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Old 07-31-2007, 04:22 PM   #16
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Location: Yellville,AR, USA
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hillbillywife HB User
Re: Any polio survivors out there?

Thanks for the comments. My mom passed away in 1999 and my dad, while willing to talk about it, doesn't really know as much as mom did. I think, when I explained about the intense physical therapy after the onset causing trouble now, she felt I was blaming her for something. She was very touchy about it and I probably would have reacted the same way.

The two grandchildren we've adopted are now 15 months old. We brought them home from the hospital to us. Our daughter, their mother, has an emotional disability. She also has a 7 year old, she has never allowed us to adopt, but we have raised. We have to make sure she gets up and goes to school. Last year, after the twins were born, I took off a month of work. Then when I returned, they had to go to daycare in a town about 9 miles from where I work. I had them in a daycare family home in the town where I worked and was very happy with their care. It was a Christian home with a mom and three teenage daughers. But DHS investigated cause she had too many kids. They did not count the teenagers. They shut her down and I had to find daycare overnight. Not much daycare possibilities in that town.

No, there is not financial help with grandchildren now in Arkansas. Of any to speak of.

I finally found a lady to come to our home and that helped but I was still struggling at work. I was "hanging by a thread" there before the babies were born. I began my job as a lead worker and when a less stressful position came available in 2000, I applied and had to fight to get it. After that happened, they began trying to add extra work to my demoted position. I found that to be the normal case until 2006, when I transferred to another county office, but then got back into the same type of position I began with.

I finally was able to take early retirement in January 2007. My retirement really only pays for health insurance and our life insurance. There's no much left after that is paid.

At any rate, I just got off the phone with an attorney who states I have a strong case and they wish to take it. Here in Arkansas, that can take up to three years to get through. I know that cause I've been in a position to see the people who have applied for ss.

I'll try to check this more often. I really think I would benefit with some contact on this board. Thanks again.....

 
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Old 08-01-2007, 07:16 PM   #17
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Location: Western Australia
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Numb_one HB User
Re: Any polio survivors out there?

Hi everyone,

I'm just a little curious

My mum had polio in 1961 when she was about 6 years old & her mother (my grandmother) nursed her through it! We've known all through our lives that she had it when she was six & she talked about it when we asked questions, but i think we (& her) are all under the impression that once you're over it..... that's the end of it! I didn't realise that it can come back or that it has reoccurring long-term symptoms

Can you please explain this to me a bit better & whether there are different types of polio, because i'm a little bit confused here! Mum has been going to the doctor quite frequently the past few years with what the docs just describe as a viral infection. Basically they're just too lazy to find out what it really is!!! They just keep saying it's viral & they put her on antibiotics. She's very chesty & her sense of smell disappeared for ages at one stage, but it returned after a while, but she is still constantly suffering from shortness of breath & coughs all of the time. She also got pains through her breasts & into her back which she initially though may have been breast cancer, but when it stopped, she just put it down to the strain on her chest because of all of the coughing she does!!! She thinks the Doctors are missing something, but i doubt that this has even crossed her mind & i don't want to mention it if it isn't.

Does her symptoms sound worrying to any of you??? I was really under the impression that once you have beaten polio, that that is the end of it..... just like measles etc

Any advice & info will be greatly appreciated!

Crystal

 
Old 08-08-2007, 09:07 AM   #18
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Location: Leroy,NY,USA
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Janet W. HB User
Re: Any polio survivors out there?

Crystal-

So sorry to hear about your Mum - First of all 'Polio' does not come back- but what happens is the damage that it could have done to the nerves when you had the virus. They call it Post Polio the after affects and not everyone that had Polio will have these affects(although the number are growing)-

Has your mum been to a Pulmologist- for her breathing- and make sure the doctors understand she had Polio as a child. I am not sure what can be going on but PPS is weakness, fatigue, pain and at times breathing difficulties that can affect everyday living.. Maybe contact a PPS Clinic not sure where you are at but you can ****** search and find some clinic and even call to speak to someone there.

Sorrry I could not be of more help- but I would take this seriously and do all research you can and call a specialists for PPS.

Best to you and Mum Janet

 
Old 08-08-2007, 07:39 PM   #19
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Numb_one HB User
Re: Any polio survivors out there?

Thankyou very much for your help Janet,

Mum went to see a new DR the other day & he is sending her off for a CT scan & if that doesn't show anything, he's going to send her off to the ear, nose & throat specialist.

She mentioned that she had polio to her DR, but he doesn't seem to think that is the case! He said the pains through her chest are from being congested & all her coughing is putting strain on her chest. He also said that her previous DR, rather than diagnosing the problem, just gave her antibiotics to treat her symtoms, rather than finding out what the real underlying problem is & by doing doing that, her immune system is now cactus basically & she is just picking up anything & everything!!!

Hopefully he can give her some indication of what is going on!

Thanks again Janet,

All the best to you, Crystal xoxoxox

 
Old 08-08-2007, 07:46 PM   #20
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Janet W. HB User
Re: Any polio survivors out there?

