Never ending period? - Polycystic Ovary Syndrome (PCOS) Message Board

marinewife12 · 04-29-2007, 10:24 AM

So, my dr. pre-diagnosed me with PCOS at my last appointment. I have an ultrasound scheduled for the 9th so until then, I guess I won't know for sure. But based on my symptoms, he said this is what it sounds like.

I have had my period now for 7 weeks. It's a real period. Some days it's spotting and then it's like it's gone...and then it comes back. I have had the most miserable 5 weeks of my life. The first two weren't terrible, just felt like an extra long regular period. And since I don't have symptoms with my period, it wasn't terrible, just annoying. But these last 5 weeks have honestly been some of the worst weeks of my life.

My Dr. gave me progesterone, and he said take it for 10 days and it should help clear out my system. Yesterday was my 10th day on it, and I'm still bleeding! And it's not light, it's a hardcore period. I called to ask but they have 48 hours to get back to me.

Anyone have any suggestions on this? I honestly can barely move at this point. I'm on iron suppliments, for obvious reasons. But I seriously can just barely move. Is this really a symptom of PCOS? Am I in for the longest years of my life? I want kids desperately...that's how we finally figured this out. I was on bcp for 6 years, and we decided to TTC back in June. If I hadn't stopped taking bcp, it owuld have taken a lot longer.

And this may be a super dumb question...but am I going to put myself in danger continually bleeding like this? I know my iron is low, hence the iron pills. But losing all of this blood for this long, should I be worried about other health problems?

Anything you can give me would be appreciated!

marinewife12 · 05-01-2007, 11:19 PM

Alright so I saw my Dr. today. I still have not stopped bleeding. He gave me a month of birth control pills. I'm supposed to take 2 pills a day until my bleeding stops, and then take one a day until the pack is out.

Is this odd? I haven't heard of this before. I'm willing to do ANYTHING to stop the bleeding. But we also really want a baby.

He mentioned after we get my ultrasound results back, we'll know more. But he said if it really is PCOS, we'll start metformin. How has this worked for you?

Kate

Elliesmom · 05-03-2007, 03:57 PM

I know there are things they can do to manipulate things - once you've gone long enough for them to say you have fertility problems.

But right now I'd worry about getting over this and THEN start talking to your Doctor about fertility issues.

If your husband is still in the military they have an excellent infertility program at Walter Reed for very little money (which is nice because Tricare pays for almost nothing), but you have to cover your own travel. I know - I am having babies 2 and 3 that were made in their lab there in a couple months.

Part of the protocol you spend a month on BC pills, a month shooting up with hormones to super ovulate (and have a period in there), and then they do the extraction. Some people can conceive just by using the medication - without the in vitro. I was not one of them, but I knew some who did. Good luck!

marinewife12 · 05-03-2007, 11:35 PM

Where is this Walter Reed place? I'm interested to hear more about this.

I've learned that you really have to do your own research with Tricare and be your own advocate. Most of the time Drs. won't help you with the extras, and you really have to know your stuff and push for what you want. If you're not one step ahead, then you're 5 steps behind with Tricare.

Elliesmom · 05-04-2007, 09:18 AM

Walter Reed Army Medical Center in Washington D.C.

The thing with Tricare is all they will tell you is that "we don't cover that." When the hidden secret is that if you travel to one of the big hospitals you can get the procedure for free performed by a military Doctor at a military hospital. I think Walter Reed is the best for the infertility stuff, but I believe the big hospitals in Pearl Harbor (Navy hospital) and in San Antonio (Air Force) also perform the procedures. It doesn't matter what branch your spouse is in - they serve their area not the specific service.

Walter Reed has alot of information about what they offer on their website if you look it up - the others might also.

I do my best to pass the word, because after I did it I found out about so many people who paid for it themselves or adopted because they couldn't afford to pay for it. All because no one told them about the program.