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Old 03-22-2011, 09:12 AM   #76
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Join Date: Oct 2009
Location: Providence, RI
Posts: 37
CherPPS HB User
Re: I'm new here...

Hi Teresa,
YES, I have a Lot of trouble swallowing. I went to a Speech Therapist who did a throat assessment throat and showed me what to do. I can only talk between swallowing, feet should be flat on the floor, avoid use of straws, small bites one at a time then swallow completely before another bite and be mindful of what and how you eat. It takes me a long time to eat and I still choke sometimes, but not as much as I used to. My PPS doctor told me PPS will not kill me but the choking could. This is all to do with PPS. It also causes me to stop breathing while I sleep so I had a sleep study. I have sleep apnea and have to sleep with a CPAP machine on my face. (very sexy, NOT)
So please be careful.
You have a huge dog, don't pick him up. To save the strength I have left in my arms I was told not to lift more then 10 pounds and not often.
I hope the info my doctors gave me will help you.
Good Luck, I will pray for you.
(Hug)
Cher

 
Old 03-22-2011, 10:58 AM   #77
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Join Date: Feb 2009
Location: Lancaster, Pa. USA
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Dodie3736 HB User
Re: I'm new here...

hi teresa yep i do have trouble w/swallowing..seems like everything gives out after awhile..like cher says slow down when you eat or drink..i even choke when i'm not eating..even when i talk too much...and clearng the throat is another problem and a general pain in the neck..i thought it was just a plain allergy so i took cough drops for it ..and they helped a bit BUUUUT i took the sugar free drops (i'm always on a diet) which are clearly labeled MAY HAVE A LAXITIVE EFFECT...needless to say, i stopped taking them.lol. i am so happy to have you & cher and all the rest of you there to vent to..i'm am starting to feel a little more like my old self again..no one quite understands what we are going thru..they feel empathy and sometimes pity..which i won't stand for..we are survivors and don't want pity..what we need is understanding and maybe a little helping hand once in awhile..MY LOVE & PRAYERS AND LOTS OF HUUUGGGS GO OUT TO EACH AND EVERY ONE OF YOU..DODIE

 
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Old 03-22-2011, 11:00 AM   #78
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Join Date: Feb 2009
Location: Lancaster, Pa. USA
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Dodie3736 HB User
Re: I'm new here...

Quote:
Originally Posted by Dodie3736 View Post
hi teresa yep i do have trouble w/swallowing..seems like everything gives out after awhile..like cher says slow down when you eat or drink..i even choke when i'm not eating..even when i talk too much...and clearng the throat is another problem and a general pain in the neck..i thought it was just a plain allergy so i took cough drops for it ..and they helped a bit BUUUUT i took the sugar free drops (i'm always on a diet) which are clearly labeled MAY HAVE A LAXITIVE EFFECT...needless to say, i stopped taking them.lol. i am so happy to have you & cher and all the rest of you there to vent to..i'm am starting to feel a little more like my old self again..no one quite understands what we are going thru..they feel empathy and sometimes pity..which i won't stand for..we are survivors and don't want pity..what we need is understanding and maybe a little helping hand once in awhile..MY LOVE & PRAYERS AND LOTS OF HUUUGGGS GO OUT TO EACH AND EVERY ONE OF YOU..DODIE
CHER IF YOU FEEL LIKE COMPLAINING..GO RIGHT AHEAD..WE'RE HEAR FOR YOU

Last edited by Dodie3736; 03-22-2011 at 11:02 AM.

 
Old 09-13-2011, 12:04 PM   #79
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Join Date: Feb 2009
Location: Lancaster, Pa. USA
Posts: 35
Dodie3736 HB User
Re: I'm new here...

hi all i'mmmm baaackkkkk... and still pecking the keyboard... it's been a long hard pull..and i'm slowly making a comeback..the problem that caused all of the other problems was a serverly pinched nerve in the upper portion of my back..caused by the use of the crutches.. i had lost amost all of the feeling in both of my arms and a portion of my legs...which left me weakened and unable to take care of myself. i had a "laminectomy" in may which took the pressure off of the nerve...and slowly my strength is coming back...if it wasn't for my post polio doc, i would still be unable to move.. she insisted that much numbness is not a part of pps..she sent me for an mri and they found the culprit...been going thru a lot of therapy and i can finally get up again (w/the help of my crutches of course)..my arms are still weak but are getting stronger.. the hands are still numb, but the surgeon said they will come back in time... i hope ..THEN TO TOP IT ALL OFF, I HAVE TO HAVE A D AND C..I THOUGHT AT 75 ALL OF THSE FEMALE PROBLEMS ARE OVER..COULD-A HAD ME FOOLED...
enough about me... how are you all doing.. i don't see anyone posting... i hope you are doing as well as could be expected..i think of you often and you are all in my prayers...

Last edited by Dodie3736; 09-13-2011 at 12:06 PM.

 
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Old 09-14-2011, 03:01 AM   #80
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Join Date: Aug 2009
Location: maryville,tn
Posts: 6
rockymanone HB User
Re: I'm new here...

