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Old 07-09-2008, 12:51 PM   #1
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glama9 HB User
Stage Three

I was just diagnosed with stage three parkinson's disease. I was shocked; Ionly hace had a tremor since Nov 2007 and toe cramping since a year ago, both on my right side. I was slowly but i have had arthritis since 2001 in both knees, very bad. I was prescribed requip 1mg three times a day and stalevo 50 3X. I wpu;d appreciate your input.
Needless to say I am devastated!

 
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Old 07-09-2008, 01:44 PM   #2
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Re: Stage Three

Quote:
Originally Posted by glama9 View Post
I was just diagnosed with stage three parkinson's disease. I was shocked; Ionly hace had a tremor since Nov 2007 and toe cramping since a year ago, both on my right side. I was slowly but i have had arthritis since 2001 in both knees, very bad. I was prescribed requip 1mg three times a day and stalevo 50 3X. I wpu;d appreciate your input.
Needless to say I am devastated!

How old are you? I would get a second opionon if I were you!!! Hang in there!!

 
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Old 07-09-2008, 03:41 PM   #3
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Re: Stage Three

I am 61 years old.

 
Old 08-13-2008, 11:44 PM   #4
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Talking Re: Stage Three

I was shocked; Ionly hace had a tremor since Nov 2007 and toe cramping since a year ago, both on my right side. I was slowly but i have had arthritis since 2001 in both knees, very bad.

 
Old 08-26-2008, 07:41 AM   #5
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Re: Stage Three

Hi glama9,
You must have had PD for 10 years or more (?), to be in stage 3. Did your symptoms
accelerate during the last cou[ple of years ? Mine seem to be getting worse at a faster
rate. I am between stage 3 to 4. I don't think Dr.'s use staging much anymore. My earliest symptom was that my little "pinkey" on my left hand dragged, and an ink pen never felt right while writing. It seemed to not role properly or to be stuck at the end. So, I spent a lot of effort complaining and searching for the "right" pen!!

So the results of the large clinical study (ADAGIO), to investigate the impact of Azilect on slowing the progression of PD will be announced today. If it shows that Azilect does slow the progression of PD it will be a major breakthrough for PD.

Take care
John g

Last edited by oldcow; 08-26-2008 at 07:46 AM. Reason: new thought

 
Old 08-26-2008, 12:20 PM   #6
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Re: Stage Three

Hi oldcow,
Actually I have had problems walking for 2 1/2 years and that was diagnosed as arthritis of my knee. My first tremor was last November. I don't know where stage 3 came from; I take Requip 1mg 3x
and stalevo 50 3x. The tremor is much better but walking is still a problem. I have very little faith in Sinemet. How old were you when this started?

 
Old 08-26-2008, 06:45 PM   #7
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Re: Stage Three

Hi glma9,
I must have mixed up someone elses post when I thought you were diagosed with stage
three parkinson's disease, (sorry).
I am a young (early) oncet parkinsonion. I was in my mid 30's when I became symptomatic. I am 61 now. I have nearly every possible symptom of PD. Most are mild. Postural instability and dysarthria are the most troubling symptoms. Dysarthria is a group of speech problems resulting from weak control of the muscles for speech.

Take care
John g

 
Old 08-27-2008, 08:07 AM   #8
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Re: Stage Three

HI oldcow,
No, you were correct, I was labeled stage 3. The movement specialist didn't even examine me; he just saw my arm tremor which was pretty bad and felt my wrists for rigidity and pronounced me stage 3.
I am 61 also but cannot put a date to the onset of my PD. My father got it at age 82 but had tremors as far back as age 65. He died in 1993 at age 91 1/2. You have endured this for so long and at such a young age, you must be very strong. By the way the Adagio study suggests that azilect slows the progression of PD.

 
Old 08-29-2008, 05:41 PM   #9
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oldcow HB User
Re: Stage Three

Hi glama9,
My first 14 years were relative easy. I attribute this to 2 things. 1.) I used to run
4 miles 3 to 4 times a week, and hike frequently in the sierra nevada Mt. range. 2.) PD
is a disease that is variable. It's severity and progeression of symptoms differ from person to person. I fortunatly have a slow progression disease. Also, I am a young
Onset Parkinsonian.

There sure arn't many perole posting here in the PD section.

Take care
John g
,

 
Old 02-12-2009, 02:28 AM   #10
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Re: Stage Three

Glama,

Why do you not have faith in Sinemet? I ask because since my husband got diagnosed he's been taking Sinemet and Azilect. Of course I want him to have the absolute best, so I want to know from other people what worked for them. I thought Levodopa (which is in Sinemet) is one of the best medications and doctors try to save that for when things get more difficult for the patient. My husband has probably had this for at least 2 years if not more. It may even go back as far as 8 years, and if he didn't know now, I think he would be better off mentally.

Even though the medicines help, he's devastated. He thinks he's going to deteriorate and I can tell he thinks life, as he knew it, is over. I tell him every one is different as far as progression of this thing. I firmly believe that we have to have a positive attitude and I wish he would get exercise. After his next appointment the 23rd of Feb, I am going to try to insist on some kind of exercise program for him if his doctor doesn't have some kind of physical therapy for him.

He still gets up and drives to work every day. The medicines have made him feel and look more lively and he communicates more and laughs more, even though the laugh only lasts a few moments becuase that dark cloud in the sky of him having PD keeps him from having any natural joy right now. I would do anything if I could get him out of this depression.

 
Old 02-13-2009, 04:52 AM   #11
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glama9 HB User
Re: Stage Three

Quote:
Originally Posted by clsc View Post
Glama,

Why do you not have faith in Sinemet? I ask because since my husband got diagnosed he's been taking Sinemet and Azilect. Of course I want him to have the absolute best, so I want to know from other people what worked for them. I thought Levodopa (which is in Sinemet) is one of the best medications and doctors try to save that for when things get more difficult for the patient. My husband has probably had this for at least 2 years if not more. It may even go back as far as 8 years, and if he didn't know now, I think he would be better off mentally.

Even though the medicines help, he's devastated. He thinks he's going to deteriorate and I can tell he thinks life, as he knew it, is over. I tell him every one is different as far as progression of this thing. I firmly believe that we have to have a positive attitude and I wish he would get exercise. After his next appointment the 23rd of Feb, I am going to try to insist on some kind of exercise program for him if his doctor doesn't have some kind of physical therapy for him.

He still gets up and drives to work every day. The medicines have made him feel and look more lively and he communicates more and laughs more, even though the laugh only lasts a few moments becuase that dark cloud in the sky of him having PD keeps him from having any natural joy right now. I would do anything if I could get him out of this depression.
I sympathize with your husband wholeheartedly. That cloud rarely lifts and you are constantly reminded of what may be in store for you. I read all the literature and have a neurologist friend and all he can offer is lotion is motion. Easy to say when your foot hardly moves. I am trying to keep busy but visions of my father's battle with PD looms very large. He lived till 91 but became ill at 85.

 
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