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Old 06-08-2004, 07:17 PM   #1
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melly88888 HB User
women with pectus excavatum (caved in chest)

Hi,
I was writing to see if there are any women with Pectus excavatum (caved in chest). I am a 27 year old woman with moderate to severe pectus excavatum. I do have a heart murmur b/c of it. It has caused my breasts to be somewhat even to...about a cup size difference...but that also might have been from mild scoliosis as well. I think I may be eligible for the pectus surgery b/c it is moderate to severe...causing a heart murmur and many respiratory infections. Goodness I sound like a mess. I've thought about getting the nuss procedure to correct the PE but am scared. I don't know if it is worth it or not. I'm an otherwise healthy attractive female...I just get self conscious regarding my chest region due to the uneven breasts and pectus. I've also considered gettting plastic surgery to fix the uneven breasts and therefore hiding the pectus a little more. Is there anyone that has dealt with this before? If so what did you do about it?...were you happy with the results? I'd truly appreciate any feedback!!! Thank you so much!

 
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Old 07-21-2004, 12:20 PM   #2
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tbomp HB User
Re: women with pectus excavatum (caved in chest)

I have a mild pectus. I didn't even know I had it til I got a chest xray and it was in the radiologist report. So much for my "cleavage". So I'm not in the running for surgery, but is your heart murmur caused by it? Just wondering cause I also have mitral valve prolapse which is associated with having a pectus. My daughter who is seven also has a slight pectus.

 
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Old 08-21-2004, 09:25 AM   #3
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yeckjo HB User
Re: women with pectus excavatum (caved in chest)

I'm a 25 y/o female with PE. I didn't know that what I had even had a name until a gynocologist exam when I was about 18. The Dr. never told me how severe mine is. I've been trying to compare mine to the pics online but they are pics of males. I do however have asthma, decreased stamina with excercise and mytral valve prolapse. I thought my problems during excercise were just stemming from being out of shape, however after spending 3 days a week in the gym with no improvement while doing cardio I became curious if my problem was medical. Most Drs. I have had don't even notice the problem because they don't feel my sternum and the ones who do notice seem like they have very little information on PE. I am wondering if any women here have gotten any addvice from their Dr who may be better infomed on this issue. Thanks so much. Jen

 
Old 09-22-2004, 09:17 AM   #4
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ODRAZ HB User
Re: women with pectus excavatum (caved in chest)

Melly
I don't want to cause you anymore cause for concern, but I too have this problem, as well as many respitory infections, I also get frequent collapsed lungs, (pneumothorax), I have bullous lung disease, scoliosis (which I have had corrective major surgery for), dural ectasia ( which is the spinal and brain stem canal, that narrows and causes problems), and more.
I advise you to look into something called Marfan Syndrome. There is a lot of criteria that goes into a diagnosis for this, but briefly it is a connective tissue disorder, and is a genetic problem, this can cause very serious lung, bone, eye, and heart problems, like I said I don't want to scare you, but you do have some of the criteria involved, the heart murmur, pectas excavatum, and scoliosis.
I have just been diagnosed, and I am 38. I am now waiting to see a cardiologist and eye specialist, as well I have 2 teenage sons who since this is a genetic disorder, have a 50/50 chance of inheriting this from me.
They too will be seeing specialists and have their blood checked to see if they have the missing gene.
The major concern for this is having an anyeurism, or aorta dissection.
Since this is a connective tissue disorder, and connective tissue is throughout all of the organs in your body (connective tissue has been described to me as the glue of your body) it begins to stretch and cause trouble, which I find out now is why I have had 3 collapsed lungs on my left side and 1 on the right.
Good luck to you!
Nicole in Toronto, Ontario, Canada

 
Old 11-14-2004, 04:35 PM   #5
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J_crozier387 HB User
Re: women with pectus excavatum (caved in chest)

About 3 weeks ago i went to UCLA Medical center to undergo surgery for my pectus excavatum deformity. The severity of the deformity is based on a scale. The scale begins around 2 (a normal person's cheast) and goes up from there. My surgeon said that they usually do the surgery around a 4. My severity index was 5.03. Growing up, my pectus didn't look that severe until adolescence, when i began to grow. I played 3 sports all through highschool and didn't have too much trouble with shortness of breath until senior year, when i would be exhausted after every game/practice. LIke many females with PE, i was told by my general practioner that nothing could really be done for my deformity, besides those procedures that would destroy the breast tissue ect. So my mom ( a physician's assistant) and i went online to do research and found that there have been several advancements in the treatment for PE. We found several different types of surgical procedures done all over the country, but we finally decided on UCLA where they have specialized in female PE since 1970.

So three weeks ago my parents and i went to LA and i had the Ravich Procedure, which involves a surgical steel metal plate inserted under the sternum for 6 months.The surgery takes around 4 hours. Then after 6 months, i will go back to UCLA and have the bar removed in a short 15 minute outpatient surgery. The prime age for this surgery is child hood to 19. Although, there were patients in their 30's, 40's, and 50's having the same surgery the same week as myself.

