It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-25-2013, 01:27 PM   #1
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Question Pain Management Questions

Hello all,
I'm scheduled to see a Pain Management specialist that works with an ORTHO group, he is a physiatrist. I have had a kidney stone inside my right kidney going on two years now. I have been through 4 unsuccessful surgeries.
The pain used to come and go where I would actually go a few
months without pain but it would always return. Now the pain is constant! It is affecting my life to the point where I barely function. My last urologist personally knows this physiatrist and recommended I go see him (they are not affiliated just friends).
The only pain relief I had was when I was taking medicine every 4-6 hours after my last procedure.
My Uro prescribed me narcotics which I take as needed but it was only 30 pills and luckily they have lasted. But I have suffered many days taking only one a day to make them last and I did not want to become dependent on them!
Here is my question will a pain specialist take into consideration the fact that, that medicine helps me or will they just want to start treating me in a completely different way since I don't have nearly the severely debilitating issues it sounds as if many of you all have? So sorry to hear all the horrible pain everyone is in!
I am new and very stressed this doctor will take away the only thing that helps right now!

 
Old 01-25-2013, 02:28 PM   #2
Senior Member
(male)
 
Daffydolphin's Avatar
 
Join Date: Apr 2012
Posts: 165
Daffydolphin HB UserDaffydolphin HB UserDaffydolphin HB UserDaffydolphin HB UserDaffydolphin HB UserDaffydolphin HB UserDaffydolphin HB UserDaffydolphin HB User
Depends upon the prognosis and plan for the stone problem.

Then he might be basing things on acute pain and would probably Rx as much as necessary to maximize your pain relief. If the prognosis is that your pain is likely to be recurring, then he will develop a longer term chronic pain plan. Be completely open with him. Let him know how often and how bad it is. I would expect him to keep you on quick release short term acting medications to be taken PRN (as needed). There is no need for you to suffer on one pill a day. He'll base strengths and amounts based upon what you tell him. Don' short change yourself.

 
The Following User Says Thank You to Daffydolphin For This Useful Post:
tvba (01-28-2013)
Sponsors Lightbulb
   
Old 01-25-2013, 02:43 PM   #3
Facilitator
(female)
 
Join Date: Oct 2012
Location: USA
Posts: 2,521
gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
Re: Pain Management Questions

Dear tvba, I see a physiatrist for pain mgmt also & have for 12 years. Most PM&R drs have a 50% acute pain & chronic pain & 50% rehab practice. Acute pain if treated with narcotics is generally treated with short acting medicines & chronic pain with long acting narcotics or timed release medicines & a breakthrough medicine. The dr will assess functioning & determine how your function can be improved. I truly hope that they find relief for you & im so sorry that you are hurting.

 
The Following User Says Thank You to gmak For This Useful Post:
tvba (01-28-2013)
Old 01-25-2013, 05:30 PM   #4
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Re: Pain Management Questions

Thank you both very much for your responses.
I am hopeful that this will at least resolve the pain I am
Living with for now, until something can be done to resolve the issue.
I also hope this doctor is willing to continue with the medicine that helps as well as alternatives.

Thanks again

 
Old 01-25-2013, 05:40 PM   #5
Senior Member
(female)
 
ctrue's Avatar
 
Join Date: Nov 2012
Location: Pleasant View, TN
Posts: 115
ctrue HB Userctrue HB Userctrue HB Userctrue HB Userctrue HB Userctrue HB User
Re: Pain Management Questions

It is going to depend on the doctor. Some will keep you on medication you are on, if it works and just up the amount and some will want to change you to an extended release medication with short acting meds for break through pain. Its really hard to say.
I started PM about 4 months ago. She kept me on my current medication (lortab 10/500mg) up to 4 times a day. At night I take an extended release morphine (MS contin). I think the extended release gives a more consistant pain control but it makes me so tired I can not take it during the day.
You will def want to let him know that once a day is not enough and you are suffering through some days. My PCP doctor did that as well I could take my norcos (10/325mg) no more than 2 times a day. We all know norcos do not last 12 hours, 5 if we are luck but never 12. My doctor still refused to go up any more than that, even though she would say she knew I needed more and had pain. Crazy! My PM doctor was shocked and laughed when I told her the norcos were expected to last 12 hours.. She changed me back to lortabs (they always worked better, I guess to my body the tylenol makes a dif). A PCP sometimes doesnt understand the need for better pain control. With the DEA breathing down their necks, they are scared to offer pain medication. I got 20 at a time IF I was lucky and going back to the doctor every 10 days just isnt reasonable.
I asked to be referred to PM and it was the best decision I ever made. I like you was scared of what they would do.. I read alot of stories about PM doctors refusing to prescribe narcotics and not wanting to help with pain.. That didnt happen to me. My PM doctor is awesome. She asked me what worked/ didnt work and how long the medication lasted for me. She uped my dosage from 2 times a day to 4. No problem.
Just be upfront and honest with them, take your medication as prescribed and keep apts and you will be fine. I wish you lots of luck and hope that you get a good PM and your pain is managed! Let us know how it goes!
__________________
Ctrue-

