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Old 09-15-2012, 03:39 PM   #1
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1kate1 HB User
Cushings without weight gain?

I have had 4 24-hour urine tests, lots of saliva and dexamethazone tests and they all come back positive for pituitary Cushings disease - but I have LOST weight, not gain it. Has anyone ever heard of this? I am frustrated at being dismissed by endo's because of my appearance despite my lab results.

 
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Old 09-29-2012, 06:47 AM   #2
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Re: Cushings without weight gain?

I have the same problem. Over 3 years I did 34 - 24 hour UFC's, 15 midnight salivas, 10 hour UFC's, 17 hydroxycorticosteroid testing and all came back positive for Cushing's plus microadenoma on my pituitary. But the 5 different Endo's I went to said I didn't look Cushing's enough and therefore elevated cortisol wasn't bothering me.
I switched to Endo number 6 and he biopsied my thyroid and parathyroid. Aug 16 I had hashimoto/hurthle cell thyroid removed and a huge parathyroid adenoma removed and a delphian lymph node that had acquired Hashimoto removed.
I was told the hyperthyroid, my Hashi was hyper, and my parathyroid adenoma were the reason my cortisol was elevated but I didn't have cushing's symptoms, no weight gain.
I did my first 24 hour UFC since surgery yesterday. I haven't tested cortisol in over a year so it will be interesting to see if cortisol did drop after surgery.

 
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Old 09-29-2012, 07:41 AM   #3
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Re: Cushings without weight gain?

Quote:
Originally Posted by cjs59 View Post
I have the same problem. Over 3 years I did 34 - 24 hour UFC's, 15 midnight salivas, 10 hour UFC's, 17 hydroxycorticosteroid testing and all came back positive for Cushing's plus microadenoma on my pituitary. But the 5 different Endo's I went to said I didn't look Cushing's enough and therefore elevated cortisol wasn't bothering me.
I switched to Endo number 6 and he biopsied my thyroid and parathyroid. Aug 16 I had hashimoto/hurthle cell thyroid removed and a huge parathyroid adenoma removed and a delphian lymph node that had acquired Hashimoto removed.
I was told the hyperthyroid, my Hashi was hyper, and my parathyroid adenoma were the reason my cortisol was elevated but I didn't have cushing's symptoms, no weight gain.
I did my first 24 hour UFC since surgery yesterday. I haven't tested cortisol in over a year so it will be interesting to see if cortisol did drop after surgery.
THANK YOU! I have already printed out your response and faxed it to my Endo... did you have problems with stomach discomfort? Heart racing? Acne?

 
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