PCOS - 25yo severe hair thinning, sick of all of it
I was diagnosed with PCOS when I was 21 because of hair thinning. No cysts, did have irregular cycles, overweight - stacked it on from puberty, and a little excess body hair (arms mainly, but not too bad).
After several dermatologists who said ''hmm, it is thin isn't it....try Rogaine", my doc sent me to an Endocronologist as he suspected PCOS - he was right and I was put on Androcur, but after about a year I had to come off it as even though we were decreasing my dosage, my liver kept reacting to it.
My current meds are:
Aldactone/Spironolactone 100mg 2xday
Metformin 800 2xday
Iron/Folate supplement 2xday (and still can't get iron up after 18months)
B Vitamin mix
What else can I do? My hair is practically non-existant now - and I am 25 years old...my 80yr old grandmother has very thin hair, but mine is worse than hers!!! I have recently tried Nanogen/Toppik type coverups, but even they don't help that much because of the lack of hair left to cling to! I don't want to wear a wig, it would drive me crazy - hot/itchy and risk of coming off! I am practically a recluse now, go out to work or out with a family member with me and thats it - have gradually stopped keeping contact with friends (not planned, just happened), never had a boyfriend and not likely to, with not going anywhere alone, being bald and about 45kg overweight now.
The weight is, to my knowledge, the only thing left that I can do to try and help things - but I am also scared to loose too much weight for fear of loosing more hair! Viscious cycle. Although I admit I go through terrible eating patches, I feel like I am nearly always on a diet - have tried so many things but nothing seems to help long term and I have such a long way to go it is hard to maintain enthusiasm. I am also starting to be turned off by a lot of 'healthy' foods - meat for example (and I'm iron deficient!!!), if I can avoid it, I do - nothing to do with vegetarian etc, I just look at it and think yuck - same with a lot of things. I don't know what is going on.
Does anyone have any suggestions? I know this is just a big whine, but I am just sick of this - and my hair is shedding a lot at the moment (a lot is about 10 in the shower as opposed to none...u can notice a difference immediately it is that bad), soon I will have none left.
Thanks for reading this LONG post!