It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Parkinson's Disease Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-11-2003, 08:45 AM   #1
Newbie
 
Join Date: Feb 2003
Posts: 3
gary nolan HB User
Red face Hallucinations, Delusions, Paranoia

For the past year, my 78-year old father has been taking 3 tablets per day of Mirapex 0.25 mg tablets AND 3 tablets per day of Carbidopa (25 mg) & Levodopa (100 mg) per day for mild Parkinson's.

About three months ago, he began waking up in the night, claiming to see "people" in the bedroom and also seeing animals in the bedroom. He and my mother live alone in their home, with no animals.

This past week, there was a more serious "episode" when, after a day of unusual stress babysitting 3 young children, my father had a delusional experience where he thought my mother (to whom he's been married for 50+ years) was someone else at times even though she "looked the same". He did grab her and shake her since she thought that she was not "herself". He also thought that the children spending the night that evening had transformed into "other children".

Rather than have him committed to a hospital for observation, I (his only child) opted to encourage him to get off ALL of the above medications -- at least temporarily. While he's had some other delusional episodes since last week (lasting less than 20 minutes each), they've diminished in intensity and length. For the past 2 days he's basically seemed normal again and hopefully the drugs are out of his system.

He has never had any history of such delusions/hallucinations -- nor have any family members had such a history.

I noticed on the drug info literature, that the side effects attributed to the above two drugs state that 1 in 15 people can have "delusions and hallucinations". Could he be that "1" in 15? If so, what are the options? Are their similar Parkinsons medications that do NOT have such side effects? Personally, I'd rather seem him with the twitches and shakes of someone with Parkinsons rather than have him "lose his rationality" and thus risk the quality of his life after all these years. Any recommendations? Have you heard other reports of such delusions, hallucinations, paranoias in other people with Parkinsons who are taking the above medications?

If anyone has similar experiences or has any answers to the above questions, please provide that information.

Thanks!

Gary

 
Sponsors Lightbulb
   
Old 02-11-2003, 02:46 PM   #2
Senior Veteran
 
Join Date: Nov 2000
Location: Arcadia CA USA
Posts: 608
Googy HB User
Post

Gary,

Your Dad needs to see a MDS.Yes this is normal for PD ers.My husband has to take the Sinemet for mobilty.Your Dad will also soon.My husband had what you are telling us.Now has dementia.But he is a long term PWP now in his 29 year.We have all kinds of animals and people.But the violence needs to be addressed for your dad.
Get better help.His meds need to be adjusted as you know.

Good Luck,

Googy
__________________
Googy

 
Old 02-11-2003, 05:17 PM   #3
Senior Member
 
Join Date: Nov 2000
Location: Huntington Beach, CA, USA
Posts: 280
Pelicangirl HB User
Cool

Hi Gary,

Googy gave you good advice. See a movement disorder specialist. I think you are also doing the right thing by taking his meds away, but why not take them away one at a time? That way you could see what is REALLY causing the hallucinations. The sinemet may be OK and it might be one of the other drugs causing them.

I would say that the episode of "shaking" your mother needs to be addressed. That could lead to other types of violence.

My mother also has PD and also "sees" things. So far it's been her dead brother, father and mother. Nothing scarey or frightening.My mother and I have similar symptoms, but so far, I haven't "seen" anything (not that I know of anyway). WE are going on our 14th and 15th year after being diagnosed. The difference is that I have had the DBS surgery and she hasn't(she's 80 and not a good candidate).

But i think the best advice I can give you is Googy's advice. See a MDS. He/She will be able to straighten out his meds and keep a close watch over what is causing what.


------------------
Pelicangirl (aka Ruth)
__________________
Pelicangirl (aka Ruth)

 
Old 02-12-2003, 10:12 AM   #4
Newbie
 
Join Date: Feb 2003
Posts: 3
gary nolan HB User
Smile

Thanks for your input and advice!

Does anyone have any experience with long-term consumption of PD medications that have NOT produced any hallucinations, delusions, and/or paranoia? If so, what are those medications? (either pharmeceutical or natural)

I thought about taking him off one medication at a time --- but things had reached such an "urgency" that I thought it prudent to try to see if he could get back to a totally "normal" state of mind asap. So far, he's been off the medications about a week and there has been NO reoccurrence whatsoever. Moreover, his mind seems sharper and he seems more alert. While he was on those two medications, there were times when he would sit in his chair at the table and sort of "stare into space" and his movements were sometimes slow and seemingly "dull-witted". Now his movement are more normal and he always seem alert and "in the moment," so-to-speak.

He agrees with me that if its a choice being having full use of his motor skills or having full rationality of his mind, he prefers the latter.

We're planning to increase his physical activity level to several visits a week to the workout center --- that may help increase blood-flow circulation to the brain and surely couldn't hurt.

 
Old 02-12-2003, 11:14 PM   #5
Senior Member
 
Join Date: Nov 2000
Location: Huntington Beach, CA, USA
Posts: 280
Pelicangirl HB User
Post

Hi again, Gary,

Yes, I took the meds for 12 years and had no hallucinations or paranoia (Sinemet and Eldepryl at first and then dropped the Eldepryl and took Sinemet CR and Comtan, Amantadine, Requip, Clonazepam). I never had hallucinations. Guess I was one of the lucky ones, because my mother, who also has PD, is having severe hallucinations right now. But also, PD is such a varied disease that it treats each one of us differently. You say your father has "mild" parkinson's, and that may be the clue. Maybe he just can't tolerate all the meds. Most doctors are starting people on agonists like Mirapex and Requip and leaving off the sinemet entirely until it gets worse.

