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Old 01-31-2009, 06:41 AM   #1
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Turp Recovery with Prostatitis

Hoping a member might be able to comment on this please.

I had a TURP 11 weeks ago, after BPH diagnosed, with a probability it was causing chronic prostatitis which I had suffered from off and on for a year or so.

Initial recovery was fine, and as suggested on this forum, I ignored the Urologists view that recovery would only take about 6 weeks, and reckoned on somewhat longer.

After 11 weeks, I'm still in quite a lot of discomfort, sore in the prostate/lower abdominal area particularly in bed at night, or getting into or out of the car or chairs at home. It's very much like the prostatitis I had originally, but not 24/7 as that had been.

I still don't feel sufficiently recovered to return to work and a 15 minute walk
gives me soreness problems for the next 48 hours or so.

Has anyone else experienced something similar, or is this all part of the normal recovery cycle?

 
Old 01-31-2009, 06:47 PM   #2
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Re: Turp Recovery with Prostatitis

Welcome to the club - I too had the TURP and have chronic prostatitis and a touch of IC on top of that. It seems that the TURP makes the prostate inflammation even worse for a long period of time. You are on the right thinking pattern - it will take a lot longer to get over the surgery. If you followed any of my posts, you will see that 4 months is the normal period to recover from the TURP and if you have other issues like prostatitis and IC, even longer. I would follow an IC diet and keep things bland and avoid acidic foods. Look up IC diet and follow the guidelines for a while and see if there is any improvement. Most doctors only know what they are taught or told by their patients. I diagnosed most of my problems and told my urologist what I thought.
If you got prostatitis recently you will feel better quite fast, but if you had inflammation for a long period of time, it only makes you raw for a longer period of time. Valium helps big time with prostatitis - it relaxes the pelvic muscles and eases the pressure.
The discomfort and not being able to sit is normal. Purchase a donut for driving and sitting - it really helps and doing anything physical hurts, too. This is all normal and takes a while to subside. Try not to do anything too strenuous until you feel up to it.
How is your frequency and do you have any bladder issues?

Lenny

 
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Old 02-01-2009, 02:56 AM   #3
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Re: Turp Recovery with Prostatitis

Thanks for your response Lenny and all of what you say makes good sense. I guess this may be a long haul.

I will watch my diet as you suggest, and maybe consider the Valium idea. Not sure what you mean by 'IC', could you explain please.

Frequency is generally ok (get up only once a night now), except when the prostatitis is really biting away at me, when I might be up 3-4 times a night.

I agree that my Doctor and Urologist seem to have a limited knowledge, but they readily admit there's just not enough known about the subject.

The idea that a TURP would cure the prostatitis seems optimistic now to me. Is that how you see it?

Peter.

Last edited by peteruk; 02-01-2009 at 02:59 AM. Reason: Omission

 
Old 02-01-2009, 12:25 PM   #4
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Re: Turp Recovery with Prostatitis

Peter,

IC is interstitial Cystitis - inflammation of the bladder. There are big similarities between IC, prostatitis and irritable bowl. I don't think you have any bladder issues if you don't have frequency and bladder pain. Prostatitis is a hard thing to deal with and no clear cut treatment. The best we can do is keep the pelvic muscles loose and not do anything to flair, which is pretty much everything. My urologist said he just doesn't know what to do with the prostatitis and wanted me to go to a prostatitis specialist, but that would mean travel and a big expense so I chose not to do it. I wish there was one good source for treatment, not those overnight cures that cost a fortune and do nothing. Good luck and hang in there! Keep posting what happens.

Lenny

 
Old 03-09-2009, 08:51 AM   #5
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Re: Turp Recovery with Prostatitis

Just an update really, 5 weeks on from my last post.

Progress, if any, is frustratingly slow. Any physical activity (walking, driving etc) starts off the soreness in and around the prostate which is nasty and then takes a couple of days to reduce again.

It's now 4 months since the TURP, and I have today tried returning to work for half-days, (office based) but that causes lots of discomfort and soreness so I'm uncertain if I can keep it up. This is a really disappointing after all this time, but seems consistent with what others say when the TURP is undertaken on an already inflamed prostate.

