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Old 11-17-2005, 07:59 PM   #1
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joojoobee1967 HB Userjoojoobee1967 HB User
Mast Cell Disorder Questions

Hi, I posted a while back and was directed to a website that gave me lots of info. I have had some of the symptoms such as deg disk, brain fog,flushing, IBS, and headaches for years that everyone just shrugged off.

I went in last Dec for heartburn and all over itching that started at the same time. Was told they had nothing to do with each other and sent on my way with some meds. I've been going insane ever since. Finally saw a gastro and had endoscopy that showed reflux and extra cells in esophagus. He put me on Singulair finally and have not had any breakthrough heartburn and itching is much better.

He says that since I was in he's diagnosed 4 more people with the same type of problem. I told him about the info I found and he said it sounds like I've just diagnosed myself.

Finally, the question. Does this disorder just show up over night or have I maybe had it and never had any problems until the heartburn/itching episode?

Sorry so long, any comments would be appreciated.

Julie

 
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Old 11-22-2005, 08:17 AM   #2
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Re: Mast Cell Disorder Questions

Anyone?? There was huge thread on Masto a while back.

Julie

 
Old 11-25-2005, 06:16 PM   #3
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stlrock HB User
Re: Mast Cell Disorder Questions

Hi There,

The masto thread is right below this one. You might have mastocytosis. The way to be diagnosed:

Cutaneous Mastocytosis: Skin biopsy

Systemic Mastocytosis: Blood work - Tryptase test
Bone Marrow biopsy

If you have any more questions, feel free to fire away. I was diagnosed with systemic mastocytosis about three months ago


good luck,

Chris

 
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