I'm just posting this to hopefully get some info out to pregnant women who NEED help beating this.
If you are having nausia and vomiting enough that you are becoming dehydrated, vomitting more than 15-20 times a day or are unable to eat/drink due to nausia you have HyperEmesis Gravidarium. I'm shocked how often this is undiagnosed or women are told "you'll get over it soon enough, just stick it out". This is NOT always true. Yes MS is worse durring the 6-12 weeks but some of us DO get it worse and do risk miscarraige, etc.
If you have HyperEmesis it is safe to take Benadryl. This will cut the acids in teh stumach and help reduce the nausia better than taking OTC drugs like Mylanta but if you need to small doses of Mylanta Does help. If you have been prescribed "Phenergan" and it does little more than put you to sleep, cause you stumach pain/abdominal cramps or diareah request your prescription be changed to "ZOFRAN". Zofran was designed for cancer patients on chemotherepy but is safe and very effective w/o side effects on pregnant women. Also, if you are going through IV Therepy Treatments be aware they will restrict you to Nothing by mouth durring the first 12-24 hours, then move you to a BRAT diet. This is based on a 1950s study when they said women w/ HyperEmesis Gravid are causing their own sickness as a result of wishing to miscarry... and the fact that it takes a bit of time for a digestive system to restart after being shut down. The best thing you can do is get released ASAP after you are feeling better from the IV and go to an All You Can Eat - this was the ONLY time i was able to keep any food/drink down. hyperemesis can be helped by small frequent high protein/B vitamin, low oil/spice/acid foods.
If you have experience or further advice feel free to post it!
SAHM, Co-Sleeping, FAM, DD born Mar3, 2000
I want to thank you! I'm 25 and with both of my daughters I was vomiting NON STOP! I ended up in the hospital and on IV at home but Nobody knew what it was! The wouldn't allow me to take anything,because it could harm the baby! Do you know if taking benydral helps pretty well? My husband and i would like to have one more baby, but I'm afraid to. Is that all we can do is take Benydral? If you learn anymore please let me know!
My daughter w/ whom I had Hyper-Emesis Gravidarium is now 2 yrs old and since getting the diagnosis I have been studying EVERYTHING I can find about it. (Please forgive me if I get the names of some of the drugs we tried incorrect, my medical records from the pregnancy were destroyed in a fire in January and I have not been able to get new copies yet.) I may start posting reviews of the reports, studies, books I find that mention it here if it isn't a problem? AND I HOPE others will find and share their tricks, experiences, etc too.
I was in one of the most recent studies. They were focusing on using Phenergan (in pill, suppository, IV, or shot form) as a treatment for HG. For some women that does work. For me it caused diareah, stumach cramps, worse nausia, and kept me asleep but didn't relieve any of the vomiting. When it didn't work they intended to admit me for the term of my pregnancy (I was at 6 months when this admitance was to take place) with a constant IV drip, Phenergan, and NPO (nothing by Mouth). I had been admitted to the hospital 3 times and to the ER for IVs & dehydration virtually every 3 days.
They tried giving me Reglan to make the food get digested faster - in hopes that it would get through me and not stay in my stumach churning up more acid... I never felt ANY difference from it posative or negative.
I was given Compazine? Or something like that that does have a higher risk than Phenergan to the baby but at this point I was risking miscarraige due to repeated dehydration. I took it a total of 3 days but became so dizzy I couldn't move w/o feeling like I was flying and I became so anxious I couldn't sit still or lay down. I also started to feel like I was suffocating and would hyperventalate if I got up and walked. <IMG SRC="http://www.healthboards.com/ubb/round.gif"> Obviously we stopped that drug pretty quick.
I was given prenatal vitamins and Iron tablets. They made me sicker so the Drs had me quit them. However, while in teh hospital they would give me Liquid Gel Vitamins and I was able to tollerate them... why I couldn't get the prescript for that vitamin who knows.
