Are you aware of Richard L. Bruno's book that was published a year ago? The Post-Polio Paradox. My doctor is reading it at this time to that he can gain more insight. His nurse practioner's sister has it, and that is how she knew from my symptoms that I did not have fibromyalgia (which I've had for 10 years), but actually PPS. Born in 1949, I had a severe illness in 1954 that my parents told me and my family was measles. However, I had to be immunized for measles when my son was born in 1975!!! My parents were very good at hiding "bad" things from the rest of my family. If you have access to the book, or can order it from Barnes and Noble on their website, I encourage you to do so. This was the breakthrough for me, especially when no one could explain why I was getting weaker and having more pain than ever. Even had a spinal tap!!! Good luck!