Hello All. I have been spending a lot of time on a polio friends disucssion site and haven't checked this board lately to see how you all are! Sorry, sorry!! I hope work is OK Cheryl, and all is well with everyone else.
I saw a new neurologist, and again it is the SAME story.....ALS. Go figure. He disregards what Dr. Bruno says about PPS patients having increased reflexes, polio foot, etc. All he did was look at my twitches, check my reflexes, and order blood tests. All my tests alwayscome back normal, so he is out of luck to prove his diagnosis. He seems like an OK guy, but he goes by the textbooks. I gave him a copy of Dr. Bruno's book and I am wondering if he will even read it. So, I am getting SMART, and I am going to a polio specialist in Sacramento on my own dime. If I like her, and she listens and asks lots of questions, I will switch my health insurance AGAIN! I hope it will make me feel better once I see the polio specialist. I get totally freaked out and stressed after hearing that ALS word again.....it takes a while to recover.
I have to sell my cute little red Saturn Ion and get a vehicle (used of course) that has a ramp or lift. I wanted a scooter lift for my car, but it won't accomodate one. So, now I have to sell my economic car and buy a gas guzzler.....great....but the good news is, I will be mobile again. Too hard to break apart my scooter and lift it in and out of my trunk. I stay home too much and have to rely on family/friends for help.....hard for me.
What is new with all of you? Are you OK? Sending lots of hugs,
hello carolyn...i sure am sorry to hear this neurologist thinks ALS too,and did you tell him that your blood tests have always come back normal before?...so far everybody says ALS,but YET they havent proved it so far...when do you see this polio specialist?...i really hope they can help you...
work is ok,and i'm doing ok too...hope everybody else is good...cheryl
Carolyn, I am so sorry youre doctor is not helping for you, I hope you can find one that understand about youre polio. Its to bad you have to get a differnt car, the saturn is a nice little car but if it cant fit in youre scooter then you have toget a bigger one. I drive a little car to, its a Honda civic and good with gas that helps its allmost $4 now. I am sooooooooo happy, we just bought a house and we will be moving in October, its 3 bedrooms and 2 bath and a nice yard. Today we went to the bank to put in all the paper work for the mortgage, but we were allready approve before we buy the house. Our daughter Amanda is 4 this Friday and we are having her party on Sat.
So good to hear you are both doing well. Congratulations Dana on your new house! That is soooooooooo exciting! I remember how excited I was 10 years ago when I bought my house.....the feeling is indescribable! I hope you will be very happy.
Yes, I need to see a polio doc for sure. I am pretty stressed thinking I may have ALS. I keep getting weaker, so sometimes I think maybe the neurologists are right. But I am hangin in there!! Can't let it get the best of me right!! Dr. Bruno has been so great in answering my emails. I am thinking of calling him so I can talk to him in person and thank him. Janet says he is on vacation, so I will try and call next week.
Are you working too hard Cheryl? Sure hope not, and hope you are getting enough rest....you too Dana. Phyllis, were are you? Hope all is well.
Hi everyone: This has not been a good time for me I don't feel like doing anything. Has been awhile when I was last on here thought I would try today. Hope that everyone is ok, Janet did you get your pc? well gotta go for now my strength is almost gone, will try later. Ronnie
hi everybody...good to hear from you again ronnie,and so sorry to hear you've not had any strength to do anything...i am doing ok,just work and come home and rest...i cut my finger a couple weeks ago,and has gotten infected,so durn,now i got to take an antibiotic and 3 more pills a day to take on top of what i already take...sure sorry to hear about your pc janet,must be very frustrating for you to have to start over again...
Hi yall. We had a great weekend, it was Amanda's birthday, we had her party on Saturday then Sunday just go to church then Kevin took care of the girls so I can get some rest. I am still sooooo exited about the new house, October seems so far away but its comming sooner. Before we get to busy with moving I need to go to CA to see my grandma and grandpa, they just move from there house to a retirement home, we were just there last christmas but there in there 80s and not that well. Kevin cant go he has to work and soon starting school for his masters so his mom will take care of the girls and I have to go myself. I need to see them they are like my first parents, they raise me till I was 16, but I am a little scared to fly by my self.
Ronnie I dont think I know you but I am sorry your not feeling to good and I hope things get better.