have a rare genetic disorder). If this other doctor doesn't take me, I'm pretty much sunk.

So that's that. I'm just biting my nails while I wait to hear back about hopefully getting an appointment with this doctor who does long-term medication management.

 
Old 11-08-2012, 09:35 AM   #2
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Re: Update after my appointment this past Monday.

Dear heart,

lets hope he will take you; is any reason he wouldn't? As far as I know every Dr is fighting to have more patients, right? So be optimistic about it for now.
The good thing that you have a choice; if this clinic couldn't offer what you need, you may see another Dr who has different approach to your problem. And even he will not be able to help you, I promise you there are other Dr still available to help you with your genetic issues.
So many health issues out there which is not treatable or curable when all doctors give up on people completely so your issue of finding The Doctor is not that tragic, right? I am sure you will be OK and well taking care of.

Sure this clinic loves to do shots, and more invasive treatments but not opiates. This brings them good $$$ and no responsibilities if someone becomes an addict under their watch. I heard that some PM offices do same thing: treatments, but no Rx opiates. I guess with all what is going on in this country regarding abuse of opiates, hard to blame Doctors for refusing dealing with it.

Wishing you best luck,
Moldova

 
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Old 11-08-2012, 11:46 AM   #3
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Re: Update after my appointment this past Monday.

Thanks for the reply.

My genetic condition has no cure, so I kind of know what to expect from doctors - all we can really do is manage the symptoms of my condition. Unfortunately, that involves prescribing opiates for pain and joint dislocations on a daily basis.

I do appreciate that he was honest with me about their office only doing injections. I'd rather he tell me that than waste time on a treatment plan that won't help or would make things worse.

I do not appreciate that he insisted that nobody in this area would treat me the way I needed to be treated. He contradicted himself repeatedly. He'd give excuses for why doctors would not want to prescribe, and then tell me that my only option was life-long medication management. How am I supposed to feel about my situation when he flip-flops like that? If I need medication management for the rest of my life, be reassuring that things will work out.

He was also rather judgmental about my condition and how I'm handling it. He banned me from using a wheelchair, and insisted that my condition has a normal life expectancy (even though the literature says a lifespan of 35 is the average, and I've lost friends as young as 22).

The office itself was pretty terrible. Depressing, chairs as hard as bricks, a seizure-inducing blinking overhead light in the waiting area, and a LONG wait with signs everywhere saying that they know it'll be a long wait, and basically "too bad, so sad."

And the following exchange set me off in a bad way:

Nurse: "And we have a garbage can for you right here." (grabs my closed, bottled drink)
Me: "What? Why?"
Nurse: "It's our policy. No drinks beyond this point."
Me: "Do I really have to? I always keep a drink with me in case I get nauseated and have to take my anti-nausea medication."
Nurse: "Yup! It's our policy. You'll have to throw that away here. Come on, let's go!" (that last line he said to me as if I was a child)

I know it's not really a big deal, but I've never run into anything like that before. One more reason not to go there - I don't take kindly to policies that suggest suspicion of patients (I asked my mom why she thought they did that, and she speculated that maybe patients have tried to bring in clean urine that way - GROSS!).

As far as the other doctor is concerned, I don't see why he wouldn't want another patient. Although, I was referred to a different doctor before being seen at this place I just dealt with, and he denied me without even seeing me because my condition is rare. However, I've been told that this new doctor likes to take unusual cases, so that's working in my favor.

I'm trying to stay positive, but it's really hard not to lose hope.

Last edited by Odesse; 11-08-2012 at 11:50 AM.

 
Old 11-08-2012, 05:17 PM   #4
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Re: Update after my appointment this past Monday.

Quote:
Originally Posted by Oddyssey View Post
I had an appointment at a new pain management center this past Monday. It went...meh.

At least they're not wasting my time.

The bottom line is that the only option for me is medication management for the long term (the rest of my life). The problem is that, according to this guy, basically nobody in east TN does medication management for the long term. The place I just went to only does "interventional pain management" - injections, therapy, etc. He was honest about telling me that they can't offer me anything that would help.

BUT, he did offer to refer me to another doctor who does medication management, and likes to take on unusual cases (I have a rare genetic disorder). If this other doctor doesn't take me, I'm pretty much sunk.

So that's that. I'm just biting my nails while I wait to hear back about hopefully getting an appointment with this doctor who does long-term medication management.
I haven't followed your (whole) story but I wanted to say that I really think this new doctor will take you for med management. It does sound like you're a good fit for him and unless you're abusing the system, which I'm sure you're not, there would be no reason for him to turn you away. My only concern would be that it might take a while, hopefully you're able to get medication management through someone until then.

I had to wait nearly a year to get into see my pain doctor, but I'm guessing that's a bit unusual! Like many states, mine only has a couple pain clinics that will prescribe and treat with opiates. It's not like I didn't try everything else first, went through years of injections, physical therapy and alternative forms of medicine through my primary when I lived in Kentucky.

At any rate, I really hope this works out for you, will be keeping my fingers crossed!

 
Old 11-12-2012, 03:18 PM   #5
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Re: Update after my appointment this past Monday.

I am sorry for your pain and frustration. Is there a reason why you couldnt get your medications from your primary care physician? I get my pain meds from my primary care and visit pain doctors for procedures mostly.

Good luck, I hope things work out for you.

 
Old 11-15-2012, 07:18 PM   #6
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Re: Update after my appointment this past Monday.

I've never had a frank discussion with my PCP about her managing my meds. I don't think she would, though, because when I first started with her, the receptionist at the front desk told me before even being seen, "She doesn't prescribe any pain medication, nerve medication, or muscle relaxers." She told me this over the phone (and without knowing my conditions at all).

Also, my PCP is great, but she definitely likes to refer me to specialists whenever she can or it's appropriate. She made the referral to the pain clinic I just went to and had no problems doing so. I have a rare condition, so the specialists she refers me to don't always have much to add. In these cases, she tries to do whatever she can to help, and she seems to know when a problem just can't be fixed and to stop poking and prodding. I'm doing my best to research other pain doctors in the area, and I don't really know what will happen, or what she will say or do, if I can't find anyone else to manage my pain.

 
Old 11-22-2012, 07:17 AM   #7
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Re: Update after my appointment this past Monday.

Hi oddyssey, You have been very helpful to me when i was in midst of changing drs. I wish that i could help you some way. I can pray for you,oddyssey & i will. I wish i would have known this sooner! I also have lifelong condition that requires lifelong medical pain mgmt with opiates, or so my mri suggests & 3 neurosurgeons. I was very fortunate in that my old dr is caring for me again. I believe this an answer to prayer.At least this last PM, didnt try to hold your medicine out of reach unless you had inj's, he eas honest & tried to help by giving a referral,imho. So, its really scary when you have see new dr, too me anyway. I feel like i am putting all my eggs in one basket & this person or dr has control over my life. But, then i remember who i believe is in control & i get care at last. This is my hope for you. Take care ,oddyssey, gmak

 
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