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Old 01-26-2012, 01:46 PM   #1
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tigger67 HB User
Can TSH be high and still have a pituitary disorder?

My TSH has never been at zero before starting on thyroid meds, so my doc thinks my pituitary gland is working to some capacity. Unfortunately since I started hydrocortisone last month I can't do anymore pituitary testing until I'm off of it for a month. She said I can't really get a true test of my FSH/LH because I'm on bioidentical hormones, and there's no way I can go off those or my thyroid meds for a month. I won't be able to function at all.

So can you still have a pituitary disorder even if some of those things are functioning?

 
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Old 01-28-2012, 06:40 AM   #2
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Re: Can TSH be high and still have a pituitary disorder?

If you do decide to go off the hydrocortisone, make sure the doctor tappers you off over a period of time. This can be dangerous if you quit cold turkey. If your pituitary is working to some degree, how does that help you since you would still need meds to feel like a normal human. It might be worth tappering off just the hydrocortisone and see what happens, however, my endo. determined that since my pituitary wasn't sending the right signal to my thyroid and testes, it probably wasn't sending it to my adrenals either and didn't think tapering off the hydrocortisone was worth it.

Last edited by pthomas; 01-28-2012 at 06:41 AM.

 
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Old 01-28-2012, 06:46 AM   #3
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Re: Can TSH be high and still have a pituitary disorder?

My doc felt that since I was on such a low dose of HC and wasn't really feeling any effects of it at all, it wouldn't be a problem to go cold turkey. I want to get a saliva cortisol test done to know what time of day my cortisol is low so I'm not taking the HC at the wrong time. I also want to test my ACTH for my pituitary. I've been taking thyroid hormones for 4 years and have felt worse ever since I started taking them. So I need to find out what is the root cause of the endocrine problems so I'm not just throwing meds at the wrong things and making it worse. I'm sure I still need thyroid hormones, but there has to be something else I'm missing for the hormones to be making me worse, not better. I'm not converting my thyroid hormones right. I always have a high RT3 when I take any form of T4. There are many pituitary hormones I never had tested (growth hormone, ADH). If any of these are low, I need to find out so I can replace what's actually not working.

I could continue taking thyroid hormones the rest of my life and still feel awful because something is causing them to not work.

 
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