Re: I had polio in 1954 at the age of 1
You are correct, most Doctors do not have knowledge of Post Polio Syndrome (PPS), but my husband purchased the book below from Amazon, it is very detailed, and he took it to all his doc appointments once he was correctly diagnosed. It was very helpful for them, especially when they prescribed Xanax for the twitching he was suffering from at night. This twitching caused by motor neurons firing abnormally, preventing him from falling and staying asleep. Dr. Bruno mentioned in his book that this med would help, and his Doc took this advice, prescribed it and now my husband sleeps at night. He still twitches, but ever so slightly, and not enough to wake him up. This book is his bible now. He has made copies of certain sections for specific doctors, and they all seemed appreciative.
"The Polio Paradox: Understanding and Treating "Post-Polio Syndrome" and Chronic Fatigue" by Richard L. Bruno