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-   -   Undiagnosed Symptoms- Anyone have this? (http://www.healthboards.com/boards/rare-disorders/343734-undiagnosed-symptoms-anyone-have.html)

charcey 11-23-2005 11:38 AM

Undiagnosed Symptoms- Anyone have this?
 
Hello-
I'm a thirty yr. old mom of three. I am a bit overweight, have allergies, and I have a history of phentermine use for weight loss. Normally, I am a pretty healthy person. I have been having problems for about a year now. I'll try to make a long story short. Last year, I began having RUQ pain. Went to doc who did a CT scan and a chest XR. Found a mildly enlarged spleen in CT. Tested me for several different things (cancer, mono, anemia, autoimmune disorders, etc.). Found nothing. In January, I began having LUQ pain under my ribs along with the RUQ pain. I , also, began having episodes of breathing difficulty (not able to take in a deep breath without yawning...almost as if there was a block there). I developed fine tremors which would present only with activity (not at rest). I saw an internist who tested me for liver problems. Found nothing. He decided to speak with one of the radiologists to reread the CT. The radiologist he spoke with decided the CT wasn't significant and my spleen wasn't enlarged. That would be great...except for the fact I was still having pain on that side (and the other). I asked him for a HIDA Scan to test my gallbladder. The test showed a sluggish gallbladder. From that point on...I was told by every physician I saw my problems were from my gallbladder and anxiety. In the meantime, I had a CT recheck. This time I spoke with the radiologist myself regarding the results. He stated my spleen was slightly enlarged. UGGG!!! Unfortunately, I hadn't had my GB out before this recheck! I had my GB out in July 05. I'm still having the same problems. Pain is mostly in the LUQ now which radiates to my upper back a lot...although, there is occasional RUQ pain. The breathing difficulty has gotten a bit worse. The episodes are more frequent (sometimes all day) my chest is tight and my lungs seem to be sore at the end of the day now (like I have been swimming all day or something). I am also having to clear my throat frequently now...but there is no blockage in my lungs. Docs don't seem to believe my LUQ pain could be my spleen. I have even had a second opinion. Although, I haven't seen a specialist since having my GB removed. So, I just had a chest XR, a pulmonary function test with arterial blood gases, and a stress echo. All were normal! Yesterday I went in for an abdominal ultrasound to reexamine spleen size. We'll see. I'm scheduled to see a pulmonologist in three weeks. It is so frustrating because you see specialists for every different symptom. It seems like none of them see the big picture. Frankly, I'm getting tired of being treated like I'm a hypochondriac because no one can find anything! Has anyone experienced any of these symptoms? :confused:
Charcey

pambyboo 11-23-2005 06:26 PM

Re: Undiagnosed Symptoms- Anyone have this?
 
Have you had your thyroid levels checked? If not, do this ASAP.

suziewong 12-11-2005 09:09 AM

Re: Undiagnosed Symptoms- Anyone have this?
 
HI so sorry to hear about your problems.i havent had these problems but i have an idea what your going through,i live in uk and have been under a nuerologist for nearley 10 years doctors were treating me for m.s i was in and out of hospital having intrevenace steroids then they said my MRI was normal and thought i had sarcoidosis but since then i have dry eye and mouth and virgina i have been to see a maxofacial doctor and he said it looks like sjogrens but all blood tests were normal as i thought.untill i demanded my medical records which show something wrong smooth muscle antibodies abnormal and also one of my brain scans did show abnormal and that is why they gave me more steroids they dont tell you everything i wouldnt have found out untill i demanded the records in uk you are entitled to them.hope you find something out as it makes you think that you must be causing it yourself please read my other symptoms on my problems on negative blood on sjogrens post thanks

razz123 01-14-2006 07:44 PM

Re: Undiagnosed Symptoms- Anyone have this?
 
Hi Charcey,

I was reading about you case though it seems you have not posted in a while.
Your case closely resembles mine.

Would you let us know what is your current status ?

muffy0110 03-09-2006 12:52 AM

Re: Undiagnosed Symptoms- Anyone have this?
 
not the same symptoms-but has anyone had numbness in the feet or fingers

Earl Haynes 04-20-2006 12:36 PM

Re: Undiagnosed Symptoms- Anyone have this?
 