I was given Prescription strength antacids, liquid OTC antacids, and all sorts of advice on what causes worse acid. Tums were the most often given OTC Pill form and tasted really NASTY when upchucked... also come out in technicolor! Mylanta Liquid extra Strength was most tolerated when up'd in teh Cherry flavour. I also had Pepsid in 3 forms and strengths - mild help... best of the pill form though if you can keep it down for the full 20 minutes it takes for pills to completely disolve and be absorbed.
I have been told that Benadryl is FINE to take (even my DD has taken it most of whole life) and i was given it several times while in the Hospital. The best thing i got was called a "Upper GI Cocktail" and I LOVED it. It does have the nasty effect of making your tongue numb and you will usually vomit most of it up w/i 2-5 minutes BUT it works to COmpletely eradicate the pain in your stumach/throught from contenual vomiting. An Upper GI Cocktail consists of Benadryl, Lydocaine, and Mylanta. Since its darn near impossible to get a Dr to give you that (I was vomiting green foam and blood at the point they FINNALY offered this) you will probably have to make the mix yourself. It lasts about 6 hours.
I was given other drugs but most of them had so little effect I barely remember them.
On teh food issue... IVs were the ONLY time I was able to eat. I went a full 13 days in the beginning w/o keeping ANYTHING down (yes this should have killed me <IMG SRC="http://www.healthboards.com/ubb/eek.gif"> but since the Drs tested my Blood and Urine pretty regular they determined I was "fine"). What I did was kinda gross. I kept a bunch of baby food jars and nutrition shakes (my personal fav was Vanilla Ensure! but they make like 6 different flavours so you won't get bored) and Gatoraides next to my bed. I'd sip or take ONE bite every minute by the clock then if I felt sick I'd try to reswollow it... if not I had a wash basin in front of me at all times. After vomiting drinking water tasted sweet but it burned so I'd take one sip of water and swish it around in my mouth before spitting it out then a second sip was for swollowing. Every 3 days or so I'd report to teh Hospital for Urine and Blood tests and IV therepy. I usually got 2 bags real fast then one while they monitored me. As soon as the IVs were in I felt MUCH better and could go to a Ryan's SteakHouse All-You-Can-Eat and I would fill up. If you don't get released after an IV treatment you will be NPO for 24 hours, Clear Liquid diet, until you prove you can handle it, BRAT diet for another 24 hours (or more), then they let you TRY "normal" foods.... This is PUNNISHMENT based on a need to restart a stopped Parastalcis. I personally would MUCH prefer to have something ot vomit than my lungs, intestines, etc... so I typically snuck food into the hospital with my overnight bag.
OK for what I have found in my discussion w/ others who've been through it... If you have it happen once you will usually have a repeat performance with every pregnancy. That's the bad news. You probably will have a Girl - the worse it gets the more likely it is a female baby (Found that out from a Pharmasist I dated. He learned that in his Pharm Classes.) SO hopefully you'll have a Boy next time and get a milder case? If you take Vitamin B suppliments with your Prenatals BEFORE you get PG you can help stave off some of the sickness. Also, a HIGH protein diet starting about 6 months in advance and every few hours while pg will really do wonders. Some of the most often reported helpfull foods include Chicken and Peanut Butter? Anything with very mild flavour and lots of protein. Oddly Olive Oil seems to be better tolerated although oily foods are generally triggers for nausia? I found Pear, Papaya, Mango, and Guava juices easier to tolerate than teh usual ones. I will warn you against drinking the high quantity of water everyone pushes based on what I was told while PG. I kept telling my Drs that I couldn't keep water down and finnaly they told me that water isn't teh best thing you can drink while nausiated because it does little more than temporarily dilute the acid, when you swollow your body gets a signal to produce more acid, since the body redily absorbes H2O you are stuck with increased acid production and nothing for it to work on... Subsequently MORE nausia! SO it's better to drink nutrition shakes (diluted if it's easier to swollow - that's what I did) or low acid juices or something like Gatoraide that helps keep electrolytes in ballance and retain fluids.
Never let your stumach get empty or full. Before you do ANYTHING else be sure to put something in your stumach. I know that's hard since everything we smell or taste makes us retch but the trick is to get something in BEFORE you get up or roll over.
