Negative Test Results...help Please! - Polycystic Ovary Syndrome (PCOS) Message Board

Ashley C · 06-08-2006, 07:58 PM

I have thought that I had PCOS for a long time. I have EVERY symptom, and have been having severe pains in my ovaries. I had my first external and internal ultra sound and they said everything was NORMAL. I was upset, because now I have no idea why I am experiencing the symptoms that have ruined my health for many years! Have any of you received a negative ultra sound test result and found out later that you had PCOS? What can I do to find out what's wrong and can I convince my doctor that PCOS may still be the diagnosis?

TLValiant · 06-09-2006, 09:26 AM

Kaelie brings up some very good points. Have they tried testing for Cushings? I know that is what my endocrinologist first tested for when I was diagnosed with PCOS a couple of years ago. She wanted to rule that out. If you are still having problems then please keep talking to your doctor so they can continue testing. If that doctor will not help you then go to another. Do not stop until you are satisfied.

Terry

ieshaj · 06-10-2006, 08:52 PM

I started my period at 12 years old. It has always been 7 - 14 days long. I have it every month, sometimes every two weeks. I have been on the pill since I was 15, that is 12 years now. I have told doctors for years that something is wrong but no one would listen. Then I went to this doc, got the internal and external exam done. I had cysts on my ovaries. I also have chronic pain in my stomach, and bleeding during sex. I got all the blood work done and everything came out negative. He still ruled that I had PCOS b/c of the cysts on my ovaries. Along with that, he told me that I probably won't be able to have children but not to worry b/c of all the fertility meds out there. Fast forward 2 years, I am going to a different doc. I got the exams done again and I have NO cysts. I recently had a biopsy done on my cervix and waiting for test results. GO to a different doctor until you can figure out what is wrong. Go to one that LISTENS to you and is not going to diagonse you with anything b/c some of the possibilities are there. We KNOW what is going on with our own bodies and know that something is wrong.

TLValiant · 06-12-2006, 03:29 PM

Quote:

Originally Posted by ieshaj

Go to one that LISTENS to you and is not going to diagonse you with anything b/c some of the possibilities are there. We KNOW what is going on with our own bodies and know that something is wrong.

This sums it up perfectly. This is what you need to do. We know when something is wrong with our body. Even if they cannot find something in the beginning, they need to dig deeper. Please keep trying and do not give up.

Terry

Leela_C · 06-13-2006, 07:17 AM

Hi Ashley. I have PCOS and I have never had cysts. I was diagnosed because my periods have never been regular and the ratio between two of my hormones was very high. So as far as I know, you do not have to have cysts in order to have PCOS. You may have to doctor shop until you can find one that will listen to you. Good luck!