 
The Following User Says Thank You to ctrue For This Useful Post:
tvba (01-25-2013)
Old 01-25-2013, 05:50 PM   #6
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Re: Pain Management Questions

Thanks ctrue, may I ask what your
Pain issue is?

 
Old 01-25-2013, 06:10 PM   #7
Senior Member
(female)
 
ctrue's Avatar
 
Join Date: Nov 2012
Location: Pleasant View, TN
Posts: 115
ctrue HB Userctrue HB Userctrue HB Userctrue HB Userctrue HB Userctrue HB User
Re: Pain Management Questions

Quote:
Originally Posted by tvba View Post
Thanks ctrue, may I ask what your
Pain issue is?
I have chronic left side pain aka flank pain. They are not exactly sure why but think because of chronic kidney stones and tubial damage. It is a constant, cramping pain that is sometimes sharp and burning. Sometimes it actually feels like a kidney stone but it never goes away. I have over 11 stones in my left kidney so my PM doctor thinks that may be the cause as well.
I am taking medication now after trying other alternatives. I am also trying a hypogastric plexus block next month as well to see if that will help any. It doesnt make me happy to think I have to take medication from now on (I am 34) but I do what I have to do. Hard to tell a 6 yr old Mommy hurts and cant play with you..
They refuse to touch my kidney bc it might bleed or shut down so for now this is my only choice. Sad but true..
__________________
Ctrue-

 
Old 01-25-2013, 07:21 PM   #8
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Re: Pain Management Questions

Wow!! Like I wrote have had 4 different surgeries trying to fix my kidney stone issue however no luck!
So sorry to hear your story, but glad to know not alone!
I know how you feel about telling your child Mommy can't play. I totally relate although my children are older its still difficult to have them see me in bed a lot and unable to do simple tasks. I had a previous urologist tell me I needed to see a psychiatrist, because the pain was in my head! Needless to say I left that appt in tears!

Last edited by moderator2; 01-25-2013 at 07:48 PM.

 
Old 01-29-2013, 04:52 PM   #9
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Unhappy Re: Pain Management Questions

Well I went to my appointment yesterday and I guess I will have to find another doctor. This doctor told me that he doesn't believe in treating me with medications, wants me to go get an MRI and possibly do some
Physical Therapy. I'm more than happy to get the test and do some sort of therapy but in the mean time I am living in pain and was very upset that even after I told him how I have been in extreme pain and how it's affecting my life, he still sent me on my way.
I have no idea what to do now, my husband was with me at the appt and he even told the doctor how debilitating its been for me and the doctor just said we will see where to go once we have the MRI results.

 
Old 01-29-2013, 05:50 PM   #10
Facilitator
(female)
 
Join Date: Oct 2012
Location: USA
Posts: 2,521
gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
Re: Pain Management Questions

Quote:
Originally Posted by tvba View Post
Well I went to my appointment yesterday and I guess I will have to find another doctor. This doctor told me that he doesn't believe in treating me with medications, wants me to go get an MRI and possibly do some
Physical Therapy. I'm more than happy to get the test and do some sort of therapy but in the mean time I am living in pain and was very upset that even after I told him how I have been in extreme pain and how it's affecting my life, he still sent me on my way.
I have no idea what to do now, my husband was with me at the appt and he even told the doctor how debilitating its been for me and the doctor just said we will see where to go once we have the MRI results.
Hi tvba, Is there any chance that there is a misunderstanding & the dr may be waiting for the MRI report to justify the use of narcotics, for example if you have a diagnosis or abnormality on MRI that proves your story? Im not saying that it is right to have to prove that you are in pain but is there a possibility that this is what this dr is waiting for? Meanwhile, Im sorry that you are hurting & hope that you can get relief, i.e. new dr, this dr will cooperate after
mri report, PT helps you etc. Did the dr tell you to come back after
you have the MRI? Did you call your urologist that referred you? Im sorry for all the questions when you are upset and hurting.

