I'm with you Teresa... I even have a dollar left over from Christmas shopping...I thought it was warm in TN... I'm in PA and baby it's cold outside... but that's part PPS.. cold extremities... Thank God, my husband is an oven... even at this age we snuggle to keep me warm... wooo woo...lol... Hugs Dolores
Hi, do you want to be called dodie or doroles? It was in the twenties here with wind chill added in, i was on defrost all weekend. We need to get more donations started and see if we can get a tropical island with a loan financed for about 50 or 60 years. Talk to you later. Teresa
Count me in for the tropical island purchase. I live in New England. We have already had snow. BRRRRRRRRRRRrrrrrrrrrr It makes me hurt from my neck to my toes and every place in betweeen.
love & prayers,
Hello, everyone ! I have'nt been on for awhile but it's nice to know that there are quite a few of us out there! I do have pps. I am only 39. I got polio in 1970 at 2 mths old. I have managed to get around with a weakened right leg, that has caused a severe limp. Due to limping all my life, I have really uneven hips and messed up lower spine. Reading your messages lets me know, that with proper care, and plenty of rest, that i will be ok. I am already on dissablity, and it only took me one try. It wasn't an easy decision to come to, but I know that it was something that needed to be done.
My name is Cher. I had polio in 1959 at 4 years old. I have been suffering for about 25 years with doctors telling me there is nothing wrong with me, but I do have a good doctor now. I'm glad you at takling care of yourself so young. I say that because I don't think my pain would be so bad if I had known at a younger age. I have problems with my legs, hips and back also. I am out of work now. Just starting the disability process. I hoping I can get approved without having to pay a lawyer, but I am taking my time with the application.
Stay in touch
My prayers will be with you
Hi Sue & everyone.... Cher is right, Sue, it is good you are taking care of yourself now before you start to feel really bad... I think I am the grandmother - mother to all of you out there and if I can make it, you all can do well too....I guess you know when I got Polio..(1938) way way back when... lol..
You will get that dissability, Cher, just hang in there....
I want to wish all of my friends out in HealthBoards... and Very Merry Christmas and a Happy and Healthy and Blessed New Year.... Love & Hugs to you all... Dolores... (Dodie to you Teresa)... LUV...
Oh DODIE, DODIE YOU MAKE ME SMILE AND ARE A VERY FUNNY SPECIAL LADY. TO CHER AND SUSAN, I WAS ABLE TO GET DISSABLITY ON MY FIRST TIME. FOUND A SPECIALIST IN GEORGIA, DR. PAUL PEACH. HE FILLED OUT ALL MY PAPER WORK AND WAS WONDERFUL. THE PAPER WORK WAS AWFUL AND WILL TAKE AWHILE TO COMPLETE. BEST OF LUCK AND WISHING EVERBODY A MERRY CHRISTMAS AND A HEALTHY NEW YEAR. LOVE TERESA
Last edited by rockman; 12-18-2009 at 01:28 AM.
Reason: NEED TO CHANGE WORDING
Thank you for all your words of encouragement...!
I did get on dissability on my first try Cher,so I am sure you will not have any trouble. I did not need a lawyer, so just hang in there and don't get discouraged.
I hope everyone has a blessed holiday, enjoying family and friends. However, lets please pace ourselves and get plenty of rest! I am already feeling overwhelmed!
First off - EVERYONE - have a happy and peaceful holiday season. Plenty of rest = plenty of enjoyment. Enjoy family if they are around.
It sounds like all of us who are on disability had no problem getting it the first time out. From what everyone has said, the key factor is having an aware physician, prior diagnosis, and (I think) being honest about our activities of daily living (ADL's).
Cher, just do the forms in spurts, you need mental breaks from those things, and don't try to read too much into the question (that is something I do a lot, hehe)
Hi Dodie! I had polio in 1954 when I was 18 months old. I was very 'lucky I think' as It only affected my right leg at the time, so as I got older I could do almost anything apart from running for the bus ha! I now know that I have PPS, I know I shouldn't be bitter as there are people much worse off than any of us. It was the shock of being struck with It again after I thought I had liked It. I first noticed something was wrong when I started falling over. Now I also understand why I was getting chronic fatigue too. I'm In the UK and most doctors here don't know much about It. I've already given In to crutches and wonder what will be next? Thank God I've found a place to talk to other polio survivors. God bless. Jim in the UK.
Hi Jim from the UK... Isn't it great that we all have a place to go to vent... which I know we can do quite often.... I call it my PMS day... not for you I guess..... PITY ME SYNDROME... you can use it if you want to... I won't hold it against you... I think I am the old lady of the bunch... as you have probably read...I got polio in 1938 (at age 2yrs)... just shy of the iron lung... The better parts of my body took over quite well and I walked w/braces & crutches for quite awhile and they were not made as comfortable as todays' braces... "I" discarded them when I was a teenager and learned to walk without them..and did very well.. just a wobbley gait and heavy limp.. I even got married and had 5 children...and with the help of a fantastic hubby we raised them all... our oldest was born in '59 & youngest in '69...
I know all that you are going thru is hard to accept, and like you said, there are people worse off than we are....I've experienced all of the symthoms and have been noticing a few more lately... well I guess a lot comes with age... I can go on and on all day... my hubby says I talk to much (on the puter)... cause my voice give out when I talk to much normally... to his delight haha
The best thing to do is to conserve your strength and try to have a good outlook on life. Take it one day at a time.. It's gotten me this far and it will you too..God Bless.....Dolores (dodie) from PA