I'm finding reports that one of the best things we can do is prepare our bodies at least 6 months in advance before we TTC anymore children.
Will post more later but I am out of time tonight! Best Wishes!
BTW my DD is PERFECTLY healthy. She does have a vision impairment (unrelated to HyperEmesis or it's treatments as far as we are able to determine) and she has allergies (inherited from both of us). In fact other than those 2 things she is concidered advanced, was WAY above teh charts until she was a full yr old, and has been exceptionally healthy.
Great! Thank you thisbattymom! I wrote all that down, and I'm going to try and find anything out that I can! How could a Dr. not know what this was? Can I ask you a question? Would you have another one? Would you go through the pain and the sickness again? My mom and Grandma are afraid I'll kill myself trying again, but it means alot to my husband to try one more time for a boy! If it was you, what would you do?
It's best to be honest with yourself as to where your limitations are at this time. Durring the first couple months after my DD was born I was so thankfull to have my body back... err really just to have the ability to EAT again. BUT I was almost hopefull I'd get pg right away too b/c I really missed the feeling of having a baby in my belly, kicking and all. This wasn't an option then so we're lucky it didn't happen.
DH and I had not planned to have any children and were NOT prepared to get pg yet - we had gotten pg while using several birth control meathods b/c we KNEW we weren't prepared to be parents yet. The point is, after DD was born I had a lot of anger and dissapointment and went through a bit of birth anger/depression b/c I couldn't figure out WHY... I couldn't have a "glowing" pregnancy, the birth was so "medical" instead of spiritual, that I wouldn't get to do it the way I believe or am SURE my body could have had I had the knowledge I do now (b/c at that time we were not planning to EVER try that again - to much misery). That's what has really made the difference. Around 10 months after DD was born DH said IF I was really serious about wanting ot try to have the pregnancy/birth I wanted/believed in then when we can afford it and have a stable home we'll try again. That gives me plenty of time to plan, find a Dr who knows about HyperEmesis and supports natural birth, study what I can to avoid hte bad parts of HyperEmesis, etc... and I get to thouroughly spoil our little girl until she goes to school and won't need me 24/7 like she does now. The other side of this coin is it leaves both the posability of NOT doing it again and the possability of doing it when we are REALLY able to manage it.
If your Dh is serious about wanting another; find out WHY. Talk about what it is that scares you about being pg again. Talk about what you need for it to be enjoyable/comfortable for you next time. Ask him if he's OK with maybe giving you a bit of time before you begin TTC again.
About Drs not knowing... it's hard to see Drs as what they really are.... JUST educated HUMANs. They are going by what is in the books they read and what they have experienced in their PRACTICE. What you and I went through is not very common to the extent we have had it. There really isn't much information out there for Drs to go on. I learned this when I had a Life Threatening Allergic reaction called "Stephen Johnson Syndrome" a few yrs before having DD. So few people had seen/heard of it (or lived through it) when I was being treated that they had ME doing my own research so they would know what to do and the Drs took pictures of my reaction so other people in the hospital could know what it looked like.
In answer; YES I want to try again... in a few yrs... after I feel more in control again, I'm around other people I feel are supportive (I did it alone last time), and I am physically ready to face such a grueling 9 months again. I'm not afraid of the pain, vomiting, discomforts, etc... I'm afraid I won't be given the opertunity to try for what I believe COULD have been beautifull.
Your reletives are probably like mine. They just don't want you to suffer so much. If you went through the PPD/birth anger, isolation, etc that I did after your baby was born they are probably legitimatly worried about your emotional health too. The big point I've learned about that is I have to relax about the things I can't control, prepare myself as much as possible for anything that might happen, and I have been working on becoming more forward and direct about what I need/want so I am not walked all over. Educating myself has been the best thing I've done.
I posted this a yr ago as a eply to a question about how to manage morninfg sickness... thought it might be helpfull on this thread too.