For those women seriously considering surgical correction of PE I will tell you that i am very pleased with my cosmetic results thus far ( i too had very uneven breasts and that has been corrected), but I am still in a lot of pain. The first four days post op, when you are still in the hospital is the worst. I was given lots of pain medication, but still i was never without pain. Breathing deeply (which they will make you do several times a day), getting up out of bed, and bending over was and still remains very painful. But, every week i feel better and better. I have been walking daily, and i'm up to a mile. My doctor said that I could begin jogging about 2 weeks post op, but trust me that didn't happen. I have tried to start jogging, but its still too painful with my muscles being soo sore.

If anyone has any questions regarding my PE surgery please feel free to post. I talked to a few female patients who had the same surgery prior to my surgery and i found it very helpful.

Last edited by moderator2; 11-15-2004 at 07:12 AM. Reason: Please read the posting rules. no emails.

 
Old 11-29-2004, 11:06 AM   #6
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Re: women with pectus excavatum (caved in chest)

undefined
Quote:
Originally Posted by JustSoVegManda
i'm a 22yr old female and i also have p.e.

ironically, i had a normal chest until my adolesence. even then, i thought nothing of it, i just chalked it up to a cleavage line. i finally showed my mother one day (who's an RN) and she freaked out. this seems really weird to me because a) she went bra shopping with me in my early teens (13,14-ish) and therefore has seen my bare chest before and b) i've had physicals and the lot it seems like six million times a year due to other health issues and NO DOCTOR HAS EVER MENTIONED IT.

mine seems realatively mild compared to the pictures i have seen. my breasts are normal and even, everything is normal, except this dent. i havent had any complications from it at all; no heart murmurs, no shortness of breath, no chest pain. so i guess in my case the surgery would be purely cosmetic because it isnt compromising my quality of life. the idea of this surgery itself is unnerving. i've heard the recovery is very difficult.

it's very relieving to find that there are other women with this sort of disorder. the only other person i've ever met was an 18yr old male. (ironically, my sister's boyfriend!)

i would love to talk to everyone again and look forward to posting. sorry if i was rambly
Hi ! I'm a 14 year old girl from Belgium and recently, about a year ago, I found out that I had a pectus. I saw a boy on tv with it, he was in the hospital for a surgery, and it was like 'so that's what I have' !
It looks so awfull Alltough it's not SO deep with me but still I'm so ashamed of it
I heared to that the recovery of a surgion for it is very painfull but I never heared someone that wasn't happy with the result !
I think it's worth that much pain but my parents, they're like allmost ignoring me when I start about it ...
Sorry, my english isn't so perfect ... Hope I get a reaction from you soon ...

 
Old 12-01-2004, 12:15 AM   #7
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laurah11 HB User
Re: women with pectus excavatum (caved in chest)

I am 19, and I was born with a severe pectus excavatum. There was only an inch between my sternum and spine. Apparently, it was causing a heart mumor, a heart arrhythmia, and making my asthma worse. I had corrective surgery on it about two years ago. It turned out really well, and helped with heart and breathing problems. However, it is still slightly there. I expected to feel a lot more confident about myself afterwards, but that never really happened. I still always notice my deformed breasts, the dent, and the pot-belly. I don't really like to even shower because itís a constant reminder that I am different. I realize that itís all superficial.
I would really appreciate hearing from other females with severe Pectus Excavatum. It's difficult to find someone I can relate to because most females with PE only have a mild case and don't have nearly the extensive physical deformities.
Also, it would be very nice to hear from other people who have had corrective surgery, and how itís affected them and such.

 
Old 12-25-2004, 09:07 AM   #8
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lindajayne HB User
Re: women with pectus excavatum (caved in chest)

Hi everyone,
i went for a consutation for uneven breasts (about 2 cup sizes different) when the surgeon told me i also have pectus excavatum.i'm not going for the correction but am thinking of breast augmentation.im very embarassed and self consicous of my conditon and as much as my friends and boyfriend say i look fine i know im not.only people with the condition really know how it feels.i know im not as bad as others and i dont seem to have all the health problems but the only real info i can find is about men as its more common in them.id like to hear from amyone who knows of any sites or had any experiences themsleves as i dont really know much about the condition.
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Old 12-25-2004, 02:32 PM   #9
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mmhoss13 HB User
Re: women with pectus excavatum (caved in chest)

I'm not sure whether I have PE or not. My story is like this: In high school I would become out of breath when playing sports and was basically forced to quit the team because my lungs couldnt take it. I was diagnosed with "Restrictive Lung Disease" by my Pulmonary doctor shortly after that. A few years ago I switched to a new pulmonary doctor (the other one was my pediatric one...time to grow up) and he mentioned Marfan Syndrome, but said no more about it. None of my other doctors have ever mentioned that or PE before. I have several doctors since I had cancer as a child. I am 5'9" and very thin which is why he mentioned it. I have fairly severe scoliosis and my breathing is still bad. I have what appears to be PE with the right side of my chest caved in much farther than the left. I too have extremely different breast sizes. From the scoliosis, maybe, or now from this.

