Hi ! to you both ( above!) I was diagmosed with Raynaurds when I was just 30 , haveing had it a good five years before then so thats 25 years off cold hands, feet and a very cold nose ( like a dogs!)
I have been getting the most awful 'small vein bursts' in the middle sections of my fingers ( never thumb) somtimes they bleed so much that my whole finger swells up, and the pain, stinging and swelling is horrendous, and I cant stop it bleeding for a few minutes, once it got so bad my whole finger from top to bottom was almost three times the size and we had to go to A & E for assistance , do you get any of the same?
I think I cope well with mine , after 25 years I know the drill now!
Raynaurds as you know can lead on to Scleradema which is a condition I really would hate to get.
Two years ago I started to show signs of this and my consultant told me I had it. I had to tell my children that I may have only two to four years left , as it is a very fast progressive illness, and my signs where very strong including; patches of leather skin at joints, trouble with eatting, tightning of face and skin in other areas.
Consultant got it wrong (THANK GOD) he never apologiesed to me , my hubby and kids where at first devistated and then we celebrated , to this day this consultant just has ignored his terrible mistake!
They did find out I had a number of other nasty conditions ( Ive posted under seronegative R.A. etc) but at least I can cope with them ( well almost)
I dont know about you, but I have drawers full of hats, scarfes and gloves by the dozen and we keep them in the house, cars, garden sheds you name it there stored there! and I get them for Christmas , birthday and easter presents......gloves I should have been born a millipede! , I have enough boots to fit out the whole of the british army , and enough scarfes to be able to tie them all together and use them to climb down the leaning tower of piza ( should I just happen to need them) !
Last edited by holeinheart; 04-30-2005 at 01:23 PM.