Symtoms of PD - Parkinson's Disease Message Board

cactus wren · 07-15-2006, 09:12 PM

My neurologist started out diagnoising me w/essential tremors, two months ago. (a few years back family doctor diagnoised the same) Then a month later he said I show signs of PD, but he is sticking with ET. I was treated w/beta blocker it did no good. Now I am on primidone. Not yet helping much. (we keep increasing the dose) My MRI showed low calvarial marrow. (doctor not sure why) Blood work fine. I get muscle cramps in my legs & hands. I'm always tired and don't sleep well. The tremors are in my legs & hands. I have always been active and healthy. I am 47. I am not sure what to do next. Any suggestions would be greatly appreciated.

debbiem425 · 07-16-2006, 08:23 AM

I was just recently diagnosed with Parkinson's so I don't know a lot about what combinations of symptoms are or are not Parkinson's. Regardless, I think you should get a second opinion. I have been to a general neurologist, then a movement disorder neurologist and am now waiting for an appointment at second movement disorder neurologist. This disease involves a lot of medication and I want to be sure I get the best care possible.
Good Luck!

solution · 07-17-2006, 01:13 PM

Quote:

Originally Posted by cactus wren

My neurologist started out diagnoising me w/essential tremors, two months ago. (a few years back family doctor diagnoised the same) Then a month later he said I show signs of PD, but he is sticking with essential tremors. I was treated w/beta blocker it did no good. Now I am on primidone. Not yet helping much. (we keep increasing the dose) My MRI showed low calvarial marrow. (doctor not sure why) Blood work fine. I get muscle cramps in my legs & they hurt, my hands hurt too. I'm more stiff in the mornings. I'm always tired and don't sleep well. The tremors are alfull, mostly hands. I have always been active and healthy. I am 47. I am not sure what to do next. Any suggestions would be greatly appreciated.

I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.

Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.

cactus wren · 07-26-2006, 07:39 PM

[Thank you for the suggestion. Have you been using the vit. for awhile. ]I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.

Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.[/QUOTE]

solution · 07-31-2006, 04:13 PM

Quote:

Originally Posted by cactus wren

[Thank you for the suggestion. Have you been using the vit. for awhile. ]I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.

Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.

[/QUOTE]

Several years, but for cdp-choline (recently).