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Parkinson's Disease Message Board
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Old 09-08-2007, 06:45 PM   #1
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MsT51 HB User
Post Early stage Parkinson's

Hi Folks;

This is a big step for me...posting a message to a web site, but my friends and my doctor recommended it, so here I am.

I'm a single female mid 50's, love my job and see no problem with continuing in my professional capacity. I just hope to have some support mechanism in place for the day when I need it. Maybe I can be of some encouragement to someone else as well. I am a very up person, rarely get down or depressed about lifes occasional detours.

My first symptoms (tremors) appeared immediately after a car accident in Nov 2001, in which my SUV rolled over twice. I had closed head injury resulting in some balance problems and progressing on to tremors and short term memory loss (not severe and not consistent.) My doctor has told me that PD has never been linked to injury in any cases except professional boxers (i.e. Ali.) Anyway, I have been on meds for the tremors for six years and only recently was diagnosed with the Parkinson's and started on meds for it. I haven't had any side affects from the meds so hopefully I can continue on them and maybe slow the progress of the PD symptoms.

I would love to hear from anyone that wants to communicate. We may even help each other.

Ms T

 
Old 09-09-2007, 01:18 AM   #2
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GranEEjay8 HB User
Re: Early stage Parkinson's

Hello and welcome!
I have just recently come back to this board, after wandering around for awhile. I need to get around and get to know the people that are here now.
You are just starting your journey I am 11 years into my journey. There will be bumps along the way but you can and will get past them. Sometimes I think it would be easier to just give up, but I'm to stuborn to give in.
I'm glad the meds are working for you, that's great! I don't know if anyone has talked to you about exercise, stretching and walking, but they are just as important as the meds. You really need to get a good program put together and try to do it everyday.Need to keep those muscles in good shape.I do 35 to 40 minutes of stretching and walk at least a mile each day.Even with all of this I'm starting to list to my right side and forward.
Several months ago I got into a PD care center and got a doctor who is a Movement Disorders Specialist and have received a lot of help that I really needed. Had physical theropy, speach theropy and a phycolgist and we are working on the meds.
If there is anything I might be able to help you with, let me know or questions, I'll do what I can. And it would be nice to get to know each other.
Glad you found your way here and I'm sure you will be too. Hope to talk to you soon. Take care.
Your Friend,
Joan

 
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Old 09-27-2007, 02:48 PM   #3
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sunshine221 HB User
Re: Early stage Parkinson's

Ms T
Sorry more people didn't pipe in - anyway - welcome.

I agree with Joan - exercise as much as you can!!!!

I'm at a stage where the doc isn't sure I have PD or not, but Requip helps my gait issues so I'm grateful to that. I swim, walk and go to Curves but I don't walk very well but its more from spine problems than the typical PD shuffle.

I'm 49 and have had spine and pd-like symptoms for a little over three years - I had c-spine surgery (neck) two years ago and they say I have some permanent spine damage.

Bottom line is that I try to live my life and not think of the future for now. When I do, the thought of increased disability scares me to death, so I try not to think about it - I own a consulting business with my husband and 10 employees and I work well over 40 hrs/wk and I need to drive because he's often out of town. (kids are pretty much grown and out of town too).

My doc is a movement disorder specialist too.

Hang in there.

 
Old 12-12-2007, 06:18 PM   #4
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tomkat143 HB User
Re: Early stage Parkinson's

Hello, My name is Tom. I have been diagnosed since Oct 1.I have seen one nuerologist twice for initial diagnosis, then MRI, then results of MRI. Then I saw a motion disorder specialist and confirmed PD. He put me on Azilect and incouraged me to walk a lot and join a gym and take creatine as well.

 
Old 01-17-2008, 10:11 AM   #5
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cftunaman HB User
Question Re: Early stage Parkinson's

I am a 55 year old male who was diagnosed with Parkinson's 3 years ago.
So far my primary problem is a tremor in my right hand that seems to
become noticeable every afternoon even though I am taking
carpodopa-levodopa and mirapex. I also have a pretty consistent dull
pain in the right forearm.
I run 2 miles four or five times a week and I'm in prettyn good shape.
Lately I have had problems maintaining an erection. Can this be caused by my medication? In addition to the drugs above, I take 2.5 MG of altace for blood pressure as well as 50 MG of Zoloft.
I would appreciate any input

 
Old 01-21-2008, 05:25 PM   #6
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tomkat143 HB User
Re: Early stage Parkinson's

Hello Ms T, I am also new to this board but haven't checked in awhile. I am 61yr old male and married AND newly diagnosed. Oct 1 and 23 to same neuro and got a parkinsons diagnosis. Nov 19 to a motion disorder specialist and got confirmed. My only symptons are intermittent tremble in right hand, loss of smell and my right arm doesn't swing as naturally when I walk.

Right now It prevents me from doing nothing. It trmbles more when tired,stressed or nervous. I know how bad parkinsons can get but I won't let my mind take me there. He has me on Azilect once a day. Urged me to join a gym, which I did, work out with light weights for my arms and to walk a LOT. He also told me to take Creatine, a substance from health food store.

I would love to communicate with you thru this board.
Keep up the positive attitude

Tomkat143

Last edited by moderator2; 01-21-2008 at 07:17 PM. Reason: please read our rules - no e mails

 
Old 01-22-2008, 03:21 AM   #7
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sunshine221 HB User
Re: Early stage Parkinson's

Tomkat

I'd like to know more about Azilect. I've taken Requip for about a year and that helps my muscle spacticity (although not the arm swing or lack thereof). He recently added Azilect but I had to stop after two weeks due to dental surgery. Frankly it didn't seem to be doing much for me. I think it calmed my tremor a bit, but my tremor is so mild it's not work "fixing". I'm facing more dental work in March/April and trying to decide if I want to start it again. I have good insurance and I thought my max co-pay was $30 and the pharmacist says this is $50 (but if it works then whatever, I'll pay it)

-sunshine

 
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