Hi - I have not been on this board for awhile. I had paralytic polio when I was around 4- The last couple of years, i have been getting weaker, more fatiqued and the pain sometimes is well unbearable. The worse I say is in my neck shoulders so much I have problems with spasms. I have seen a few doctors in my area- and like someone said-it is a sad shame doctors do not know enough about PPS - since the Poliovirus was eradicated in the US some years back.
I am going to see a Dr. Richard Bruno- he is ahead of the Polio Institute in Engelwood NJ- he has written a couple of books and has studied Polio and the after affects since the 80's. Very nice man, very intelligent man. Once I start the program- my regular MD here will work with me. So there are alot of info. on websites out there- some good some not so good. But PPS is real and do not let anyone tell you it is NOT...
Best to you all- I do not take pain meds, I want to know what I need to do t help and give me some quality of life back- I do take muscle relaxers only when I absolutely need and on Neurotin for the Nerve Pain- All I can say is find out what you can on Polio and after affects and Listen To Your Bodies..
Be well Bless you Janet