The screening process I mentioned, for an example, I will describe how they do it at Kansas University Med Center It takes at least a week and you are given a lot of mental tests. They do some of it for research and they have one of the most experienced surgical teams with this surgery in the country.
As for why my surgery isn't working, I don't have a clue. The neurologist doesn't have a lot of experience with the programing, but yet seems knowledgeable.
Two days ago he boosted the voltage and he told me to expect dyskinesia which means the stimulators would be working. Yesterday, it had just the opposite effect and I felt week all day. That was a big letdown.
I asked the neuro if the electrodes weren't implanted in the correct spot in the brain. He didn't really answer the question like I thought he should.
What concerns me, is I can adjust to the fact the surgery isn't working, but all the research I had done over the last three years seemed to be overly optimistic. I was led to believe it was almost a sure thing that my quality of life would be improved, but very little was said about the downside. I am not trying to discourage anyone from having the surgery, but just don't let your expectations get to high like I did because the let down can be much worse.
Thanks for all the kind words.
Bruce
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