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Old 01-10-2012, 04:15 PM   #1
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Location: speedway, indiana, united states
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pennie g HB User
psa levels

my husband has had a psa level of 200 - 230 for the last couple of years. The Dr. has done testing but keeps saying he's ok! What is our next step? I feel he should be more aggressive about this with Dr.. We are both worried, any suggestions?
Thank You,
Pennie

 
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Old 02-29-2012, 09:38 AM   #2
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jackie607 HB Userjackie607 HB User
Re: psa levels

I am a newbie so probably not as knowlegible as most but I would ask for something more aggressive to find out why PSA is 200. We just went through this. My husband's PSA was going up on a regular basis for 6 years. He had yearly biopsies that were negative and told just to keep checking PSA yearly. Finally PSA was over 50 and the doctor was just going to do his yearly biopsy. My husband asked him, "Can't you do something else?" He said he'd read about MRI's but never had one done. Long story short was that the MRI found a nodule in the anterior part of the prostate which is cancerous. The doctor claimed he didn't usually biopsy that part "because it was too painful." Now the doctor says with a PSA that high there is no point to trying to cure it as there is a 95% chance that it has metastacized. We are furious. He should have done the MRI sooner and/or another type of biopsy (I've heard there are other types where you get anesthesia). In any case my husband's cancer would have probably been curable 5 years ago. Now he has to undergo chemical castration in order to slow it down and it can't be cured.

Although, we do have an appointment for an oncologist tomorrow and are hoping for another option. We are also sending the biopsy slides off to Johns Hopkins.

Good luck to you. I just wrote all this to tell you please don't ignore a PSA of that level. See another doctor and get a second opinion and even a third if need be.

 
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Old 06-28-2012, 12:51 AM   #3
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Sam460 HB User
Re: psa levels

How regrettable, but alas! Not unusual. There is a great of information on the Internet, on this and almost every other medical compliant. It pays to be constantly researching ANY of your medial concerns, hence consulting medical staff armed with a background knowledge.
There you will find plenty of reports on PSA, the tests are not the 'be all' and careful
medics, appear to just use the PSA figures as part of the diagnostic analysis. Some advise caution on too great a stuff being used on PSA figures, also doing biopsies too.
Thus one needs to seek specialist advice early, even with your background homework too.
Not being a medic myself, I cannot claim, that had this chaps prostate cancer been treated quickly, he current health problems would have disappeared. BUT! It is well known the quicker cancer is treated, the easier and more successful is the outcome.
Also having the extra knowledge, that obviously results in querying the health challenges involved, gives the patient PLUS family/carers inbuilt additional abilities to beat the beast. That's the policy my wife & I adopted when faced with her Ovarian Cancer eight
years ago. Yes! We are both well, but the battle was long & fought with a totally dedicated team - patient, husband, doctor, specialists, support care nurse, even secretarial office staff. One other factor was used - DETERMINATION not to be beaten.
24 hours 7 days a week. This writer feels, ANY of the above, if they are a weak link,
could have reduced our ability to win through. Presumably our God helped too.

 
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