I will keep your mum in my prayers.

Hugs Janet

 
Old 08-23-2007, 08:21 AM   #21
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Location: martin,tn. 38237
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crochetqueen HB User
Talking Re: Any polio survivors out there?

New to the board. Had polio in 1948 at ll months. Affected both feet and legs. I have had over 20 surgeries over the years. It has definetly been a journey.Haven't officially been diagonosed with pps but am sure that is the nature of my problems. Basically just wore out but hanging in there. I'm blessed with a great supportive family and that really helps. When you are so independent like all of survivors are it is soooo hard to slow down and let others do for you. Hope to hear from others cause I have lots more to tell. Have a great and pain free day!

 
Old 08-25-2007, 08:44 PM   #22
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Jan60 HB User
Re: Any polio survivors out there?

Hi Crochetqueen,
Like your name. Wish I were creative like that.
I'm new also. Would love to hear the rest of your story, and your symptoms.
As you, I have not been diagnosed with pps either. But I have so many stange things that I feel it has to be what I have.
Gosh, all those surgeries. Did they help? Are you in braces now? Always been?
What do your crochet?
Welcome.
Jan

 
Old 08-26-2007, 08:49 AM   #23
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Janet W. HB User
Re: Any polio survivors out there?

Welcome, aboard.... We would be interested in hearing more about you?

be well Janet

 
Old 09-01-2007, 07:27 PM   #24
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crochetqueen HB User
Re: Any polio survivors out there?

Hi Jan60. Sorry I haven't replied until now. Can't seem to understand how to work this board. Just found your reply. I crochet anything and everything. Lots of baby sweaters and blankets, doilies, you name it. Now I'm afraid my hands are going to give out on me. Old arthritis I guess. No not all of my surgeries were successful. I think I was sort of a guinea pig if you know what I mean. I went to the famous Childrens Memorial Hospital in Chicago til I was l6. Then they kinda cut me loose. Basically like I said before I just feel wore out. Can do quite a bit from the wheelchair but if it involves standing very long I'm in trouble. Love to bake and keep house and it gets very depressing sometimes. Then I get uplifted when people tell me my house is so clean. If they only looked under the beds. (ha) I wear a long legged brace on my right leg only when I go out. That thing weighs about 5lbs and hot. My orthopedic wants me to go to Memphis and see this Dr. who knows about pps but haven't made my mind up yet. Like we all know what can they do except tell us what we already know. Slow down. Don't pay the price for trying to be like normal folks. Good hearing from you. Where is the rest of yall out there? Hillbillywife I have relatives in Yellville. Holler at me. Nite-nite crochetqueen!

 
Old 09-15-2007, 11:47 AM   #25
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Re: Any polio survivors out there?

Are there any polio survivors out there in Hawaii? I live on Maui and would really like to see if there are any support groups in Hawaii anywhere.

Last edited by LindaBKenyon-Yo; 09-15-2007 at 12:00 PM.

 
Old 09-15-2007, 11:58 AM   #26
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LindaBKenyon-Yo HB User
Re: Any polio survivors out there?

I got polio in August 1953 at the age of 16 months. Can you tell me more about "brain fog"? I have not heard of that before, and would really like to get more information on this.

 
Old 09-22-2007, 03:16 PM   #27
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binaryboots HB User
Re: Any polio survivors out there?

hi everybody out there new to this polio at 3 years old now 52 some days feel like 80 still working get tierd more easly now used to have an abundance of energy taking it ill out as they say one day at atime

 
Old 09-23-2007, 02:30 PM   #28
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Janet W. HB User
Re: Any polio survivors out there?

Hi - "brain Fog" for me is when i am so fatigued, that I cannot concentrate and have a hard time staying awake. I guess to put it mildly my mind cannot no longer function and only thing that helps is laying down and resting for me...

Hugs Janet (Polio age 4, PPS dx'd age 51)

 
Old 09-23-2007, 10:35 PM   #29
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BlueScreen HB User
Re: Any polio survivors out there?

I had polio in 1949 at age 4. I pretty much had all the symptoms including paralysis in both legs. Fortunately, I recovered the use of my legs quickly but they're not as strong as they should be. I had some memory loss too.

It wasn't till I was in my mid 20's that I started to notice the fatigue, concentration and other problems. Fortunately I made it through college and beyond. Finally in my mid 30's I climbed out of denial to seek help. The only help I got were medications for depression. I think I tried them all. None helped, most made my symptoms worse.

What followed were years of struggle. They're mostly a blur now. I was never told I had PPS even after telling all the doctors that I had polio when I was young. I now take a few CNS stimulants that keep me going for most of the day. I also take other meds for other needs. Life is bearable. I look forward to beating the actuarial tables.

 
Old 09-24-2007, 08:04 AM   #30
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binaryboots HB User
Re: Any polio survivors out there?

hi just to let you know your not alone iv just found this site readig all the posts theres going to be alot more of us looking for answers all the best boots

 
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