I suffered SEVERE Morning sickness (called "Hyper-Emesis Gravidarium") and it started at 6wks but didn't end till 3 wks postpartum. I was hospitalized every 3 days for dehydration. They had me on a study (until I got knocked of it - I'll tell why later) I took metacloprimide, reglan, pepsid, and phenergan (suppository, shot, and pill forms) among other drugs. I was put on clear liquid and BRAT diets, IV therepy, seabands, vitamin/mineral suppliments and restrictions, and special diet plans. I was unable to hold down even water and frequently vomited blood and green bile foam. (Sorry so detailed) I was so sick that I couldn't turn over because I could smell a difference in teh air on one side of my bed from the other. I was so cold I lived in 2 layers and under blankets at all times... with the heat on in a full sun trailor in Mississippi. I lost 20 lbs by the 6th month and I was only 145 to begin with. (some women I've talked with since have lost more) This sounds gross but... I was unable to shower or brush my teeth because both things would result in such intense vomiting I would almost pass out. When i felt strong enough to stand or leave my bed I was only able to be up for about 30 minutes at a time then I would have to sleep or lay down again.
This is what works...
*request a "ZOFRAN" prescription (this is the ONLY drug that had any posative effect and didn't put me to sleep or worse). This drug was designed for treating nausia and vomiting in cancer patients but has been approved for treatment in pregnancy. Unfortunatly it is VERY expencive.
*According to a study high protein diets can help reduce the nausia. Also taking Vitamin B and Folic acid. Begining a diet high in these before TTC can help reduce the intensity.
*If you get IV therepy demand to be released as soon as the IV is done and you stop vomiting... they WILL NOT feed you ANYTHING in the hospital when being treated for Hyper_emesis (thanks to a 1950s standard medical procedure) and go straight to an ALL You can eat Buffet... this may be the ONLY time you can eat so eat well.
*DO not drink "water" it actually increases Acid... instead drink watered down fruit juices (pear and apple are not very acidic so are better tollerated) the colder the better. Also try nutrition shakes like "ensure" (if you can drink them they at least have more of what you need - Nursing homes keep people alive exclusively on this stuff). Also handy can be frozen juice crushed/chipped. If you do drink water take it in SIPS; about 1 sip a minute because too much too fast will trigger vomiting.
*Keep easily regurgitated, oderless, non-refrigerated foods w/i reach - I recomend low salt "Wheat Thins".
*Ginger works for SOME people... others are triggered by the scent.
*avoid motion and loud noises... it can cause you to get tense and that results in nausia
*put extra pillows on your bed and raise the head - part of what causes nausia is the fact that your body suddenly has extra "relaxin" running through it (you can tell because you probably have wonderfull stretch marks showing up - that is part of what causes them) unfortunatly this wonderfull stuff not only helps relax the muscles so your uterus can stretch it also relaxes the esopaageal muscles making stumach acid more likely to irritate your esophagus.
*Keep warm (but not HOT) if your dehydrating you'll probably get cold faster and unfortunatly when you shiver it can make you chuck.
*avoid preservatives, acids, oils, and watch for foods/ingrediants that may be "allergenic" - not sure if this is a link but i have noticed that the foods that triggered me have caused my DD rashes since she was born. If any family member has a food allergy/sencetivity it is safer to simply avoid that food. THere is a lot of theory about your body rejecting foods that are "harmfull" to the unborn baby.
Anyway, these things are what helped me live through it. The bad news... The medical profession still regaurds Hyper-Emesis to be a "mental" disorder instead of a treatable discomfort of pregnancy. (I actually had a DR offer to abort my baby because "the only reason you are sick is you don't really want this baby") The maternal nursing guides still state that Hyper-Emesis patients need to be protected from harming themselves, or being harmed by family members; are often depressive; and that treatment of excessive nausia and vomiting is still to put the patient on NPO (Nothing by Mouth). Talk about helpfull! They also claim that people who have had an eating disorder (esp Anorexia or Bulemia) are more prone to it.