I'm going to be 25 next month so I have dealt with my lung issues for about 10 years now, though it seems to limit me in almost everything I try to do. Even simply going up stairs or carrying things. I want to start looking in to surgery, though the only way I could ever get it done is if my insurance would cover it. I plan on researching it for at least a year before hand, but if there's any information that you all think I should know, I would really appreciate it. I need to find a specialist in my area that knows something about it since most normal doctors do not. Well...that's my story. lol. Merry Christmas everyone. I'll be looking forward to replies.

 
Old 12-27-2004, 12:39 PM   #10
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Mariea HB User
Re: women with pectus excavatum (caved in chest)

I dont have pectus excavatum but my son does and was wandering if it is dangerous?The doc said it is nothing to worry about.Sorry I couldnt be more help.
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Old 05-13-2005, 12:57 PM   #11
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Re: women with pectus excavatum (caved in chest)

hello
My name is natalie and I have been having major chest pain. I have a indentation in my chest as well. I didn't know that there were people out there that were just like me. I also have a major difference in my breasts size as well. I have been in and out of the hospital for about a month now, and they can't figure out what is wrong with me. My pain is actually on my right side, not my left, so I thought there was no way that it could be my heart. I just went for an echocardiograph, and there were some major abnormalities. In fact my heart is more on my right side than my left, due to my caved in chest. I am trying to find out if anyone else has had these problems,so I can maybe get better. I am only 22 years old, and the doctors told me that I have to stop working all together because of how bad the pain is now. I have two small kids and I am all they got. So please help me if you can!

 
Old 01-10-2006, 12:42 PM   #12
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mmhoss13 HB User
Exclamation Re: women with pectus excavatum (caved in chest)

Although I haven't officially been diagnosed (I have an appointment for an exam soon), I believe I have Marfan's Syndrome. I am getting tired of people stopping me on the street to ask if I've always been this thin or how much I weigh. Its not any their damn business, but I'm not the kind of person to tell them that. At least not yet, maybe someday when someone catches me in the wrong mood I'll finally be able to tell someone off. Back to the main point of this post.....

Has anyone had success gaining weight with marfan's? I eat and eat and eat but I haven't gained a pound in around 12 years and it's frustrating. Most weight gain powders require you to work out while using them, but I am unable to do that with such bad lungs. Any solutions? Anybody?

 
Old 05-11-2006, 01:21 PM   #13
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mmhoss13 HB User
Question Re: women with pectus excavatum (caved in chest)

Went through a bunch of tests to see if I have Marfan's syndrome since funnel chest is one of the signs of it, but once again i'm a medical mystery. Some signs say yes while others say no. I dont know if any of the rest of you are extremely thin, but I am and there's no reason for me to be built this way. I eat, not huge meals at one time, but am constantly hungry and snacking. My doctor told me once to increase my calorie intake to 4000 per day, which is pretty impossible...i tried. And also seems a bit unhealthy to me. I know this is bad for my heart, but i can' manage to gain weight. I dont have the kind of money needed to invest in shakes and gym memberships and stuff. anybody here know how to put on some pounds...in a healthy way?

 
Old 05-14-2006, 07:47 PM   #14
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templedog HB User
Re: women with pectus excavatum (caved in chest)

I am also 27, and I have a caved in chest. Found this on google and (signed up on this forum). I don't have any problems with it, just don't like to take my shirt off in public because of it....which sucks. I'm an attractive guy, just this only thing really hurts my self-esteem. Maybe we should hook up hehehehe

 
Old 05-31-2006, 06:49 AM   #15
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Sue Z HB User
Re: women with pectus excavatum (caved in chest)

Quote:
Originally Posted by mmhoss13
Went through a bunch of tests to see if I have Marfan's syndrome since funnel chest is one of the signs of it, but once again i'm a medical mystery. Some signs say yes while others say no. I dont know if any of the rest of you are extremely thin, but I am and there's no reason for me to be built this way. I eat, not huge meals at one time, but am constantly hungry and snacking. My doctor told me once to increase my calorie intake to 4000 per day, which is pretty impossible...i tried. And also seems a bit unhealthy to me. I know this is bad for my heart, but i can' manage to gain weight. I dont have the kind of money needed to invest in shakes and gym memberships and stuff. anybody here know how to put on some pounds...in a healthy way?
Where you checked out for joint Hypermobility Syndrome? This is a related connective tissue disorder that can have many cross over symptoms of Marfans syndrome known as Marfanoide habitus. Besides having hypermobile joints Known as double jointed ness, JHS can present several symptoms which compromise other tissues, such as skin alterations (soft, thin, lax, translucent that shows the veins, bruises, striae, poor wound healing), hernias, uterine and/or rectal prolapse, varicose veins, mitral valve prolapse, myopia, etc. This group also includes Marfanoide habitus (tall, thin, with long arms and fingers). In patients with JHS there is not only fragility of the tendons but also alterations of other tissues and organs.
JHS needs to be assessed for by a rheumatologist with knowledge about these connective tissue disorders. Unfortunately at present not many doctors do know about the condition as they tend to believe it is a rare condition which it is no longer .

Last edited by Sue Z; 05-31-2006 at 06:52 AM. Reason: spell check

 
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