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Old 04-24-2013, 07:15 PM   #1
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crosem HB User
Conflicting views for pituitary enlargement - I want to have a baby!

Hi all. Roughly 6 months ago I had an MRI for a weird ear sensation that I am having regularly. Came back clear with only one thing reported: a large pituitary gland. The radiologist suggested a pituitary MRI which I had done 2 weeks later. The report says that my pituitary is normally defined, bright spot preserved, normal stalk thickening with no diffusal (?) evidence of an adenoma and no cystic lesions in or around the pituitary. However my pituitary is big! 14mm x 12 x 12mm and very close to the optic nerves. I've had another MRI only last week and there is no change. Obviously I was sent to an endo who found my blood/hormone levels are normal and suggested I simply have a genetically large pituitary gland. I saw a neurosurgeon who also said no tumor and no chance she would biopsy it. However a couple of weeks ago my neurologist started saying it is a tumor and sent me to another/different neurosurgeon. This one says its a macroadenoma and he wants to operate as I would like to try for a baby. I'm just so confused now as to who to believe. Do I or don't I have a tumor?!? Wouldn't the radiology report be accurate? These people see these things all the time so for them to write in my report that there is no adenoma makes me question what I'm now being told. Help?!? TIA

 
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Old 04-02-2014, 08:40 PM   #2
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Re: Conflicting views for pituitary enlargement - I want to have a baby!

Hi there!

How confusing for you! The neurosurgeon should really be communicating with the endocrinologist and making their minds up.

However your MRI says "evidence of adeoma" this means they can see a tumour or what they think might be one. if I were you I'd be phoning the neuro and asking why she thinks its not a tumour and why the rest of your team disagree.

Good luck!

 
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Old 04-02-2014, 09:39 PM   #3
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crosem HB User
Re: Conflicting views for pituitary enlargement - I want to have a baby!

Quote:
Originally Posted by LunarEclipse View Post
Hi there!

How confusing for you! The neurosurgeon should really be communicating with the endocrinologist and making their minds up.

However your MRI says "evidence of adeoma" this means they can see a tumour or what they think might be one. if I were you I'd be phoning the neuro and asking why she thinks its not a tumour and why the rest of your team disagree.

Good luck!

Thank you but the MRI says "no evidence of an adenoma"

 
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Old 08-09-2014, 07:40 PM   #4
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Re: Conflicting views for pituitary enlargement - I want to have a baby!

I find it hard to believe that if you had a tumor, your prolactin level would be normal. I agree-your neurologist and endocrinologist should be talking to each other.

 
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