The importance of having a good neurologist.
I have seen 3 neurologist in the past year. Why?
My symptoms started in late 2010. Being right handed, I noticed my handwriting was getting smaller and jerky. Then couldn't move my fingers and the pain.
I went to see this neurologist for 7 months (April - November). On my 1st visit, I asked if it was PD (my mother had PD for 15 years), he told me no. He sends me to have an MRI. I ended up having four MRIs done between April - August 2011 (3brain and 1c-spine) and still couldn't give me a diagnosis. He believe my symptoms were coming from my spine. Gave me a script for vicodin for the pain. He also sent me to pain management. I received an epidural in my upper spine. Did the shot relieved my pain.....No. His next suggestion was surgery. What! This suggestion made me go get a 2nd opinion.
So I went to see the 2nd neurologist. He gave me an extensive examination that lasted 45 minutes. He didn't even look at my MRIs. He told me that it could be 1out of 3 diseases; CBDG, PLS or PD. He gave me a script for sinemet and sent me to see a specialist in NYC for further evaluation. I left his office feeling stunned, devastated and horrified. I sat in my car crying hysterically.
I went to see the 3rd neurologists at Mt. Sinai. He examined me the same way the 2nd doctor did and gave me the diagnosis, I have PD. He took me off sinemet and put me on Mirapex•. Im taking 2 pills (.25mg) 3x a day. I'm starting to feel like my own self again and no pain. YAY!
The difference between 1st doctor and the 2nd doctor is amazing. I'm so angry that I wasted 7 months with an inexperience doctor who couldn't make a diagnosis but I feel he milked my insurance company and if I continued having him treat me, I would have gotten worst and ended up being rehabilitated.
And now I'm on the right path.
Last edited by annaparky; 02-09-2012 at 10:16 AM.
Reason: not finished typing