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Parkinson's Disease Message Board
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Old 06-20-2011, 03:36 AM   #1
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mahzeltoffee HB User
Toes on right foot bend and cramp

My husband's toes, especially his big toe, on his right foot bend and cramp, The Dr. says it is a muscle spasm. In fact his whole foot is cramped. His big toe bends down at a 90 degree angle. Now, sometimes it is bending up at close to a 90 degree angle. He can unbend his big toe with his fingers, but this lasts less than a minute. Once or twice he was able to get the toe to relax for a couple of hours after a long soaking bath. But, that doesn't seem to help now. (It is to the point where someone else can't even forcibly bend their toe that far.) It has gotten to be extremely painful. His foot cramps and looks like it is bent over- both forward and to the outside. So, he is walking on the outside of his foot. The extreme cramping of the big toe, other toes and the foot makes walking very difficult & painful.

Two physical therapist at the hospital rehab. facility looked at his big toe and foot and said they'd never seen anyone with that extreme cramping. The physical therapist gave him a couple of exercises - putting a sheet under the big toe & pulling back on both sides of the sheet & holding it in that position. Another exercise doing that under the ball of the foot. This doesn't seem to help. The physical therapist sent him to one of the orthotics places. They said they didn't know of anything on the market or that could be made that would help. Whatever they could put under and/or around the toe would be bent by the toe. They suggested double depth shoes to make it so that the blisters at the tip of his toes don't get worse and it may be somewhat easier & somewhat less painful to walk - plus picking his foot up & down differently when walking.

He takes six different medicines two to three times a day for Parkinson's especially for the cramping/muscle spasm -
3 a day of Pramipexole 1.5mg a day, (generic of Mirapex); two different combinations of carbidopa/levodopa - an extended release which is a 50/200mg tablet and a 10/100mg tablet both twice a day;
Amantadine 100mg twice & selegiline 5mg twice a day
These were added in over a period of years - especially the last couple of years.
About a month ago the Dr. added in Baclofen10mg, also 3 times a day.
He also takes 2 tylenol for arthritis 650 mg at a time- he tries to limit those.

He was diagnosed with Parkinson's Disease about six years ago & diabetes type 2 a year and a half ago. He takes 4 metformin 500mg a day for the diabetes. Nothing seems to help. ANY Suggestions of any type to decrease the cramping of the toes and foot and the pain that goes along with it?
Thank You for any ideas and/or suggestions you might think of that might be able to give him some help! We really appreciate your concern and help!

 
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Old 07-25-2011, 09:08 PM   #2
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Dedeaux HB User
Re: Toes on right foot bend and cramp

Hi, I experience cramping (dystonia) in my hand and toe as well. My neurologist use botox to relieve the cramping and so far it has help. This might not work for eveyone, always seek the advice of a specialist.

 
Old 08-22-2011, 08:42 AM   #3
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Re: Toes on right foot bend and cramp

I can totally relate to your husband's suffering. I got my toes to soften & foot to relax considerably after the combo of chiropractic & homeopathic remedies following computerized biofeedback. Consider alternative treatment since western medicine doesn't seem to know what to do about this painful & debilitating Parkinson's problem.

 
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