Hi dodie, i was afraid something had happened to you. I am so glad you are back. I am having trouble all over body. Trouble with my voice and swallowing. One of my biggest problem is my bladder. I take ditropan, and it helps, as long as i don't drink much. Got a news letter and it had an publication that dr. Bruno wrote. It was about a pps patient that went off ditropan, and started taking vesicare. She went into a coma. Vesicare slows down your stomach and intestines. She was given liquids and different medicines and finally came out of it. Unfortunately, she has to use the ventilator at night and sometimes through the day. That was such a scary story. Want to share with you, and anybody else that reads this. I am still keep on keeping on. Still have my dogs and they are my fur babies

 
Old 09-14-2011, 06:13 AM   #81
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Join Date: Oct 2009
Location: Providence, RI
Posts: 37
CherPPS HB User
Re: I'm new here...

Hi Dodie,
It was nice to hear from you. OMG you're really had your share of pain. I'm glad to hear you're doing better. I use a canadian crutch, it stops at my forarm, just to avoid the problem you had. Keep us posted.
I pray for all of you and wish you all well. I'm happy to be able to talk to people with the same problems.
I'm doing ok, holding on.
Love & Prayers
Cher

 
Old 09-14-2011, 06:23 AM   #82
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Join Date: Oct 2009
Location: Providence, RI
Posts: 37
CherPPS HB User
Re: I'm new here...

Hi Rockymanone,
That is a scary story. Swallowing & choking are just one of my many problems.
You mentioned your dogs, may I ask a question? Did you ever have children? I never did and no Specialist could ever find a reason why. I figured it was the drugs given to me when I had polio at 3 years old, but most people with PPS did have children later.
God did give me 3 step kids and 2 grandchildren , but I still wish I could have had my own. (I'm too old now, 55) If it's too peesonal a question you don't have to answer.
Love & Prayers
Cher

 
Old 09-14-2011, 11:24 PM   #83
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rockymanone HB User
Re: I'm new here...

Hi, no, i never did have children. I never wanted any, do have one stepson and he is twenty-three and he still comes and spends the weekend with us. He is very close to his dad. I wish now, that i had tried to have children. Hindsight!!!! I have wondered, if i could, have gotten pregnant. It is too late for me. I am 52 and went through menopause early. What kind of crutch do you use? Remind me, do you wear a brace? I have one full leg brace and have been fitted for a full brace on the other leg. Cannot walk very much, use my scooter all the time. Thank god for them

 
Old 09-16-2011, 06:15 AM   #84
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CherPPS HB User
Re: I'm new here...

Thanks for the answer. I took a lot of ricks in my youth (blushing) and paid thousands of dollars as a married adult, but no doctor ever found any reason why I couldn't get pregnant. Anyway I use a canadian crutch, my forearm goes thru it, that way it won't ruin the nerves and muscles under my arm. I may need to from one crutch to two.
I wear two foot ups, to prevent me fron falling. I also wear a back brace. My back and hips are a big pain problem for me. I use scooters in big stores like Wal-mart.
Yes, thank God for them.

 
Old 09-17-2011, 09:55 AM   #85
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Join Date: Feb 2009
Location: Lancaster, Pa. USA
Posts: 35
Dodie3736 HB User
Re: I'm new here...

hi Cher... I do use canadian cutches...but because I used them to pick myself up, pinched the nerve in my back... can you imagine picking up 200 lbs with crutches...ouch.
picture this for a genetic hoax..my mom weighed in at 225 and my dad at 275 when they got married and here I am..well I did lose 57lbs in 2005 and have kept it off since..tain't no easy task..I got around many years without crutches, my arms always picked me up..
I had 5 children...they range in ages 52 the oldest down to 42, our baby..it is sad that you couldn't have any children,, but the Lord works in mysterious ways...you were meant to be a great step mom, both you & rocky.. what are your real names??? maybe you told me already but i'm old and i forget LOL...my name is Dolores...hugs..

 
Old 09-18-2011, 08:36 AM   #86
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Join Date: Oct 2009
Location: Providence, RI
Posts: 37
CherPPS HB User
Re: I'm new here...

Well Hello Delores,
I think about you and pray for you all the time.
Yes, I was given 3 great step kids. Two are grown, 30 and 34 and with my second marrage I have a 15 year old girl. Boy she keeps me up yo date with the young generation. My real name is Cheryl but my family and freinds call me Cher.
((hug)) back to you

 
Old 09-18-2011, 08:44 PM   #87
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rockymanone HB User
Re: I'm new here...

Hi dodie, my name is teresa and i am 52, live in the great state of tennessee, have 1 husband, 1 stepson, and 4 dogs. Post polio since i was 36 and use my scooter all the time. Can't walk very much, have arm and back pain. Use lyrica, keppra for nerve pain. They work really well. Have 4 older sisters and 1 pain in the ***, younger brother. I will tell him i wrote that. We are always giving each other a hard time. He just shakes his head and says, teresa, your killing me, your killing me. Can you imagine, i love him. I hope you had a good weekend. My husband took me out saturday and we had a really good time. Just did a few things around the house today. I turned over on my scooter outside wednesday. Not the first time. Hurt my weaker arm. Did not do anything for two days, except sleep and lay around. Feels better now. Post polio sucks. Talk to you later, teresa

 
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