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Old 01-21-2012, 11:32 AM   #1
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tigger67 HB User
MRI showed no pituitary tumor, but I don't believe it

I've been suffering most of my life with low hormones, hypoglycemia and thyroid, although I was first diagnosed with hypothyroidism and hypoglycemia 4 years ago. I also have cortisol imbalances. I've been told I have hypopituitarism because my body doesn't produce hardly any female hormones on its own. I had to be put on hormones at age 17 just to start my period and even while on birth control pills for 20 year, I only had maybe one period a year. I'm now on bioidentical hormones and finally have regular periods. My growth hormone levels were also very low when tested a few years ago.

I had two MRI's though and no tumors were found. I was just told my pituitary gland was concave and therefore not functioning right. Since I started taking thyroid hormones 4 years ago though I've been getting worse. I have this band of pressure across my forehead and severe brain fog.

I feel like there had to be something on the MRI that no one saw and wonder if I should get a second opinion. I mean, if all I needed was hormone replacement, why am I not feeling better? Also, after a year on estrogen replacement, my estrogen levels are still around 1.5 (range starts at 0) and my testosterone is in the negatives. So something is preventing my body from absorbing and using any of the supplements I"m taking. Could that be from a tumor?

 
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Old 01-25-2012, 06:27 PM   #2
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pthomas HB User
Re: MRI showed no pituitary tumor, but I don't believe it

I would take both MRIs and get a second opionion of your films and your current meds, supplements, blood test results, and symptoms from an Endocronologist. Endos can read MRIs. See my other Reply post at 10:10 PM today.

 
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Old 01-26-2012, 02:18 AM   #3
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Re: MRI showed no pituitary tumor, but I don't believe it

I've never had good luck with regular Endos because they only treated me based on my TSH, which was always suppressed even when I was very hypo. I have found an endo who specializes in pituitary disorders but she needs a doctor referral, so I need to try and see if my current doc will do that. I only have scans for the last MRI. I was never given them for the first one, but I have both reports.

 
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Old 01-28-2012, 06:30 AM   #4
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Re: MRI showed no pituitary tumor, but I don't believe it

If your current doctor won't refer you, you should find another doctor that is more interested in helping you solve this than their own ego. Also, you should be able to get the MRI films/data from the place that took it. This information should be on file for several years.

 
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Old 01-28-2012, 06:47 AM   #5
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tigger67 HB User
Re: MRI showed no pituitary tumor, but I don't believe it

My current doc told me she has no problem with me seeing a pituitary specialist, but she can't refer me because she wasn't the one who originally diagnosed me and she doesn't have all the labwork to send to this new doc.

 
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