Originally Posted by pursable
I do worry about the dostinex, of course the doctors said nothing to me about the possible heart problems if on dostinex, had to do my own research. Once I found out about the possible issues with this medicine I stopped taking it but what other options are there?
It's true that doctor's don't tell you about the other options. You have to find out about them for yourself through the Internet. I do believe there is some kind of shot you can get that starts with an S, but for now I've forgotten the name of it.
I'm not totally comfortable with Dostinex either because I'm confused about what's in it -- seems something like a fungus derived from plants (LSD type) and even Cobalt from what I understand -- but again this is just the way a novice understands it. It's the Cobalt stuff with that scares the living daylights out of me because I don't like anything to do with uranium inside of me since I am already bombarded with it with gadolinium and radiation from everything else.
But once I tried the drug it worked such miracles that even with its dangers I had to accept it. For me there was no other choice. I don't imagine the shots would be provided for most people and they might be very expensive.
I did try the Bromocriptine which is also the same fungus derivative but that left me with a severe severe blow-to-the-back-of-the-head feeling, as if I had a stroke or something.
Since that was identical to the original blow that led me to discover the tumour in the first place, which left me disoriented and confused for a few years, I was terrified of this feeling once again, (and so was my doctor) so I dropped it immediately.
After that I was too afraid to try the Dostinex (Cabergoline) for a couple of years which was why the tumour continued to grow, and wasn't aware of any other alternative. Maybe the shots didn't exist at the time. (If I find out what they are I will let you know).
I also had a cousin who tried the Bromocriptine first and she got fairly sick from it so she too switched to Dostinex with raving results, and today her tumour is gone.
Dostinex has a better "cure rate" with regard to getting rid of tumours from what I've read too, so it is worth your while going that route if heart problems aren't too bad.
And if your heart problems are caused by a heartbeat that's too "slow", it may even improve if you go on the Dostinex, as mine did.
The good part about Bromocriptine is that it doesn't appear to have any kind of uranium derivative in it.
Again though, I'm just an Internet user so I can't speak with any expertise on anything I'm saying here, (or from what I've "understood" from the Internet) so you might want to look up some things yourself by searching for words like Dostinex and cobalt, Cabergoline and cobalt, dostinex and fungus, Bromocriptine and fungus, and so on.
A fourth alternative, a brain operation, is dangerous, Any kind of operation to the brain is like playing Russian Roulette. From what I've read the death rate (or rate of extremely severe complications) is actually much higher than most people would be comfortable with (especially after the tumour is bigger than 1cm, in which case the tumour can return. Required radiation afterward would also damage good brain cells). So the best route is to always try the medicine first.
You may really hate it but believe me, my life wouldn't have been so badly damaged had I started on Cabergoline years before. Because I waited so long the damage is now very severe and much of it is irreversible.
As a "patient only", I would suggest getting back on the Dostinex as quickly as possible if you think your heart can tolerate it, but take it in weak amounts like I'm taking, especially if you're over 60. I only take 1/4 tablet twice a week and it's very very effective so far.
Now that you've stopped, your tumour will continue to grow if you don't "do something" to stop it and I'm sure you wouldn't want to end up like me! The smaller it is when treated, the better for sure!