Caring

Neuro says my brain MRI, although it does not show any tumors or life threatening problems, something is there, and no one has a clue what it is! Not the
X-ray tech, not the Neuros, nobody. He says the area that it is though, would be in no way connected to my tremors.

So I asked my Neuro about Parkinson's and if there was any way something would show up in an MRI that might indicate if someone has it, and he said usually not.

He insists I do not have Parkinson's (and I am certainly not hoping for it.) He is basing this on the violent movements of my tremors which he says are not Parkinson type tremors (head bobbing or rolling into a fixed position for a few seconds, making hideous faces or bulging out my eyes, shoulder shrugging, arm rolling or hand flapping, and occasional thrusting from my back)the fact that I still have expressions in my face, I do not talk soft and monotone, and I am too young. Is this true? With what I've told you, does that rule out Parkinson's?

Now maybe I don't have Parkinson's, but the fact that Sinemet (generic) works for my tremors, and many other symptoms are relieved by it, has me wondering. I have many of the symptoms of someone with Parkinson's, but the fact that I don't have the above mentioned ones, does that exclude me? (Like I said, it's not that I want Parkinson's, but it sure looks to me like that's what I've got.)

Anyway, I am considering seeing a Movement Disorder Specialist now. I know most of you have sources for them, and any website you can recommend would be helpful. Thank you so much.

Also, do any of you take Neurontin? My Rheumatologist prescribed it for me, for my pain, because he thinks I might have some nerve damage. I was wondering about your experiences with Neurontin, and if you have ever taken it with Sinemet?

Any input would be greatly appreciated. Thank you again for your help. I'm really getting frustrated, and a little depressed, over this whole "mystery" condition.

Sincerely,
Caring