Guess who is going to see a Movement Disorder Specialist - Parkinson's Disease Message Board

Caring · 08-23-2001, 06:14 PM

It's ME! My husband saw a note I had written to myself on the desk, and said, this looks like someone you should go see. He picked up the phone and called to make an appointment just like that.

He kept telling me to give the Neurologist time to figure out what is wrong with me, but I guess he didn't want to worry me by saying that he was not satisfied with my Neurologist's inability to diagnose or recognize what my actual condition is.

So when he saw the words "Movement Disorder Specialist," well, he believes this will be the doctor we have been looking for. And get this, they called one of their long time regular patients and asked if she would like to change her time for a later date so they could get me in right away. I'm going tomorrow!

Thank you all so much for your suggestions. I will let you all know as soon as I find out something.

Take Care all.
Sincerely,
Caring

Pelicangirl · 08-23-2001, 10:33 PM

Caring,

I am so happy for you! You're husband is quite a force to be reckoned with when he gets going. I thought mine was bad LOL. Please let us know what happens. We are all interested.

Pelicangirl (aka Ruth)

Googy · 08-24-2001, 03:20 PM

Caring,

Good luck,you will get some answers.It was the best thing we ever did,but it was our Neuro that made the app.I can still remember,Medicare wouldnt pay the second one.It was worth every penny.
Will be thinking of you.

Love,

Googy

arose · 08-26-2001, 11:19 PM

One point I did not know at first is movement disorders specialists have advanced training. I learned that not all the doctors at Excellence Centers always have this training. Ask where your doctor did the advanced training.

Caring · 08-27-2001, 01:27 PM

Ok, so the MDS thinks he knows what it is. He says my tremors might be serotonin related. Hmmmm, so this would mimic Parkinson's?

He said he's pretty sure he knows exactly what it is, but isn't going to give a definite diagnosis until he observes me closer. He want's to vidoetape my movements and analyze them.

So, essentially, still no real answers, though we may be somewhat closer to figuring this out.

Will let you all know as I find out more.
Take Care now.
Sincerely,
Caring