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Polycystic Ovary Syndrome (PCOS) Message Board
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Old 11-27-2003, 04:32 PM   #1
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Question PCOS diagnosis but no cysts on ovaries?!?!?!

I have recently been diagnosed with having PCOS but the ultrasound showed no cysts on my ovaries. How is this possible ? I also have insulin resistance and I know that they often occur together but I really don't understand how. Can someone explain to me how this works? I'm so lost!!!!!

 
Old 11-27-2003, 05:00 PM   #2
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

You dont have to have cysts on your ovaries to have PCOS. I dont have them nor am I insulin resistant. I do have the other common signs,facial hair,weight gain,and loss of hair. The only blood test that came back funny was my DHEA levels which is another sign of PCOS.
There are some women who have none of the common signs of PCOS but still have it just like there are women who have every common sign but dont have it.
There are alot of great articles online that can help you understand more. Do a search for PCOS and you will find them.
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Old 12-16-2003, 02:53 PM   #3
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Hi, I also have been diagnosed with PCOS and do not have cysts. But I do have all of the symptoms. I have severe acne when I am not taking BCP's or androgen blockers, and have perfect, lovely skin when I am taking them. However,the price for beautiful skin and very little body hair has been a weight gain of nearly 25 pounds. I was on Diane35 and Aldactone. I went off them to see how my symptoms were doing. They came back with a vengeance. I am now going to try Yasmin to see if I can lose weight while taking BCP's. I am now losing weight, as I am not on any BCP's. I have also cut way down on simple carbs and upped vitamin A, E and C, which is a "power pack" for skin.
I have a normal period, but my cycle is long, 35-38 days, instead of 28-30. However, three doctors only had to look at the severity of my acne to know that it was hormonally induced.
I have done a lot of on-line research and have found very little about dealing with just symptoms and no cysts. Is it possible, as you mention, that I have elevated androgen levels and do not have PCOS, even though I have been diagnosed with it?
The other day a general practitioner asked me if I WANTED to take the Pill, as if it were an option. Maybe I could just take androgen-blockers. ?????
Any words of wisdom?
Thanks!

Quote:
Originally Posted by Blastoff9600
You dont have to have cysts on your ovaries to have PCOS. I dont have them nor am I insulin resistant. I do have the other common signs,facial hair,weight gain,and loss of hair. The only blood test that came back funny was my DHEA levels which is another sign of PCOS.
There are some women who have none of the common signs of PCOS but still have it just like there are women who have every common sign but dont have it.
There are alot of great articles online that can help you understand more. Do a search for PCOS and you will find them.

 
Old 12-16-2003, 03:11 PM   #4
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Quote:
Originally Posted by kayoko
I have a normal period, but my cycle is long, 35-38 days, instead of 28-30.
Actually normal periods can range between 24 to 36 days and even then you can give or take a couple of days either way. Before PCOS effected my cycles they were 34 days without BCP. They were than way from the get go. I had a few doctors tell me I wasnt normal because of that but as I got older and read for myself I learned that the average isnt that great of an idea.
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Old 12-16-2003, 03:21 PM   #5
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Thanks for answering! Any experience with any of the meds (Diane35, Aldactone, Yasmin) and/or how to get rid of the symptoms (acne, weight gain, excess hair, etc.) I mentioned?
Thanks!

 
Old 12-16-2003, 05:56 PM   #6
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Quote:
Originally Posted by kayoko
Thanks for answering! Any experience with any of the meds (Diane35, Aldactone, Yasmin) and/or how to get rid of the symptoms (acne, weight gain, excess hair, etc.) I mentioned?
Thanks!
i dont really have an answer because we are too focus on getting pregnant despite the POCS. So I am dealing with the symptoms that I have.

Have you talked to your doctor about being on Glucophage? It is normally used for diabetics but it can help those with PCOS. I have one friend on it and within two months of starting it she lost about 15 pounds. So you could talk to your doctor about that treatment. Also try to see an endocrinologist because they are actually better trained to deal with PCOS women. they also know more in the areas of treatment.
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Old 12-16-2003, 05:56 PM   #7
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Does this sound like I have PCOS:

I have no insulin resistance (Insulin level of 5, normal below 17)
I have normal glucose (Level of 88, normal between 65-105)
I have very light, soft body hair on my stomach and breasts
Normal TSH and Prolactin
Lost 10 lbs since off the pill so I am 5'4'' 126lbs
Mild acne (had it while on the pill and before)
Normal ovaries (not enlarged)
No natural period since stopping the pill (in August)
Provera induced period on Nov.21 (less than 1 day after last pill)
LH 8.8
FSH 3.9
Total Testosterone 67
(Taken at some random point in the cycle)

The nurse practitioner said that it is definately not PCOS but an OBGYN said that it could be. I am getting a second opinion. Does anyone know if this sounds like PCOS????? I am very scared. Thanks.

