i was thinking about this some more. i used to get this, just like you, maybe 5 times a year, for about the ten years before i broke with classical pps symptoms (atrophy, loss of use, etc). i still get it.
it would last about 3 days and would really knock me down. the aching seemed to start at my spine and then work its way outward, to fingertips and toes. they would get blue and mooshy, though not cold. by mooshy, i mean that if i picked something up, the marks on my fingertips didn't fill, just stayed dented in. then the whole thing would go away till next time.
my best friend at the time was an Infectious Disease doctor and she thought i was crazy, too.
wonder what this is all about? really glad to have read your post, sunshine. don't feel so weird about it now.