Please educate me - Parkinson's Disease Message Board

kathybourinot · 10-29-2006, 11:03 AM

Hi Everyone,
I was just diagnosed with Parkinson two weeks ago. Are these also symptoms of Parkinson? Sometimes my whole body feels like someone took a hammer and beat my body with it. I feel like all my fingers are broken. I fall and sometimes can't walk. Then the next day I feel fine and have no symptoms until the day goes on.
I am 67 years old and I feel such compassion for all of you, especially the younger ones. I get depressed now. Is that part of the disease?
Thanks for your time. God Bless,
Kathy

JILLIKEN · 11-07-2006, 03:52 AM

Hi Kathy,
so sorry to hear of your diognosis, and i can imagine you have a million and one thoughts going through your head at the moment. I was diognosed 2
1/2 years ago, and although i'm certainly no expert, i do know that with PD no two persons symptoms are the same. I suffer from rigidity and slowness of movement, internal tremors but my outward tremor is very seldom noticable unless i am in a stressfull situation. I do not have any pain, but i understand that many people with pd do. I suffer more if i cant sleep or rest, and sleep i have found is probably the most important factor to my well being. I still work 6 hours/day as a supervisor and stock controller, I still run around for my two kids, and can still play squash and do housework. Every now and then I get down about my condition, and shed a few tears, mainly due to frustration, which is probably natural. I dont know about your symptoms, because i do not have them myself, but one thing is that you are not alone, we are all in the same boat so to speak, and we are all striving for the same outcome - a cure! Try to stay positive, (having PD is a blessed nuisance) but when you cant there are plenty of people here and elsewhere who can help.

Take care
Jill
PS - Difficulty walking and depression are both symptoms of PD
l

kathybourinot · 11-09-2006, 09:15 AM

Thanks so much Jill for answering me. It helped a lot.
God bless you, you have so much to do. I have been going to Physical therapy and they have been making me do stretching excercises. I can hardly believe how much it really helps.
Kathy

SafetyJ2006 · 11-17-2006, 01:37 AM

Hi ladies, I was diagnosed in 1996. To tell you the truth,, I was relieved that I only had PD. I thought I had Lou Gehrig's Disease! I've had my ups and downs over the past ten years, getting my medications right and learning to live with the immobility problems. I even went through a period of homelessness and was quite self-destructive. My life is great now. I've got a wonderful neurologist who has my symptoms well under control. I am working and getting paid the highest salary of my life. Last December 23, I married my new bride and she's 16 years my junior. Life is good. PWPs are fighters. Join a support group and you will find that out.

blessedw/yungpd · 12-08-2006, 01:45 AM

Hi

I am no expert either. Everyone Pd is different.. I am 41 and have had it for 15 years.. It can change from one moment to the next.. I find that eating rt.. not big meals but maybe 6 lil times a day aand taking naps even its for 5 mins help. But, I hate to tell you these systoms are light to what you have in store,, I feel fine now but 10 mins ago I was on the floor. It like a charlie horse.. My arm draws up and my foot gets in a knot.. I am lucky my husband or my son rub it out for me.. I have also learned that when i feel bad and my body feeling that way i sit in a tub of water.. I wish i could afford a hot tub .. But, the water seems to sooth it.. My systoms are sever even with the DBs.. I'll spare you unless you like to know.. But, if i take care myself and keep stress down I get to go dancing to lynard sknard sometimea