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Polycystic Ovary Syndrome (PCOS) Message Board
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Old 07-20-2006, 12:55 PM   #1
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Unhappy Cramp or Pained every day!

I have recently been diagnosed with PCOS and possibly Endometriosis in December 2005 after several tests and the discovery of a cyst on my left ovary, which burst and that was extremely painful. I don't have regular periods and when I do they are very heavy and painful. It hurt to have intercourse before I knew I had the cyst and it still hurt now I no longer have the cyst. I get sharp shooting pain where my ovaries are and an almost constant pain (like menstrual cramps) every day now for the past 6 weeks. Has anyone else experienced this cramping or pain every day? I don't think my doctor believe I'm having these pains everyday.

Last edited by pepper1; 07-20-2006 at 12:56 PM.

 
Old 07-20-2006, 03:25 PM   #2
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fairy24 HB User
Re: Cramp or Pained every day!

i found out about my pcos at the same time as you after being rushed into hospital with a burst cyst i find now that i get pain when more cysts burst a very sharp shooting pain where my ovaries are but have non stop cramp in my lower abdomen so can sympathise with you ive even had to give up my last 2 jobs through constant pain my doctors have been very bad at treating me and im still searching for a good doctor my current doctor insists there are no medications that work on pcos no matter how many articles i show her i find pain relief medication makes me feel high and paracetamol and aspirin are useless i hope you find pain relief that suits you

 
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Old 07-21-2006, 09:02 AM   #3
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Re: Cramp or Pained every day!

Thanks Fairy24,

I'm so glad I am not the only one in pain every day. I haven't been to work in 5 weeks. My doc keeps trying to send me back to work and I keep telling her I need more time because I'm in pain. Doc made me feel it's all in my head. Maybe we can keep each other updated.

Last edited by pepper1; 07-21-2006 at 09:07 AM.

 
Old 07-21-2006, 03:01 PM   #4
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Re: Cramp or Pained every day!

yes my doc makes me feel as though im exaggerating ive just sent a letter to the complaints manager of my local health authority to complain about her as she has refused all the treatment i have asked for and was very rude to me , i have changed doctors although i cant get an appointment until the middle of august let me know if you find anything that works - in feb i had an argument with a specialist who insisted that pcos doesnt cause pain and i said that at least 5 times a day im doubled over the sofa in agony she said you must have irritable bowel go to your doctors but i know its my ovaries causing all the pain i do take a lot of herbal remedies which have helped my other symptoms a little but not the pain

 
Old 07-28-2006, 03:39 PM   #5
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Unhappy Re: Cramp or Pained every day!

i have alot of pain every day to.my consultant keeps saying he will not give me anything to help with the pain as i only have one cycst.the cycst keeps coming back but keeps getting bigger each time.he wont remove it as i want children still.all he keeps saying is lose weight and that really cant say that i have pcos as i only get one cycst each time.ive had large cycst 5times in just under 2years.i keep having to explain to my boss but they dont understand,they think im trying it on when im in alot of pain.what herbal things do you use.

 
Old 07-29-2006, 02:59 AM   #6
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Re: Cramp or Pained every day!

ok here goes i got this from a pcos website which was advising what herbal remedies to use a lot of the supplements are good if your trying to lose weight as they are vitamins and minerals that have been lost due to a restricted diet also i get a lot of menopausal type symptoms like hot flushes due to hormonal imbalance and they definately help my mood swings its quite a list
1: Evening primrose oil 11: garlic oil
2: Agnus castus 12:black cohosh
3:Gingko biloba 13:st johns wort
4: Vitamin c 14:zinc
5: Co enzyme q 10 15:calcium
6: Omega 3 fish oils 16:multi vitamins with iron
7: Chromium 17 : dong quai
8: vitamin b complex 18 : ginseng
9: saw palmetto 19: valerian at night to help me sleep
10: vitamin e

 
Old 07-29-2006, 12:19 PM   #7
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Re: Cramp or Pained every day!

so did you go to a hebalist to get the long list you take????
thanks for listening to me waffle on.i feel so upset most of the time talking to someone who understands is good.

 
Old 07-29-2006, 12:43 PM   #8
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fairy24 HB User
Re: Cramp or Pained every day!

i have a friend whos qualified she also treats me with reflexology shes 35 and was told when she was 21 she would never have children because she had pcos and endometriosis she ended up divorcing her husband because of all the stress she qualified as an aromatherapist and reflexologist first and treated herself to the treatments 3 years later she was with a new boyfriend now her husband and fell pregnant with twins only one survived she has since had to have a hysterectomy but its still a happy ending and gives me hope, i got the list off the internet and my friend advised me on what was good.

