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Old 06-24-2001, 12:42 AM   #1
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Caring HB User
Post Parkinson's Symptoms Without Brain Lesions, Please I Need Info

This is really strange. I have all the symptoms of someone with Parkinson's. Started with dropping things and very minor tremors at night when trying to sleep, spilling food and drinks on myself when trying to eat. Muscle and joint pains. Progressed into stronger tremors a night, then during the day, then severe tremors followed by worse joint and muscle pains.

The tremors were caused by a Dopamine Deficiency because they go away with Levadopa/Carbidopa. The tremors still become severe when there is a lot of noise and activity around me.

My MRI shows no lesions. (They did not do one with contrast but now have plans to.) So, I essentially have something that mimics Parkinson's without any lesions.

My neurologist says this is extremely rare. He said there is no known cause for this particular condition and little is known about it because this is so rare. I'm only 30 years old and no one in my family has ever had anything like this either.

Does anyone here know about this? Or do you know someone who might?

Does anyone know if an acute chemical exposure can cause this condition, especially to herbicide?

Any information you can offer will be helpful.

Sincerely,
Caring

 
Old 06-24-2001, 04:07 AM   #2
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Caring,
An MRI is done by A Neurologist to rule out other causes of your symptoms,such as a tumor. It is not used to diagnose Parkinsons. A Parkinsons diagnosis is still done by a clinical evaluation. Parkinsons patients don't have brain lesions that are detectable by an MRI!!!!!!!!!!!!!!!!!!!

READ THE POST UNDER "CURIOUS"............
Find a good Movement Disorder Specialist near you. Many of them see Parkinsons patients exclusively. You need to get a propper diagnosis. I'm sure you'll hear from others.
Good Lock - Bernie812

 
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Old 06-24-2001, 01:12 PM   #3
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I agree with Bernie.Now go to a Movement Disorder Specialist. Look at the previous posts for the info that I and carrotcake have posted.

Good luck keep us posted.

Googy
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Old 06-25-2001, 06:03 AM   #4
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Lory HB User
Post

Quote:
Originally posted by Caring:
This is really strange. I have all the symptoms of someone with Parkinson's. Started with dropping things and very minor tremors at night when trying to sleep, spilling food and drinks on myself when trying to eat. Muscle and joint pains. Progressed into stronger tremors a night, then during the day, then severe tremors followed by worse joint and muscle pains.

The tremors were caused by a Dopamine Deficiency because they go away with Levadopa/Carbidopa. The tremors still become severe when there is a lot of noise and activity around me.

My MRI shows no lesions. (They did not do one with contrast but now have plans to.) So, I essentially have something that mimics Parkinson's without any lesions.

My neurologist says this is extremely rare. He said there is no known cause for this particular condition and little is known about it because this is so rare. I'm only 30 years old and no one in my family has ever had anything like this either.

Does anyone here know about this? Or do you know someone who might?

Does anyone know if an acute chemical exposure can cause this condition, especially to herbicide?

Any information you can offer will be helpful.

Sincerely,
Caring
Good advise -- also, there has been some connection between rotenone, a chemical foundin flea powders. I'm 54, the first in my family to have PD, have had it about 5 years, and attribute flea powders as a possible source, but was also involved with herbicides to a large extent in my 30's. lory


 
Old 06-25-2001, 03:25 PM   #5
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Lory,
I remember when we use to spray the yard with DDT.Also Bill was involved with making plastic when it first came out.AND this is the topper.In the service was in Railroad operations and was also on Omaha Beach D D day.For the young ones who dont know,this was WW 2 he has had more than his share.

Love,

Googy
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Googy

 
Old 06-26-2001, 03:38 AM   #6
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Caring HB User
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Thank you all so much. You've been so helpful. Will let you know how I'm coming along. You all take care now.
Sincerely,
Caring

 
Old 08-01-2001, 05:21 AM   #7
Mike TTF
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Question

Googy,

You mention Bill being around plastic being made. Will you expand on this?

Thanks,

Mike TTF

 
Old 08-01-2001, 12:42 PM   #8
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Bruce HB User
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One important reason our doctor can't seem to accept, is for years and years pd was known as a disease of old people and I have seen it many times on these forums, tha a patient in her 30's is frequently misdiagnosed because of the age factor. It definitely looks like you need a second opinion and thai is your right to do so, A physician who is confident in his skills and accepts the fact he doesn't have all the answers, should have no problem referring you to a specialist.

Bruce

 
Old 08-01-2001, 02:34 PM   #9
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Mike it was so long ago around 1947.Bill cannot tell me anything now because of the dementia.

Googy
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Googy

 
Old 08-03-2001, 03:06 PM   #10
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Caring HB User
Talking

Thank you all. Apparently, my previous MRI did who something, which they thought was a blip in the scan or in the film (it was without dye, and doesn't appear to be as in depth, and looking at the previous films, they also are not as clear as the most recent ones.

My recent one does show SOMETHING, though I have to wait a couple of weeks to see my neuro and find out exactly what. I am not sure if there are two lesions, or if it is showing one but from different angles. (Of course I peeked at the MRI films, it's my brain, I have a right to know.)

If he tries to tell me nothing is wrong, I will ask him, then what are all those circles for? (He he.) Though I am sure he will find it quite helpful. Up to this point, we have been baffled.

I understand about the age issue. I'm 30, and my doctors are still running one test after another trying to figure out what is wrong with me.

Scary thing, I looked up info about a man who had herbicide poisoning, and his health problems that followed are so similar (and there are a lot of symptoms)that it scares me. And months later, he developed a resting tremor which his doctors are saying will later become Parkinson's. I'm thinking, yes, this sounds even more like me.

The chemical I was exposed to which set all of this off, has been used as an herbicide, and still is being used as one in some places.

Thank you all for your help and concern. Will let you know as soon as I find out about my MRI details.
Take care now.
Sincerely,
Caring

[This message has been edited by Caring (edited 08-04-2001).]

 
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