Last edited by gmak; 01-29-2013 at 05:59 PM. Reason: info

 
Old 01-29-2013, 08:52 PM   #11
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Re: Pain Management Questions

Quote:
Originally Posted by gmak View Post
Hi tvba, Is there any chance that there is a misunderstanding & the dr may be waiting for the MRI report to justify the use of narcotics, for example if you have a diagnosis or abnormality on MRI that proves your story? Im not saying that it is right to have to prove that you are in pain but is there a possibility that this is what this dr is waiting for? Meanwhile, Im sorry that you are hurting & hope that you can get relief, i.e. new dr, this dr will cooperate after
mri report, PT helps you etc. Did the dr tell you to come back after
you have the MRI? Did you call your urologist that referred you? Im sorry for all the questions when you are upset and hurting.
Well when my husband spoke up and kind of pushed the issue of pain relief the dr said that's not what he was there to do. No I have not called the urologist. Yes he wanted me to come back after the MRI to discuss either Pt or some sort of massage therapy etc.

 
Old 01-29-2013, 09:31 PM   #12
Facilitator
(female)
 
Join Date: Oct 2012
Location: USA
Posts: 2,521
gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
Re: Pain Management Questions

Quote:
Originally Posted by tvba View Post
Well when my husband spoke up and kind of pushed the issue of pain relief the dr said that's not what he was there to do. No I have not called the urologist. Yes he wanted me to come back after the MRI to discuss either Pt or some sort of massage therapy etc.
Hi tvba, Thanks for answering my questions. Its really strange to me that he said that its not what he was there to do because i see a physiatrist for my pain mgmt & it makes me wonder if he just wanted to see if you would continue with him as his patient before he prescribed medicine, diagnosed, started treatment. How bad are you hurting like Im having #7 gnawing pain now 7 out of 10? Im sorry that all this happened & if i were you I would call the urologist that referred me unless i was going to continue with the new dr, maybe he would have a new idea. Take care & if you need an ear we will be here, hope you have a low pain night.

 
Old 01-29-2013, 09:51 PM   #13
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Re: Pain Management Questions

Thanks gmak
I appreciate the responses. I am at a loss it's not what we ex

 
Old 01-29-2013, 09:55 PM   #14
Member
(female)
 
Join Date: Jan 2013
Location: Dublin, CA
Posts: 50
tvba HB User
Re: Pain Management Questions

Thanks gmak
I appreciate the responses. I am at a loss it's not what we expected at all.
My pain averages about 6 daily and sometimes peaks to 8.
I don't know if I should just contact my PCM, rather than the urologist. He just recommended him because he personally knows him.
My PCM actually input the referral and asked me at the time if I wanted her to recommend someone or use the dr the uro told me about. I should have went with someone she recommended.
I'm just at a loss and exhausted from the pain and dealing with trying to get help.
Thanks again

 
Old 01-29-2013, 10:08 PM   #15
Facilitator
(female)
 
Join Date: Oct 2012
Location: USA
Posts: 2,521
gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
Re: Pain Management Questions

Quote:
Originally Posted by tvba View Post
Thanks gmak
I appreciate the responses. I am at a loss it's not what we expected at all.
My pain averages about 6 daily and sometimes peaks to 8.
I don't know if I should just contact my PCM, rather than the urologist. He just recommended him because he personally knows him.
My PCM actually input the referral and asked me at the time if I wanted her to recommend someone or use the dr the uro told me about. I should have went with someone she recommended.
I'm just at a loss and exhausted from the pain and dealing with trying to get help.
Thanks again
Dear tvba, I am hurting right now too, major! Last fall my husb & i had a very similar experience when my pain dr left to do rehab as it turned out briefly but at the time i had no dr & previously had been seen by NS who referred me to a PM NS & we left his office with no dr, no medicine, only an appt to get evaluated for a SCS & we were so disheartened, confused, i felt desperate so i understand & think if i were you i would get the referral from the PCM & get the MRI, too. I hope that it all works out, it did for me.

 
The Following User Says Thank You to gmak For This Useful Post:
tvba (01-29-2013)
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



gmak (155), tortoisegirl (154), Shoreline (149), BB07 (91), backhurtz (84), katlin09 (69), Ilovemycutedog (53), galalena (50), jonnstar (35), Isotope (34)

Site Wide Totals

teteri66 (1166), MSJayhawk (1000), Apollo123 (899), Titchou (835), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 07:47 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!