[QUOTE=charcey]Hello-
I'm a thirty yr. old mom of three. I am a bit overweight, have allergies, and I have a history of phentermine use for weight loss. Normally, I am a pretty healthy person. I have been having problems for about a year now. I'll try to make a long story short. Last year, I began having RUQ pain. Went to doc who did a CT scan and a chest XR. Found a mildly enlarged spleen in CT. Tested me for several different things (cancer, mono, anemia, autoimmune disorders, etc.). Found nothing. In January, I began having LUQ pain under my ribs along with the RUQ pain. I , also, began having episodes of breathing difficulty (not able to take in a deep breath without yawning...almost as if there was a block there). I developed fine tremors which would present only with activity (not at rest). I saw an internist who tested me for liver problems. Found nothing. He decided to speak with one of the radiologists to reread the CT. The radiologist he spoke with decided the CT wasn't significant and my spleen wasn't enlarged. That would be great...except for the fact I was still having pain on that side (and the other). I asked him for a HIDA Scan to test my gallbladder. The test showed a sluggish gallbladder. From that point on...I was told by every physician I saw my problems were from my gallbladder and anxiety. In the meantime, I had a CT recheck. This time I spoke with the radiologist myself regarding the results. He stated my spleen was slightly enlarged. UGGG!!! Unfortunately, I hadn't had my GB out before this recheck! I had my GB out in July 05. I'm still having the same problems. Pain is mostly in the LUQ now which radiates to my upper back a lot...although, there is occasional RUQ pain. The breathing difficulty has gotten a bit worse. The episodes are more frequent (sometimes all day) my chest is tight and my lungs seem to be sore at the end of the day now (like I have been swimming all day or something). I am also having to clear my throat frequently now...but there is no blockage in my lungs. Docs don't seem to believe my LUQ pain could be my spleen. I have even had a second opinion. Although, I haven't seen a specialist since having my GB removed. So, I just had a chest XR, a pulmonary function test with arterial blood gases, and a stress echo. All were normal! Yesterday I went in for an abdominal ultrasound to reexamine spleen size. We'll see. I'm scheduled to see a pulmonologist in three weeks. It is so frustrating because you see specialists for every different symptom. It seems like none of them see the big picture. Frankly, I'm getting tired of being treated like I'm a hypochondriac because no one can find anything! Has anyone experienced any of these symptoms? :confused:
Charcey[/QUOTE]
.

Earl Haynes 04-20-2006 12:43 PM

Re: Undiagnosed Symptoms- Anyone have this?
 
Three years ago I had similar symptons and similar tests, resulting in surgery Jan. 2005. The surgery showed Retroperitoneal Fibrosis. The fibrosis had wrapped around the small intestine and the surgeon removed 2 sections. It is a very rare disease and I am being treated with medication. There is no cure but it is treatable. It wouldn't hurt to mention it to your doctor because it is very rare and hard to diagnose.

Heartsy 04-26-2006 07:25 PM

Re: Undiagnosed Symptoms- Anyone have this?
 
I transcribed medical records in a hospital for many years, I am now retired. I have transcribed records of almost every known disease. I remember a disease known as Whipples disease. It was caused by a bacteria that would attack any area of the body but mostly was in the intestines. It could be cured by a simple antibiotic, but if drawn out a long time could be fatal. This is a rare disease. Often a patient can be treated for many other conditions before it is finally detected because doctors do not often recognize it.

feelbad 05-11-2006 07:15 AM

Re: Undiagnosed Symptoms- Anyone have this?
 
Have you ever had an MRI of the thorasic spine?there could very well besomething going on inside that spinal area that would most definitely fit your symptoms.the enlarged spleen would have to do with something else,not all symptoms that you may have at any given time will always be related to the same condition.Just a suggestion since there appears to actually be nothing found with the CTs and the abdominal area.when you cannot find answers in the front,go to the back.Just a thought.Marcia

koppimasho 07-21-2006 04:16 AM

Re: Undiagnosed Symptoms- Anyone have this?
 
I also have had breathing problems (still have a bit): constant phegm, shortness of breath, fatigue, tightness in chest, asthma-like condition, etc. Tests were, for the most part, normal and I've been to a dozen doctors. Alternative medicine did not help much. I tried to see if it was a fungal infection and it wasn't.

I recently had a Dorn therapist realign my spine and he noticed that I had a tight, red knowt along my thoracic vertebrae and suggested that it could have contributed to my breathing problems as these nerves are connected to the lungs. Later I started going to a chiro and my problems have improved since.

I used to have good weeks alternating with bad weeks, but now, it's been several weeks since feeling better. I am still observing my condition, but it seems like I am on the right track.

On hindsight, I did experience a whiplash several weeks prior to the sidden onset of this condition some 9 months ago. In addition to that, I have a tendency to lug around heavy baskets in supermarkets (too lazy to get a cart) and perhaps that could have affected my thoracics.

So yes, if you are having the same strange feeling of not getting enough air, you might want to see if your back is in order.

Regards!

koppimasho 07-21-2006 04:17 AM

Re: Undiagnosed Symptoms- Anyone have this?
 
I also have had breathing problems (still have a bit): constant phegm, shortness of breath, fatigue, tightness in chest, asthma-like condition, etc. Tests were, for the most part, normal and I've been to a dozen doctors. Alternative medicine did not help much. I tried to see if it was a fungal infection and it wasn't.

I recently had a Dorn therapist realign my spine and he noticed that I had a tight, red knot along my thoracic vertebrae and suggested that it could have contributed to my breathing problems as these nerves are connected to the lungs. Later I started going to a chiro and my problems have improved since.

I used to have good weeks alternating with bad weeks, but now, it's been several weeks since feeling better. I am still observing my condition, but it seems like I am on the right track.

On hindsight, I did experience a whiplash several weeks prior to the sidden onset of this condition some 9 months ago. In addition to that, I have a tendency to lug around heavy baskets in supermarkets (too lazy to get a cart) and perhaps that could have affected my thoracics.

So yes, if you are having the same strange feeling of not getting enough air, you might want to see if your back is in order.

Regards!


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