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Parkinson's Disease Message Board
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Old 10-08-2012, 09:42 AM   #1
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Join Date: Jul 2005
Location: Bellingham, WA
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kee4u HB User
Care Giving!

My dad was diagnosed with Lewy Body Dementia with Parkinson's symptoms about 9 months ago. He is now in a nursing home do to he had a bladder and kidney infection that nearly killed him. He is now getting stronger and their is talk of him coming home (sometime)

I moved in with him about 10 months ago. I was the solely caregiver 90 % of the time. My sister would releave me every over weekend. While he was getting worst I was helping him, Taking care of two houses and yards. with no help.

Now my sister and I work together she goes feed him at lunch and I go feed him at dinner time and I try to give her at least one day off on the weekend. But what makes me so mad is I have two brothers and two niece that could help but you think that they would offer to help no way. My two nieces have no problem getting money from there grandfather but when it comes down to when he needs them the most you don't see them. I have so much on my shoulders and the only one I can count on is my sister. We both need help by our family I shouldn't have to ask they should offer there help.

To tell you the truth I don't want dad to come back home. He needs 24 hour care and I don't know if I can do that again. but on the other hand If I do care for him I can save him lots of money and maybe they wouldn't take his house and his cash away.

It's been so long since I could do what I wanted to do without feeling guilty. I'm looking forward to the day that I don't have to care for someone. but the thought of that means my dad would be gone and thats a lowesome thought.

Thanks for listing to me sound off.

 
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Old 09-05-2013, 03:12 AM   #2
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Join Date: Jan 2012
Location: GRANADA HILLS
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flex77 HB User
Re: Care Giving!

kee4u.....you stepped up and are helping family...not everyone does that...I salute you

 
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