Originally Posted by barber71;2***291
I had polio at age 4. I don't remember any of it and thought my left thigh was the only part affected. Now 65+ yrs later I find myself losing muscle on the rt. side of my face, neck, shoulder and arm. I now know that my whole body suffered in different degrees. I have and continue to modify my life style. I had to become very selfish and put my needs first. 75% of the time I do just that. I miss being the independent, strong, person I thought I was and have learned to rely on others for help. I am full of ideas and am willing to share them with anyone.
Found your posting very helpful.
I had Polio when I was fifteen.....spent the 20 days mandatory in the hospital CCD ward after Polil was confirmed by a spinal tap....It was awful!
I really dreaded hearing the carts carrying the vats of steamed wool down the hall. After I was released and fitted with lifts for my shoes and told that I had to get up only fifteen minutes at a time, I seemed to recover almost completely. Now I realize that the "little' problems I have had through the years were the cause of Post Polio Syndrome!!!!
My legs are deteriorating fast and I can no longer take the little walks I had been taking for years. Never could go very far but was able to keep a job teaching and walk all that was necessary without any help or even a limp.
I found a lab in Germany that posts on the web and am trying their poliotin
....drops to take in water. Just started ...too soon to tell if it is a snake oil or the real thing. Have you found anything that helps other than rest?