Any other comments or ideas would be much appreciated.

Peter.

 
Old 03-12-2009, 06:08 PM   #6
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Re: TURP Recovery with Prostatitis

Peter,

All this is really familiar - I'm almost two years from my TURP and I still have discomfort after doing anything strenuous. I also have IC and chronic Prostatitis so this is probably normal for my condition. You might have chronic prostatitis, too. Did you get a Pathology Report from the TURP? Read it very carefully and see if there is any mention of inflammation in the samples. Sometimes you have to help diagnose these things. It sounds like you have chronic prostatitis, too. If you don't have bladder issues there probably isn't anything there to be concerned about. Try relaxing and not tensing up the stomach and pelvic muscles and see if that doesn't help. If it is prostatitis, Valium or any other drug to help relax the pelvic muscles will help. Like I said, everything you mentioned is what I feel.

Lenny

 
Old 03-14-2009, 10:43 AM   #7
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Re: TURP Recovery with Prostatitis

Thanks Lenny.

Yes, as you suggested my Path report actually said 'inflamation due to chronic prostatitis'.

Very disappointed to hear you've suffered for 2 years post-Turp, you must be really fed up with it all by now.

My urologist reckons I need to just stick with it until the soreness subsides - it is a little better than 2 or 3 months back - but it's the inability to do anything physical like having a good long walk which is the depressing bit about this.

It's amazing what we take for granted!

Peter

 
Old 03-15-2009, 08:47 AM   #8
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Re: Turp Recovery with Prostatitis

Peter

I had a suspicion that you had chronic Prostatitis. If you don't have bladder issues to go along with this, you will show improvement pretty quick. I couldn't cut the grass without suffering afterwords, but now I can do both the front and back and not have that inflammation pain. Another thing I noticed is that if I do any digging or work below the waist my symptoms are are a lot worse so I limit that type of work and do a little at a time. My main problem is the IC - that seems to be the driving force for my discomfort. Like I said, if your bladder is not inflamed, you will progress pretty quick. Check out diet and prostatitis and see if there is anything you are eating that is keeping your prostate inflamed. This is just a thought! It seems that if you let the prostatitis go too long before getting treatment, you suffer bladder problems due to the urine flow restriction. At that point, it takes years to get the bladder under control.

Lenny

 
Old 06-17-2009, 03:09 PM   #9
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Re: TURP Recovery with Prostatitis

I just had a TURP done yesterday and they found a bunch of calcium, stones and pus pockets.I am in terrible pain. I heard the only way to end this nightmare is to get the whole prostate removed. There is a doctor in Florida who does this with success.
Steve

 
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Old 06-18-2009, 07:38 AM   #10
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LENNYI HB UserLENNYI HB User
Re: Turp Recovery with Prostatitis

Lebron,

I had a TURP done 2 years ago - also have chronic Prostatitis and lots more. My doctor said flat out no to removing the prostate unless there is cancer present. I also had cancer found on the path report, but didn't show on the prostate biopsy performed after 3 months. He said the side effects are too much. Of course this is your decision, but you have a 4 month recovery ahead of you and way too soon to think about more surgery. Wait for the path report to come back and then discuss this with your doctor. Usually the TURP will help the Prostatitis, but the healing process is rather long. It takes forever for the area to heal and get back to some kind of numbness. Take the pain medication and try to relax for at least the initial 6 - 12 week healing process. You will be more able to make better decisions at that time.
I passed stones for a few weeks after my prostate biopsy and my doctor just shrugged off the stone issue - seems to be normal in anyone over 55. I would be more concerned with the path report first and then start thinking about these issues!

Lenny

 
Old 06-18-2009, 11:09 AM   #11
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Re: Turp Recovery with Prostatitis

Thanks,

There is Dr. Krongrad who is doing a study on removing the prostate for chronic Prostatitis and they are pain free right away.(Krongard Institute in Florida)
The problem with a TURP is they may have left stones in the prostate and the pain and infections never go away.
What kind of pain medicine works?.I am taking Hydrocodone and the pain is still severe.
How long did you keep your foley in? How long does the pain last after surgery?
This consumes your life.
Thanks for the info.

