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Old 06-10-2004, 06:01 AM   #1
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skylan HB User
Parkinson but no tremors?

My stepdad has been taking tiny baby steps for about 2 years. I have asked him why and he says his legs hurt.
He went to the doctor last week and the MD suggested he may have parkinson's. They don't want to go to another doctor, so the MD gave him some Mirapex 0.125 x 3 daily.
He doesn't have any tremors at all, could this still be Parkinson?
I would like to know what others think about the Mirapex.
Thanks

 
Old 06-10-2004, 07:49 AM   #2
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Re: Parkinson but no tremors?

Mirapex (pramipexole), is a dopamine agonist. I was on it for several years along with Sinemet. My dosage was much higher than your dad's and I began experiencing the problem of compulsive gambling, which it turns out began in conjunction with the Mirapex in 1998. Mirapex has been shown in one study to cause or enhance compulsive gambling. I didn't find this out until 2001 and by then my financial and personal lives were pretty much ruined.

I would say if your father is experiencing benefit from such a small dose of Mirapex, a drug that is specifically and exclusively used to treat PD, he probably has PD. But I am not a neurologist. If your father has not been to a neurolgist, he needs to see one.

The first medication I was started on in 1996 was Sinemet. My symptoms were much worse and profound that those you report with your dad and they completely disappeared 20 minutes after my first dose.

I wish your dad well, but remember, PD is a progressively debilitating disease of the neuro-muscular system with markedly varying symptoms from patient to patient. Your dad needs to be followed by a neurologist who has a great deal of expertise in PD.

 
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Old 06-11-2004, 02:59 AM   #3
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Re: Parkinson but no tremors?

Quote:
Originally Posted by skylan
My stepdad has been taking tiny baby steps for about 2 years. I have asked him why and he says his legs hurt.
He went to the doctor last week and the MD suggested he may have parkinson's. They don't want to go to another doctor, so the MD gave him some Mirapex 0.125 x 3 daily.
He doesn't have any tremors at all, could this still be Parkinson?
I would like to know what others think about the Mirapex.
Thanks
I don't know anything about the drug but my husband has Parkinson's and does not have tremors. Many people with Parkinson's do not have tremors. It is just the most obvious symptom.

Last edited by Joanieq; 06-11-2004 at 03:00 AM.

 
Old 06-11-2004, 03:52 AM   #4
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Re: Parkinson but no tremors?

According to the National Institute of Neurological Disorders & Strokes:

Parkinson's disease occurs when certain nerve cells, or neurons, die or become impaired. Normally, these neurons produce dopamine. Loss of dopamine causes the nerve cells to fire out of control, leaving patients unable to direct or control their movement in a normal manner.

The four primary symptoms of Parkinson's are tremor or trembling in hands, arms, legs, jaw, and face; rigidity or stiffness of the limbs and trunk; bradykinesia, or slowness of movement; and postural instability or impaired balance and coordination. The most common symptom is tremors and many conditions may mimic PD, thus my strong suggestion that a neurologist be consulted.

 
Old 06-11-2004, 05:41 AM   #5
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Re: Parkinson but no tremors?

Quote:
Originally Posted by wordworks2001
According to the National Institute of Neurological Disorders & Strokes:

Parkinson's disease occurs when certain nerve cells, or neurons, die or become impaired. Normally, these neurons produce dopamine. Loss of dopamine causes the nerve cells to fire out of control, leaving patients unable to direct or control their movement in a normal manner.

The four primary symptoms of Parkinson's are tremor or trembling in hands, arms, legs, jaw, and face; rigidity or stiffness of the limbs and trunk; bradykinesia, or slowness of movement; and postural instability or impaired balance and coordination. The most common symptom is tremors and many conditions may mimic PD, thus my strong suggestion that a neurologist be consulted.
I agree with you about seeing a neurologist but it is a fact that more than 30% of Parkinson's patients have no tremor. My husband has all the rest of the symptoms, and an almost miracle like reversal of them when he started on Sinimet, but he has no tremor.

 
Old 06-11-2004, 07:37 AM   #6
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Re: Parkinson but no tremors?

Quote:
Originally Posted by Joanieq
I agree with you about seeing a neurologist but it is a fact that more than 30% of Parkinson's patients have no tremor. My husband has all the rest of the symptoms, and an almost miracle like reversal of them when he started on Sinimet, but he has no tremor.
Gosh, I remember how thrilled I was after my first dose of Sinemet. I was myself again. Unfortunately, after having been on the medication since 1997, it doesn't last as long as it used to.