-Nicole

 
Old 12-17-2003, 04:52 AM   #8
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Hi, first of all, don't be scared. Stress is extremely detrimental to Women's Health problems. It could be PCOS, yes. Like Blastoff said, you don't have to have cysts. She doesn't and neither do I.

I responded to your question in another thread. You might talk to your doc about this. An ob/gyn should know much more than a nurse practitioner about it. Hormone levels can vary from woman to woman, so you need to consult a specialist. I have the same levels as you, more or less, and I was diagnosed with PCOS. However, I am looking into it possibly being something else, or at least trying different meds to just treat the symptoms, which seem to be my biggest problem. I am also changing my eating habits. I have cut out all simple carbs. You might try a change in diet. You are at a healthy weight for your height, but only 50% of PCOS patients are overweight. It IS an advantage to be at a healthy weight.

Just one point: it is not normal for a healthy woman of child-bearing age to not menstruate. This is the main factor in your case, I think. In fact, I have a fairly normal cycle, it's just longer than more women I know, but my gyn diagnosed me with PCOS because of my symptoms. In my case, I think weight loss will help a great deal, so I am focusing on that until I go back on androgen-blockers and estrogen.

I hope this helps, Nicole!
Take care,
Katrina

 
Old 12-17-2003, 04:58 AM   #9
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Hi, thanks again. I read a thread in this forum (can't tell you who wrote it, sorry) in which a woman tells how she got pregnant with fertility drugs after losing 40 lbs, then gained weight back, lost it again and got pregnant naturally. Ah, I remember, she was talking about if it is possible to lose weight while on BCPs. For her it was and subsequently got pregnant as desired. That thread might help.

I have never heard of Glucophage. My glucose levels were normal the last time I checked them (last March). My sister is on a weight loss medication, but she has a considerably greater amount to lose than I. She also has PCOS and instead of taking hormones, she is only working on getting her weight down. Thanks for the advice. I will look into Glucophage.

 
Old 01-12-2004, 07:19 PM   #10
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

I was diagnosis with PCOS when I was 19 (10 years ago). It was not until this year that I developed the token 'string of pearls' cysts in my ovaries, though I have had many years of pelvic pain.

For the most part I have controlled a lot of the symptoms with Birth Control. It controls your estrogen and testosterone and keeps you from ovulating (limits pelvic pain).

However as I age BC gives me more and more headaches which is very uncomfortable. So I am having to look at other meds. My sugars are fine but the dr. has me on metformin to try to help control my testosterone. For the first couple of months that made my cycts worse, but things have evened out now. The metformin does help tremendously though with that low blood sugar feeling.

I would consult an endocrinologist as well as your obgyn.

 
Old 02-21-2004, 10:50 PM   #11
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Is anybody still keeping up with this thread? I have elevated DHEA but normal insulin and blood sugar and my doctor wants to put me on glucophage. He says I have PCOS. Can it be diagnosed just from elevated DHEA?

 
Old 02-22-2004, 08:30 AM   #12
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Quote:
Originally Posted by samicat
Is anybody still keeping up with this thread? I have elevated DHEA but normal insulin and blood sugar and my doctor wants to put me on glucophage. He says I have PCOS. Can it be diagnosed just from elevated DHEA?
If you read my post that is how I was DXed with PCOS,thought I did have other signs but the clincher was the elevated DHEA for me. My all my other blood work came back prefect,even my cholesterol was prefect. The reason I mention that is simply because I am overweight and my doc was shocked that it was so low.
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Old 02-22-2004, 03:30 PM   #13
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Quote:
Originally Posted by Blastoff9600
If you read my post that is how I was DXed with PCOS,thought I did have other signs but the clincher was the elevated DHEA for me. My all my other blood work came back prefect,even my cholesterol was prefect. The reason I mention that is simply because I am overweight and my doc was shocked that it was so low.
Yeah, I saw that but I was just concerned because he didn't check for cysts on my ovaries. He didn't do an ultrasound or anything. I had some excess hair, yeast infections and a little acne, and the elevated DHEA. I just thought he should check for the cysts or my body would show some other sign of insulin resistance in the blood work.

 
Old 02-22-2004, 09:15 PM   #14
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Re: PCOS diagnosis but no cysts on ovaries?!?!?!

Quote:
Originally Posted by samicat
Yeah, I saw that but I was just concerned because he didn't check for cysts on my ovaries. He didn't do an ultrasound or anything. I had some excess hair, yeast infections and a little acne, and the elevated DHEA. I just thought he should check for the cysts or my body would show some other sign of insulin resistance in the blood work.
I havent been checked for cysts either. Not everyone with PCOS will have cysts so some doctors wont checkfor them simply because not everyone gets that problem.
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Old 02-23-2004, 10:14 AM   #15
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namrata HB User
Re: PCOS diagnosis but no cysts on ovaries?!?!?!

hi everyone! i have PCOS. But i am not gaining weight, nor do i have facial hair or any other symptoms. Am taking the pill...would that help me regulate my periods after i stop taking them...

 
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