 
Old 06-20-2009, 04:43 AM   #12
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Re: Turp Recovery with Prostatitis

Lebron,

The Foley usually stays in for 3 to 4 days. That helps the area heal or the bleeding to stop. You will have lots of discomfort sitting for a while - I still use a donut when sitting and it helps big time. You should give it some time to heal and the swelling to go down before making any judgments. I just don't know if it is better to have the prostate removed. It is best to get some feedback from those who had their prostates removed and see what they have to say. You still have a long way to go on this recovery so be patient.

Lenny

 
Old 06-21-2009, 10:02 PM   #13
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Re: Turp Recovery with Prostatitis

Thanks Lenny,

Hope ou do not mind all the questions.
Did you have bleeding and for how long.
Every patient I talked to from Dr.krongard said when they removed the prostate they were pain free after one day and feel they have their life back.
Dr. Krongard is supposed to be one of the best at removing prostates because this is the only surgery he does now.
If you look at the Prostatitis Foundation web site they have a link to his study and patients.
I was told that the Turp may not get all the stones and infected area and the symptoms get worse. I have been in constant pain since the surgery.
Since I am in a wheelchair I am always sitting.
How long did you have sever pain after the surgery and what type of pain medicine did you take and did it work?
Thanks again.


Quote:
Originally Posted by LENNYI View Post
Lebron,

The Foley usually stays in for 3 to 4 days. That helps the area heal or the bleeding to stop. You will have lots of discomfort sitting for a while - I still use a donut when sitting and it helps big time. You should give it some time to heal and the swelling to go down before making any judgments. I just don't know if it is better to have the prostate removed. It is best to get some feedback from those who had their prostates removed and see what they have to say. You still have a long way to go on this recovery so be patient.

Lenny

 
Old 06-23-2009, 06:28 PM   #14
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Re: Turp Recovery with Prostatitis

Steve,

I did not have any bleeding after the Foley was removed, but did have bleeding while the Foley was in. That is normal and that is the reason they leave it in for 3 or 4 days - it helps heal the area they removed the tissue from. They do not remove any infected material - that is in the sacks. What it does do is allow more normal urine flow and stops the urine back flow which causes the stones to form. You have a big problem being in a wheel chair. Order a donut ASAP - it will take the pressure off the prostate area. I think that will help you big time. You are right about having the prostate removed is the only way to get rid of the stones and infected area. Sometimes a good dose of antibacterial medication will do the trick, but it doesn't last forever. You seem eager to have it removed. You have to do what makes you happy - everyone I know who had it re moved needs to wear depends. It is a personal decision - gather all your facts and weigh the good and bad points and go from there. I think the doctor will not perform the surgery unless you need it. It is still too soon to think about another procedure so heal a little and then make your decision. It is not an easy recovery and does take a lot longer than they will tell you. One of my friends just had his removed and said he felt good after they removed the catheter. They leave it in for about a week with the prostate removal - lots of healing needs to happen before they remove the catheter.

Lenny

 
Old 10-15-2009, 08:28 PM   #15
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Re: Turp Recovery with Prostatitis

I have done more research to the point of nausea. The bottom line is that TURPS are a disaster and the only cure for Chronic prostatitis is full removal of the prostate.Only the patients that have done this are pain free.
I made a mistake and had a TURP done and the pain and infections became worse.
Nine days ago I had my prostate removed and other than some discomfort from the surgery I have never felt better in years. Right away the debilitating pain was gone.
People that are out there trying every treatment in vain for years need to decide if they want their life back and the only answer is removal.The TURP made it more dificult for the surgeon to remove the prostate.
There are approx seven to ten patients who have had their prostate removed and have no more pain.
By definition alone if you have no prostate you cannot get prostatitis.
I need to figure out what to do with all of my antibiotic and pain meds.

 
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