There are currently a few studies running on Hyper_emesis but I will heavily warn against just going with what they recomend ONLY. They are more interested in the study and maintaining it's integrety than actually treating you - as proven by the fact my study wasn't going to even mention the availability of Zofran despite that the dehydration nearly caused me to miscarry 3 times and they were going to admit me for IV only treatment for the term of my pregnancy at only 5 months.
Further bad news... they tell me that once you've suffered Hyper_emesis Gravidarium once you will most likely suffer it EVERY time. I'm currently trying to learn everything I can to avoid or at least lessen it next go round before I TTC #2. If there really isn't anything I can do we may not ever have a #2 - we can't afford as much hospitalization as I had last time again.
The problems you had were so similiar to mine! I lost 30 pounds in the first trimester. With my first daughter the doctor thought I was just over reacting and that I just couldn't handle morning sickness! He did nothing! Now when it came to my second daughter I switched doctors, to a female doctor, and she was the one who really tried to figure out what was going on with me. She never figured it out. She had me in the hospital and like you she put me on iv and put me on iron pills. I was sicker on the iron pills. But as far as anything to settle the stomach like mylanta, she never tried it. but like you, once they took me off the iv, I could eat! Do you think it would make any difference on how heavy someone is? I have 85 pounds to lose, and I figured I would try and wait until I lost it to see if that makes a difference! It seems like what weight I did lose in the beginning would just come back and sometimes double. I'm 85 pounds heavier since having my kids. Also what about Hyperthyroidism? Would that make it worse? What do you think?
Weight has nothing to do with whether or not you'll get HG or how bad you'll have it. The good side to being heavier is that at least you have spare weight that your body can use if you can't eat. On the bad side, According to my Psychology 101 class, starving your body damages the glnd in your brain that regulates weight. It causes your body to say "well, I'll store a bit more of this JUST IN CASE" so it's likely that if you're dieting (by cutting back on meals rather than adding physical exertion) or having suffered through 9(+) months of starvation you'll get a few extra pounds that feel imposible to lose. If it makes you feel any better... posture has more to do with if extra weight looks good or not and in MANY cultures it is Far more desirable! In fact, I belly Dance and it is better to have the extra inches than to be thin. <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
There are theories that women who have had Anorexia or other eating disorders (or compulsive/obsessive personalities) are more likely to have HG than the average woman b/c part of Eating disorders involves needing control over the body and a distorted body image. I'm assuming this is because women with eating disorders like Anorexia see themselves as "fat" and the roundness of pregnancy may seem like it will never go away. I don't have an eating disorder but I do have a hard time KEEPING weight on my bones so I eat twice what my Dear Husband does - the blessings of a High Metabolism. LOL!
Thyroid is something I have not looked into but have recently concidered. However I do know a couple ladies who have had their thyroids removed due to tumors and they have not had morning sickness in their pregnancies.
The assumed Physical cause of HG is an excessive level of hormones (specifically HCG = part of why it is less likely a pg w/ morning sickness will fail). I was told that in some women our bodys are reacting unfavorably to HCG, more like an illness rather than a product of our bodies... causing excessive M/S.
On the "After IV being famished AND able to eat"... I am guessing it has to do with hte fact that when dehydrated your body has to digest and process food and it just doesn't have what it needs to manage that. I'd like to see this practice changed. At no other time is a person who is dehydrated forced to go w/o fluids... so why when we are at our greatest need of fluids are we to refrain? Just doesn't make sence.
BTW if you've been searching for HyperEmesis Gravidarium you can also find it called "pernicious Vomiting" and sometimes it is mentioned in articles about morning Sickness as a form of morning sickness requiring "medical attn". Just thought that might help you find more info.
Also wanted to post this so you can read one of the Screwed up studies that have been done and are the basis for how we get treated durring HG.
The Book is called "Maternal Emotions" by Niles Newton PhD Research Assoc in Obstetrics School of Medicine, University of Pennsylvania, Second publishing in 1963
Basically (If you can't find this study) it states this of women who have excessive morning sickness:
67% have a severe dependance on their mothers (in my case at least I had to have Mom and Dh's help b/c I was physicaly unable to maintain awareness long enough between vomiting episodes and sleep to take control or care of myself)
100% have an aversion to sex or are "Frigid" (in other words are incapable of experiencing pleasure from sex).... UMMMM WHAT!?!?!?!? I can vouch for the inaccuracy of this as can most of the women I know who've been through HG. Yikes!