I wasn't aware that 30% experienced no tremors. Thank you for the information.

 
Old 06-11-2004, 07:46 AM   #7
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Re: Parkinson but no tremors?

[QUOTE=wordworks2001]Gosh, I remember how thrilled I was after my first dose of Sinemet. I was myself again. Unfortunately, after having been on the medication since 1997, it doesn't last as long as it used to.

I wasn't aware that 30% experienced no tremors. Thank you for the information.[/QUOTE

I am aware that the effectiveness of this drug wears off. My husband has already had an increase in the frequency he takes the drug and he was only diagnosed six months ago. He is no longer able to drive.

That is why I have opted to see a neurolgist who specializes in movement disorders. I am hopeful that someone with that expertise can verify whether he may have another or additional ailment and help him to maintain an exceptable quality of life for a longer periord.

 
Old 06-11-2004, 07:59 PM   #8
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Re: Parkinson but no tremors?

Two of the men in my last PLWP group,had no tremors. So it is posible.
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Old 06-16-2004, 04:56 AM   #9
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Re: Parkinson but no tremors?

My step dad doesn't have any symptoms except the small steps. I'm hoping he can see a neurologist in a couple of weeks.
What kind of test is done to determine if it's Parkinson's?
Thanks
Sky

 
Old 06-16-2004, 05:09 AM   #10
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Re: Parkinson but no tremors?

There are no tests. The doctor just examines, and checks for certain symptoms and then makes a determination. It seems they can feel the rigidity in the arms when they manipulate the arm.

 
Old 06-16-2004, 07:17 AM   #11
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Re: Parkinson but no tremors?

Quote:
Originally Posted by skylan
My step dad doesn't have any symptoms except the small steps. I'm hoping he can see a neurologist in a couple of weeks.
What kind of test is done to determine if it's Parkinson's?
Thanks
Sky
Mostly its a complete neurological exam to obtain a differential diagnosis and rule out or at least narrow the possibilities. The specialist will have the patient walk back and forth, test his or her reaction to a hammer on certain reflex sites, check the patient's reaction to pin *****s and cotton fluffs touching the arm, moving the limbs slowly in various directions, putting pressure against the limbs and asking the patient to push or pull against it, things like that. Of course, the physician will do an opthomological exam and check all the systems of the body. My first neurologist also did an EEG and an MRI, mostly I believe to rule out other causes of my symptoms.

But when it came right down to it, my primary care physician made the diagnosis before sending me to the specialist, simply by observing my symptoms, which were classic. By the way, the tremors, shuffling/robotic gait, freezing, all disappeared within 20 minutes of my first dose of Sinemet 25/100. I think that's pretty telling in and of itself.

 
Old 06-24-2004, 12:48 AM   #12
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Re: Parkinson but no tremors?

Skylan,

Make sure your dad sees a MOVEMENTS DISORDER NEUROLOGIST. It is like takeing your car's transmission to a general repair shop vs. a transmission specialist. IT CAN MEAN A WORLD OF DIFFERENCE!

Hoppy

 
Old 04-22-2005, 10:37 AM   #13
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Re: Parkinson but no tremors?

I take sinemet 25/100, 50/200, mirapex, and comtan Take CO-Q10 and ritalin (All for parkinson) Have had parkinson for 10 years. Can still drive. Still lead fairly good life . Age 50

 
Old 05-20-2005, 01:34 PM   #14
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Re: Parkinson but no tremors?

My husband was DX with Parkinsons last summer. He never has had any shakes or tremors. He did have the stiffness, and slowness of movement. Also he was very fatiqued and sometime slurred his words.

He is seeing a movement disorder neurologist at a research hospital. They have him on re-quip up to 4mg 2x's a day. They are slowly increasing to dose each visit, which is every three months. He is somewhat better. So far he doesn't seem to have any pain. He still drives and works everyday. Somedays he seems to have more energy than other days. He will be 61 in July. Hopefully he will be able to retire next year.

 
Old 09-14-2005, 06:10 AM   #15
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Question Re: Parkinson but no tremors?

My husband has had PD for 3 years, he can't drive or walk any more without a walker, and he is very bent over. He takes Parcopa 25/250 3 a day , mirapex 1.50 3 a day, and comtan 200 2 a day, CO-Q10 1200 a day. what can we do?

 
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