I had a DBS/STN operation, and the results have been very good. I was able to drop the Sinemet completely until recently and take only Requip. It was nothing short of amazing. I feel so much better, and it's been like a miracle.

Keep us posted. WE do care.

------------------
Pelicangirl (aka Ruth)
__________________
Pelicangirl (aka Ruth)

 
Old 02-16-2003, 05:11 AM   #6
Junior Member
 
Join Date: Sep 2002
Location: Anderon, Indiana USA
Posts: 49
BrcMicro HB User
Post

Gary, Mirapex might be the cause of the side effects. I have had great results adding Comtan with every dose of Sinemet. Comtan extends the effectiveness of sinemet.

I also have had the DBS surgey and before the surgery was taking Sinemet CR and Bromocriptine 6 x per day, Selegiline 2x per day, Comtan three times per day and Amantadine X per day.

Now, after the surgery, take one Sinemet CR, 1/2 Sinemet, and take two more doses of 1/2 Sinemet CR, 1/2 Comtan and one Bromocriptine for a total of three times per day.

Bruce
__________________
Bruce

 
Old 03-28-2004, 05:32 AM   #7
Newbie
 
Join Date: Mar 2004
Posts: 3
sgmom4 HB User
Red face Re: Hallucinations, Delusions, Paranoia

My father took 10mg of MIRAPEX a day and had hallucinations and delusions. His behaviors got increasingly worse. He is now on 4mg a day and not experiencing near the side effects he was last year. We are looking for people who have taken MIRAPEX and had hallucination and delusions and committed violent acts.If you could help us, PLease do. Anyone that has PD and has taken MIRAPEX then committed violent acts. Note that it is info about MIRAPEX so I don't delete because I don't know you. Thank you. Susan

Last edited by Moderator BAC; 05-19-2004 at 05:48 AM.

 
Old 03-30-2004, 03:31 PM   #8
Senior Member
 
Join Date: Mar 2002
Location: Carlyle,Illinois USA
Posts: 124
Hopalong5us HB User
Re: Hallucinations, Delusions, Paranoia



Gary,

Googy & Pelican girl gave you good advice. The sinimet & or the other meds can cause hallucinations. A very dear friend of mine started carrying a gun. Needless to say, we got him in QUICK!

I am not trying to scare you but after time the agonists seem to cause more problems. Please if he has violent behaviors get him in quick. Otherwise notify your doctor quickly, if he is having hallucinations that you don't believe will cause him or anyone else harm.

It was very hurting when my friend accussed me of being out to get him and his family, but I realized it was only the meds. Now he is doing much better, but be aware, they may put him on an anti-hallucination med instead of reducing the other meds....

Hoppy

 
Old 05-04-2004, 12:29 PM   #9
Senior Member
 
Join Date: Apr 2004
Posts: 106
kvn60640 HB User
Re: Hallucinations, Delusions, Paranoia

Hey my dad had similar hallucinations as well. Instead of taking him off the meds alltogether try cutting back the dosage a little. The meds not only help control the shaking etc. but also help prolong the onset of the disease. My heart goes out to everyone who suffers from this disease and anyone who has someone close to them suffering.
Kevin

 
Old 05-25-2004, 01:48 PM   #10
Inactive
 
Join Date: May 2004
Posts: 132
SafetyJ2006 HB User
Re: Hallucinations, Delusions, Paranoia

Quote:
Originally Posted by Googy
Gary,

Your Dad needs to see a MDS.Yes this is normal for PD ers.My husband has to take the Sinemet for mobilty.Your Dad will also soon.My husband had what you are telling us.Now has dementia.But he is a long term PWP now in his 29 year.We have all kinds of animals and people.But the violence needs to be addressed for your dad.
Get better help.His meds need to be adjusted as you know.

Good Luck,

Googy
Googy,

Sinemet is L-Dopa / carba-Dopa. Mirapex is a drug that enhances its effect by fooling the brain that there is more dopamine in the brain than there actually is. I have been on both Sinemet and Mirapex, but have been recently weaned off the Mirapex due to problems with compulsive behavior. In the literature, about 25% of PD patients are reported to have a dementia that is induced by the PD, not the medications. Your advice to see an "MDS" is wise if by MDS you mean neurologist.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Schizophrenia without the hallucinations? rubytoldme Schizophrenia 4 12-02-2009 08:15 PM
alzheiers and hallucinations lineesue Alzheimer's Disease & Dementia 6 10-10-2009 10:24 PM
Hallucinations Almost Gone Swamp56 Schizophrenia 2 09-20-2009 11:59 AM
Paranoia. Delusions. Voices. Hallucinations. SARAHSARAHSARAH Schizophrenia 17 05-03-2009 07:40 PM
hallucinations angelbabe9 Schizophrenia 3 09-01-2007 11:22 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



Mod08 (4), cejayb (3), saintlyme (2), annaparky (2), pete (1), n_clemens (1), Bruce (1), rosequartz (1), angelkissesx5 (1), JohnR41 (1)

Site Wide Totals

teteri66 (1180), MSJayhawk (1005), Apollo123 (906), Titchou (850), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 05:45 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!