At least he was right in that he finnaly said that "concious aversion to Pregnancy [rejection of baby] is not related to the level of nausia and vomiting".
However he kinda loses it again with stating that negative statements about pregancy and body functions are exclusive to women who have difficulties with morning sickness.... UMMMM why would someone who has a "glowing" pregnancy be complaining of being miserable???
I can't explain this next part though. He says it is a illness of pregnancy limited to English speaking people because he couldn't find a word for it in some native languages.
I also read that he thinks a factor in our getting sick is our desire to be men.... AGAIN WHAT!?!?!?!??! I'm quite happy to be a Woman, thank you!
His study made a stupid coment that financial factors had an influence on how welcome the pregnancy was. Those with higher affluence were more welcoming of the baby and hte pregnancy than those of more meager means. DUH!
Anyway, this is a PRIME example of the CRAP we are getting treated so poorly because of.
<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR><B> Also what about Hyperthyroidism? Would that make it worse? What do you think? </B><HR></BLOCKQUOTE>
I'm so shocked that you asked this question just before I found out I have a Thyroid disorder (on march 18). Did you have Thyroid disorder before your pregnancies? I'm glad you brought up the thyroid. I am now looking into how it affects pregnancy, etc and I have found out that it may cause infertility. No one I've asked yet says it makes any difference with HG though - the answers have been "I don't know". Please, if anyone gives you any info on this I'd LOVE to hear about it.
I found out during my pregnancy that I had hyperthyroidism. At this time the doctors still don't know what I had or why I was so sick! So yes they are blaming all of the sickness on the Thyroid. I've had company so have had no chance to find any info! I'll keep looking, keep me updated on what you find out!
If this helps at all. My thyroid levels are all w/i normal, I just have a small Nodule on my left thyroid (why I've been a bit too busy to keep posting much here). I have been doing a bit of research on thyroids and their relation to Pregnancy - Seems the biggest affect is that it can cause Infertility, irregular cycles, longer cycles, and while pregnant with Thyroid disorders you need to up the meds around the second trimester. Also that we need to be carefull how we treat our thyroid to keep from damaging the fetus's thyroid since our meds go straight to their thyroid and can cause thyroid disorders in tehm from birth. I was UNHAPPY to hear that but it sems as long as we are closely monitored in pregnancy the risks are minimal. NO ONE has yet to mention morning sickness in relation to thyroid in any of my searchs, threads, or reading so I am still thinking it is TOTALLY UNRELATED> However, if your Drs are swearing it then ask them to show you the research they are basing their statements on so you can share it, Please. <IMG SRC="http://www.healthboards.com/ubb/smile.gif"> I'm going to post the question in the Midwife boards now to see if maybe more "earthy" doc types can have some insight! <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
All this information is great for people who suffer from this horrible condition. Luckily, I don't and now I'm feeling a bit guilty for all the complaining I do about the heartburn I get. At least I am not, and never did, throw up. I just have one question though. What difference does it make whether you are carrying a boy or a girl? Does anyone know whether there are actual chemical differences that our bodies detect? Personally, I always thought that the sicker you were the more likely you would have a girl is a total wivestale. But maybe there is some scientific grounds for this statement. I would love to hear them if anyone knows.
Another OTC medicine that my midwife says is fine to use is Unisom. They actually "prescribe" it for morning sickness. I take it for sleep, but I have noticed a difference in nausea as well. I doubt it will help those of you with extreme sickness, but maybe it's worth a try.
I've never heard of trying Unisome... sounds like it would make sence. When I was asleep I wasn't getting sick and that was about the best part of the months on Phenergan. Didn't know Unisome was safe for PG... thanks for the suggestion.<p>[This message has been edited by thisbattymom (edited 03-27-2002).]