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Old 11-18-2001, 07:40 AM   #1
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Post Important question to ask when seeking DBS/STN Surgery

It has been while sense I have researched this surgery and am still learning more about it. I had the surgery on April 24 and have yet to get any benefits from it.

I am begining to suspect the electrodes are not in the correct location and have noticed one glarng difference between my procedure and the procedure performed at least four medical centers. The four centers procedures that I have read, all use the microelectrode recording system to locate the precise target area. My surgeon did not use the system.

This information was taken from the Beth Israel Medical Center's web site. "Due to the size and location of the ST nucleus we use microelectrode recording snd stimulation to better define the boundries,"

Microelectrodes are the size of a human hair so that they are the least traumat means of confirming correct target area." "By keeping very accurate track of the recording location we can then create special physiologic maps that are specific to each patient and which CANNOT BE LOCATED WITH MRI"

The obvious question you should ask the neurosurgeon, does he use the microelectrode system?

The expected result is about 70 % improvement in symptoms and about 50% reduction in the pd drugs. I just had to increase the Sinemet.

Bruce

 
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Old 11-18-2001, 02:24 PM   #2
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Bruce I had no idea the microelectrodes were that size.I hope more people are aware of your research.If you had know what you did now you would be in better shape.Maybe this post will reach some.There are many that read this BB but dont post.I hope that IU is of some help to you.Is it the 27th you are going there?

Blessings,

Googy
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Old 11-18-2001, 06:20 PM   #3
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My friends, the nurses, asked me to change the appointment to Dec 4. It is strange that suddenly I need more Sinemet. That just about proves the surgeon implanted the electrodes on the wromg site.

You are right that I should be feeling better. Today was a bad day.

Bruce

 
Old 02-14-2003, 04:20 PM   #4
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Bruce, I read your comments on DBS. I had the surgery done Sept. 12/02 and the tracking machine which tells the neurosurgeon where to place the electrodes malfunctioned. Consequently my electrodes are about 3 millimeters off target.

This has caused some irreversible brain damage for me: my balance is terrible, the muscles in my jaws do not move properly and my speech is barely understandable and I have trouble chewing. And I have developed a tremour in my left hand.

I have had PD 24 years and the surgery is going to be redone next month.

I can understand your plight perfectly and have talked to so many people who think the operation is a breeze and that it will fix everything. It will only help the symptoms that are helped by l'dopa.

Anyone considering this surgery should be aware that there are risks that the medical personnel do not tell you about. I also had a 6 week battle with infection.

Not to mention that this whole episode has been like a nightmare in that I need more help now. It sure wrecked my plans.

Poochie

 
Old 02-15-2003, 02:22 PM   #5
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Poochie,
I hope the next DBS will be great.Bruce had it redone,is doing good.I have forwarded you reply to him on another message Board.

Good Luck,

Googy
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