 
Old 08-03-2006, 11:40 AM   #9
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ILoveMyPuppy HB User
Re: Cramp or Pained every day!

I have not been diagnosed with PCOS....but I did have a ruptured ovarian cyst last Tuesday....according to CT scans, I have one on each ovary.

So, is it normal to feel the pain a week and a half later? It's not sharp and stabbing.....but rather cramp-ish.

 
Old 08-07-2006, 04:35 PM   #10
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Re: Cramp or Pained every day!

My Gyno kept using my weight as an issue also. She didn't want to give me time off from work, so I went back to my regular physician who also didn't feel it necessary to be off work. My next appointment I took my mother with me and she demanded they take me off of work until I can try to get the pain under control. I just got a CT scan done and waiting for those results to confirm my PCOS/Endemetriosis. One thing I have found out is, doctors like treat symptoms not the problem and you have to take control of your health and make doctors do necessary testing especially if you have family history.

I am currently not taking any herbs so I don't know what I can tell you to take. Right now I'm on Metphormin (1 month) to see how its going to work for me. Doc has tried birth control pills but that doesn't work, I would still wasn't cycling.

Yes, it is normal to still feel the pain a week later after a cyst burst. I had one burst in December and I was in the worst pain for 2 to 4 weeks after. Since then it seems as though my daily issues with cramping/pain has worsen.

Last edited by pepper1; 08-07-2006 at 04:44 PM.

 
Old 09-29-2006, 08:26 AM   #11
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Talking Re: Cramp or Pained every day!

You all have NO IDEA how happy I am to see that there are other people out there that are having the same problem as me. I have gone through sooo many dr.s and have been on pain killers for about a month now.. all my do9ctors do is ignore me.. The one i just saw the other day tol mne to my face that I was making it up. I was not thrilled, I too have had to quit jobs, ben fired.. I cant do anything aqnd I dont have a life. At least I am not the only one. If any of you hear anything plase let me know what it could be... I need my life back... Thyanks everyone!!!!! Miranda

 
Old 01-15-2007, 11:12 PM   #12
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Re: Cramp or Pained every day!

I'm not the only one!!!!!yay!!!err...It stinks that we're all in pain the majority of the time, but I'm so happy cuz I thought I was the only one. The pain just doesn't go away. It's mostly like cramping but gets real sharp sometimes too. I used to go to my doctor, but that doesn't get me anywhere anymore. My diagnosing doc just told me I had pcod and did nothing else. I switched doctors and he put me on metformin(glucophage), but it made me really sick and didnt help any. I complained enough that he gave me vicodine, but when I went back and told him I was still in pain, he pretty much said that pcod doesn't cause constant pain, didn't investigate further, and refused to give me anything for the pain. I have had to quit jobs as well due to the excruciating pain that I have almost every day. It is wearing on both my mental wellbeing and my marriage, as I am mostly moving at a very slow pace, and sex is almost out of the question. I just don't know what to do anymore. I can't take most herbal remedies due to another medical condition, so I just don't know what to do. If anyone has suggestions, or just wants to talk, I'm pretty much alone here. I can't afford medical help right now, so any advice or friendly chat would be very welcomed. Thanks and you're all in my prayers.

 
Old 02-01-2007, 12:28 PM   #13
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Unhappy Re: Cramp or Pained every day!

I too am in daily pain. I had a burst cyst in 3/06, had a lap surgery to look at the ovaries and she took out my appendix, and was told ovary's fine. Since then I have had several more cysts. I stay in pain. I am now looking into having a hystorectomy, I have no ovary function at all. I am 42 in full blown menapause and very tired of the pain. I have been crazy with thinking it is all in my mind. It's not severe enough to go to er and I hate to go to hospital to get sonogram every other week. But, I don't have PCOS. I just looked that up. I don't know what I have but, I don't want it anymore.

 
Old 03-16-2007, 03:48 AM   #14
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mumindistress HB User
Re: Cramp or Pained every day!

im getting the shooting pains now ... i have pcos was diagnosed with it 4 years ago.. i had a baby miracusly 12 weeks ago just got my first period and the shooting pains are worse!! got gyni next week.... i to had a cyst removed 10 years ago was huge apparently so that scares me i could have another big one..

 
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