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Old 07-08-2008, 12:45 PM   #1
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Parkinson's Doctor

I have posted this before but thought I would do a new thread and maybe get an answer.
Does anyone in the L.A. area know of a good P.D. Doctor?
Also does losing control of the bowels go along with Parkinson's? My husband was diagnosed with P.D. about 1 1/2 years ago and is only on sinimet 3 halves a day. He seems very depressed and has no ambition to do anything. He just sits. He is 73 years old. Don't you think he needs more meds? or is this the way he will be till he dies. I am so upset. We have been married for almost 54 years.
Please help.
Thank you
exnewyorker.

 
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Old 09-05-2008, 11:13 PM   #2
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Re: Parkinson's Doctor

Hi, exNewYorker,

My Dad was recently diagnosed and we went through quite a process in order to find a doctor. I can't recommend someone specific to you since I live in northern CA but I can tell you this. It is VITAL that you locate a neurologist who specializes in Movement Disorders---not just a general neurologist. Start by contacting Parkinson's associations in your area. I contacted the Parkinson's Association of Northern California; I'm sure there's a similar group for southern CA. I spoke to leaders of support groups whose numbers were listed in the association's literature. I spoke to 5 or 6 people until I reached one who gave me a glowing recommendation for the movement disorders specialists at a major med center. There are probably fabulous ones to be found in L.A. Start digging and keep digging until you find a Movement Disorders Specialist who is highly recommended. From what I have heard the difference in outcome with treatment by a MDS is HUGE. It can make all the difference. Good luck.

Trinidad

Last edited by Trinidad; 09-05-2008 at 11:21 PM. Reason: hit enter key too soon

 
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Old 09-06-2008, 04:51 PM   #3
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NerveEnding HB UserNerveEnding HB User
Re: Parkinson's Doctor

1) Regarding a good PD doctor in the LA area: try Mark Lew, MD out of USC

2) Probably not on enough medicine. You don't mention the dose of the medicine, but by taking three halves, he is probably not getting enough carbidopa (the top number) which helps to block the medicine from going to the stomach instead of the brain.

 
Old 09-08-2008, 06:56 PM   #4
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Re: Parkinson's Doctor

Hi,
I live in the LA area and have Kaiser Ins. My Dr. is a movement specialist, Bruce Enose.
I don't think he see's non-kaiser patients. UCAL has a number of good PD Dr.'s as does the Neuroscience group in Oxnard, Ca. Also, Cedars Sinia (sp) has several good PD doctors.
PD can cause constipation, usually at the later stages of the disease. Don't think loose bowls are normally a symptom of PD.
PD is a defficency of dopamine, and seratonin, and low seratonin levels can lead to depression, fatigue, etc.
I take an antidepressant (Zoloft) to increase my seratonin blood levels. Really help !
Zoloft is a SSRI (selective seraronin reuptake inhibitor) and these types of antidepressants work best for PD.

Take care
John g

 
Old 03-20-2009, 02:39 PM   #5
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Re: Parkinson's Doctor

Well, I'm glad I found this thread, & the post which says it's *vital* to see a PD specialist not just a general neurologist. Our neurologist is very nice but he told us he's not a PD specialist. We live in an area that has a Medical University but this is not LA or NY, so I'm not so sure that treatment is cutting edge here.

 
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