Re: Consious with Eyes closed and inability to move
I had much the same symtoms for 4 1/2 yrs. It was AWFUL! Could come on in a split second, no matter what I was doing- just waking, after dinner, twice while driving! During these episodes, sometimes my eyes would shut and I could not open them, sometimes I could not speak, other than slurred speech, but I heard everything. I just couldn't respond. My shoulders and hips would become very weak, and walking would be almost impossible. I could move somewhat during these times, but it took a great deal of effort just to lift my arm. I was basically limp. These episodes would last from 30 minutes to DAYS, in varying degrees. The individual episodes would subside as quickly as they started. Often, with the blink of an eye and a deep breath, I would be back to normal in physical function. These episodes did, however, leave me very exhausted and cloudy in thought process (sometimes for a couple of days).
The first episode lasted approx. 2 1/2 weeks, with only intermittent hours of normal function.
It disappeared, left me fatigued for weeks and in that 'foggy' state of thought.
After the initial episode, I lived a normal life--until 14 months later when it hit again. I then began to have episodes several times a week. All form of 'normal' was gone from our family, as I never knew if I was going to be able to function on any particular day or for any particular commitment or event... Symptoms changed, or advanced, in some ways, and eventually I was aching very badly in my hip joints on most days and had terrible headaches. I also began to have problems with my blood sugar, and gained 40 lbs. over 4 years. (Not normal for me).
I have been to numerous specialists and research hospitals, and have had every test imaginable. We ran the course from suspected stroke, MS, lymes disease, toxic exposure, and, yes- periodic paralysis. My symptoms seemed to match PP most of all. However, all tests
were negative for any medical condition, and I tested healthy in every way.
I could not begin to tell you the numerous drugs, especially anti-depressants that were literally placed in my hands! I refused these, as I feel it foolish to take a drug when a medical condition could not be identified. I feared that I might 'blur' my actual symptoms with any side effects of the drugs, and further complicate diagnosis. Anti-depressants??? You've GOT to be kidding me! The closest I have come to depression was simply not being able to find out what was wrong!
Eventually, I was also told that perhaps I should have a psych evaluation as well! I thank God for my husband who accompanied me to EVERY medical visit and stood firm in his conviction that this was not psychological!
I know that this is a long account, but I want to share as much of a chunk of my story as possible in hopes that it may help just ONE other person enduring such a terrible time.
The good news? I finally found a Dr. who was willing to really listen to my symptoms and think outside of the box! This was all caused by gluten! Praise God for such a 'simple' solution to my illness! It's not really simple for most people to go 100% gluten free, but it is for me. I would have been willing to do anything to stop these episodes and resume a normal family life once again.
The conclusion to this is that I have -0- episodes as long as I remain gluten free!!!
I have made a couple of mistakes in my diet, and I do pay for that with an episode, but I am learning everyday how to be 100% gluten free.
I would be willing to share other details with anyone who may have experience similar symptoms. I know this has been incredibly long, but I hope that someone out there can glean some help (and hope) from my account.
Good luck in your diagnosis!