I had polio in 1954 at the age of 1 - I had surgery in and out in Oct 09 and found that I was fatigue all the time - they said it was depression - I took the test after 8 months and found that I wasn't - I also had memory problems, word finding problems and when either wrote or read - they were the wrong words. You need to be careful on surgery - you need to be carful with most drugs too. My doctor thought I had a stroke because I even slurred my words at times. Or ask the same question over again - its all a part of PPS. You need to look up a few sights and it will indicate how you need to be careful with surgery and other issues.
Last edited by moderator2; 12-06-2010 at 12:41 PM.
Reason: to make a new thread
Sounds just like my story. Where are you in North Carolina? I'm in Va. I go to Sheltering Arms in Richmond, Dr. Albert Jones post polio specialist. He's very nice. I lived in Norfolk and had polio in July 1948 I was 4. There was an out break of Polio in North Carolina at the time.
I don't think there are many Dr.'s around who know anything about PPS. I went to Mayo clinic and I really didn't get any satifaction. Now I just manage my aches and pains myself. I contracted polio in 1952 at age 7. I wear braces and use crutches, have to use my arms for getting up and down so they are really fatigued. The main thing for me is after I go for a few days, then I have to rest my arms. Hang in there.
You are correct, most Doctors do not have knowledge of Post Polio Syndrome (PPS), but my husband purchased the book below from Amazon, it is very detailed, and he took it to all his doc appointments once he was correctly diagnosed. It was very helpful for them, especially when they prescribed Xanax for the twitching he was suffering from at night. This twitching caused by motor neurons firing abnormally, preventing him from falling and staying asleep. Dr. Bruno mentioned in his book that this med would help, and his Doc took this advice, prescribed it and now my husband sleeps at night. He still twitches, but ever so slightly, and not enough to wake him up. This book is his bible now. He has made copies of certain sections for specific doctors, and they all seemed appreciative.
"The Polio Paradox: Understanding and Treating "Post-Polio Syndrome" and Chronic Fatigue" by Richard L. Bruno
Hi, glad you are still around and fighting the disease. Keep on, keeping on! I had polion in 54 also and almost died1 Iron Lung, the hole bit! Soooo many surgeries I've lost count! I am able to walk with a brace on my left leg, so am very thankful. Spent 3 years in a wheelchair not being able to walk at all. So, I feel blessed. PPS is kicking back on me though ... that's not so good.
I'm new to this site, so hope I am posting the correct way. I am searching for the names of the three types of Polio. Might you be able to help me find this information? Your response would be appreciated. Cheers!:
Last edited by moderator2; 04-22-2012 at 11:44 AM.