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Old 10-29-2004, 09:22 AM   #1
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Rachelle49 HB User
Chronic muscle spasms

I had a slight case of polio at the age of 3 which left me with a shorter (3/4") and weaker right side. For the last 10 years I have been experiencing knotted muscles in my hips, back, shoulders, & neck. The post polio specialist in Phila******a did nothing for me and only said, "your muscles are really tight." I am to the point that the chronic pain and fatigue are taking a toll on my life. Is anyone else experiencing this problem?

 
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Old 10-30-2004, 05:31 PM   #2
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kovena HB User
Re: Chronic muscle spasms

First thing you should do is get another Doctor. If this one you have is so up on Post Polio, he would know how painful it is and would give you something the help relieve the pain and relax the muscles. Some Doctors do not believe that drugs help because it is a lifetime thing you have to go through. Find an MD that knows this and is willing to give you some quality time for your life without being wracked with pain. I had gone through years of pain that finally left me bedridden...and then I was finally sent to a MD that understands that the Quality of life is worth even more than the longevity. I feel in my heart for you with all that you are going through. Hopefully there is another MD around there that will see it as quality of life. My Md's understand that I will be addictid to the meds I am on, but understand that it is not an addiction caused by the want to get "high", but the inevitable addiction of someone who will be on pain meds for the rest of her life to simply be able to get up out of bed.
Please find another MD that will see that you need some medication to help you.
"Above All Do No Harm" Love and Light to You...Kovena

Last edited by kovena; 10-30-2004 at 05:36 PM.

 
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Old 11-06-2004, 06:54 PM   #3
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Smile Re: Chronic muscle spasms

Hi- I had Polio when I was 5 and am experiencing the same pain you are- lots of muscle spasms, tightness, fatigue--think those are fairly common in post polio--it really does affect every part of daily life--I can't walk to far, stand too long, or sit too long either--- the one thing that has helped is that I bought a Tempur-pedic pillow (about $130) which supports the neck and head when you sleep--it has made a big difference --reduced neck and shoulder pain and some upper back pain too-- better and more relaxed sleep--think it was well worth the money. Good luck--carol

 
Old 11-08-2004, 10:29 AM   #4
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Re: Chronic muscle spasms

Quote:
Originally Posted by ppfla
Hi- I had Polio when I was 5 and am experiencing the same pain you are- lots of muscle spasms, tightness, fatigue--think those are fairly common in post polio--it really does affect every part of daily life--I can't walk to far, stand too long, or sit too long either--- the one thing that has helped is that I bought a Tempur-pedic pillow (about $130) which supports the neck and head when you sleep--it has made a big difference --reduced neck and shoulder pain and some upper back pain too-- better and more relaxed sleep--think it was well worth the money. Good luck--carol
Thank you for your reply. I also can not sit or stand for any lenght of time. I feel best when I'm moving. I would really like to continue discussing this with you. [ removed ]

Last edited by moderator2; 11-08-2004 at 03:31 PM. Reason: please carefully review the posting rules - no emails

 
Old 11-29-2004, 12:02 AM   #5
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ppfla HB User
Re: Chronic muscle spasms

Hi- sorry it took so long for me to get back to the site--have lots going on at the moment. Have you ever heard of Myofascial Syndrome? It is a condition that causes painful spasms due to connective tissue that has become
bundled up forming "trigger points" or knots. You can look this condition up online at ***** or other health-related sites. I was diagnosed with this condition and I can tell you that it is extremely painful--easy stretching helps as does heat.
Physical Therapy is always suggested to me. Although I had polio in my legs, this condition is located across the back down at the shoulder blade level,lower back, as well as many trigger point knots on both sides of the hips--Docs said it could be from years of walking with uneven leg length or just over-compensation of the muscles in the back.
Anyway, I mention it just in case. Hope you are feeling better.
Carol

Last edited by ppfla; 11-29-2004 at 12:05 AM.

 
Old 11-30-2004, 09:11 AM   #6
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kovena HB User
Smile Re: Chronic muscle spasms

Thank You for your Good Wishes...I too suffer from one leg longer than the other and it never crossed my mind to mention it to my current MD. Hmmmm....I will be sure to mention it the the Rheumy I will see tomorrow. I was tested a few years back for Rheumatiod Arthritis and it was Negative so I do not think it is that. I will maybe know some more after myvisit to the MD. I am getting tired of the run arounds I seem to be getting with this Doc and that Doc...but I believe if I had a tangible name for what I have, I could begin to do some healing on it! I am on doses of 60 mg of MS Contin(Morphine Sulphate) and 30 mgs of the MSIR (Morphine Sulphate Instant release) every 6 hours, and it barely makes a difference at times. I am however, grateful for the times it does help with the pain even though it be a short time.
Divine Love and Light to You...Kovena

Last edited by kovena; 11-30-2004 at 09:12 AM.

 
Old 12-14-2004, 02:39 PM   #7
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Re: Chronic muscle spasms

I have been to numerous doctors including a PPS specialist and haven't had any help. I just had a hip x-ray to rule out arthritis. Currently I am scheduled for botox injections in my back in early 2005. I am hoping they help. Any suggestions would be greatly appreciated.

 
Old 12-14-2004, 09:31 PM   #8
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ppfla HB User
Re: Chronic muscle spasms

hmm- not ever heard of Botox used that way, but I guess it makes some sense to relax the muscle spasms--I have had the same xrays--found osteoporosis. If you can move at all, Tai Chi has really helped me so much. It is a slow movement exercise that helps stretch muscles and helps balance. It is a form of martial arts-destresses the mind as well as the body, and I found that it helps with muscle pain and tightness-- especially in the back ,shoulders, neck and legs. Good luck on your plan of action- hope it works well for you.

Last edited by ppfla; 12-14-2004 at 09:32 PM.

 
Old 12-23-2004, 01:13 PM   #9
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Re: Chronic muscle spasms

Thank you for the Tai Chi suggestion. I had tried yoga but could not keep up with the class and had no balance. Perhaps this would be a better avenue for me.

 
Old 11-25-2005, 06:38 PM   #10
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Thumbs up Re: Chronic muscle spasms

Quote:
Originally Posted by Rachelle49
I have been to numerous doctors including a PPS specialist and haven't had any help. I just had a hip x-ray to rule out arthritis. Currently I am scheduled for botox injections in my back in early 2005. I am hoping they help. Any suggestions would be greatly appreciated.
I have suffered chronic back pain accompanied by severe leg spasms since 1998. I had a failed back surgery which cause injury to my sciatic nerve. This nerve injury causes my muscle spasms that can not be controlled with massive doses of narcotics. In June 2005, I had Botox injections directly into the muscles of my lower legs. It took about 2 weeks for me to feel the results. The Botox has helped tremendously with the spasms. I had releif for approximately 4months. I am now going through difficulties getting the insurance companies to pay for the Botox Injections. I would like to continue having the injections but am not sure I can continue the costly expense. How did the injections work for you?

Last edited by moderator2; 11-25-2005 at 06:41 PM. Reason: to put a bracket on the quote tag

 
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