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Old 04-07-2007, 12:46 PM   #1
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ear cartilage pain

Does anybody out there have pain in the cartilage of thier ear or ears. Mine started maybe 3 years ago or longer. Sometimes it is severe. The doctors are frustrating me and nobody seems to understand or care. I have read some old threads here (very few) about this, and one thing that caught my attention was Lyme disease, although I'm not in a part of the country where Lyme disease would be considered (Arkansas). I have cartilage problems with more than just my ear. It also includes my knees, neck, back, wrists, elbows, jaw. It is as though the cartilage is eroding. I have seen an ENT and was diagnosed with TMJ - duh. Also saw a rheumatologist and had multiple blood tests because I thought I had polychondritis, but there really aren't any specific tests for that, and the ones they did for lupus, etc. were negative, and since my ear didn't look like the picture in the book, she blew me off. My regular doc diagnosed arthritis in my knee and neck/back - another duh. I'm quite frustrated and feel so alone! Is there anybody out there?

 
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Old 06-03-2007, 03:01 PM   #2
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Re: ear cartilage pain

Stepper,

My ear cartilage pain started with a like a lump like shaped thing that appeared on my ear. Not very big and you could not even see it. I started touching it and it progressed to what all doctors diagnoses as ear cellulitis. Have you ever been diagnosed with ear cellulitis ? I also got my eyes very red and he said it was not a clear cut case of Uveitis which is an infammation fo the iris. All my autoinmune test came back negative.

 
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Old 06-09-2007, 03:12 PM   #3
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Re: ear cartilage pain

ClulessTOO,

Thanks for replying. I had given up on hearing from anybody about this. No, I have not been diagnosed with ear cellulitis, and as far as I know I haven't had a bump on my ear. I have cartilage deterioriating in many places. It's just that the ear cartilage is so very painful sometimes and is what brought my attention to this whole mess. I was looking at some of your other posts, and I saw where someone said vitamin B6 deficiency is responsibe for cartilage deterioriation. I had some lab work done not too long ago, and my doc said my B12 was a little low (don't know if this includes B6 or not). I go in for my annual exam in about 3 months, so I will bring up this B6 information. Again, thanks for replying and best of luck to you in finding out what is wrong and getting help with it.

 
Old 01-13-2008, 07:43 PM   #4
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Question Re: ear cartilage pain

I Can't believe there are really other people out there with the same problem I've had with ear cartlidge pain. Mine is so severe sometimes I can't stand to touch them & it started that I couldn't wear earrings in my ears anymore then it was just when I would lay on them now they hurt almost constantly. Has anyone found any cause or treatment for this problem

 
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Old 01-29-2008, 05:43 PM   #5
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Re: ear cartilage pain

I also started having severe cartilage pain in my left ear a couple weeks ago. I assumed it would just "go away" on its own but it is persisting. It's painful to sleep on and to touch in general.. What is going on? Reading some of the posts on the web has only offered up more questions than answers.

 
Old 03-02-2008, 09:26 AM   #6
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Re: ear cartilage pain

I can't believe I actually got a response from someone with the same problem and 2 of you at that! It's just nice to know I'm not the only one. I still don't know what it is. It still hurts and wakes me from sleep sometimes. I even have a popping in my ear if I push on it and move it up and down, like the cartilage in my knee crunches, etc. I know this is cartilage degeneration, deterioriation - whatever the correct word for it might be. It seems that in the morning the cartilage in my ear is soft, if that makes any sense. None of this makes any sense to me. I have just finally accepted that the doctors don't know about this unless, of course, you have lab that is positive for polychondritis, etc., but there is no actual lab for polychondritis itself, just for other diseases that SOMETIMES go along with polychondritis and the percentages of those are very small. I've finally turned it over to God and so far I haven't taken it back. There doesn't seem to be any more I can do about it right now. Maybe if there are enough of us with this problem, it will be something the medical community will address. I still bring it up to my doctor at my annual exams, just so she knows it is still a problem for me. If I get any clue as to what to do about this or any information at all, I'll certainly keep you posted, and I hope y'all will do the same.

 
Old 03-07-2008, 08:18 AM   #7
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Re: ear cartilage pain

I found your post the other day when doing research for my Dad's cellulitis of the ear. He has Lyme and so does my mom. I haven't read the whole thread here, but wondered if you were tested for Lyme? I wanted to share this with you, too. This doc used to not believe in chronic Lyme until he got it: [url]http://www.mentalhealthandillness.com/tnaold.html[/url]

 
Old 03-08-2008, 12:19 PM   #8
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Re: ear cartilage pain

Hi atoups,

Yes, I was tested for Lyme, well kinda - my doc did a Lyme titer (I think she called it), and it was negative. Yeah, I know that doesn't really mean anything, at least according to the Lyme Board. I have not done the testing through the lab everyone is talking about in California. I sent for the test kit, and it is extremely expensive. Then, if it is positive, the treatments are even more expensive, from what I understand. I don't have insurance so that puts a halt to a lot of stuff. I believe that it is either Lyme or polychondritis. Someone also posted about B6 deficiency, and I haven't had my doc do the lab for that yet but will at my annual this summer/fall. I am hopeful that it is something that simple (I assume it's simple at least compared to the Lyme and polychondritis). Thank you for the link. I'll check it out.

 
Old 04-04-2008, 09:53 AM   #9
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Re: ear cartilage pain

Stepper,

I have the same problems and have had them for several years. My pain is everywhere that there is cartilage, even my chest. Its not constant and I never know were the pain will be on any given day. Like you, the doctors can't find anything and so they dismiss it as arthritis. I have been tested for lyme disease, rheumatoid arthritis etc. I have had a bone scan and a bone density test. All negative. My ear pain has been gradual and I didn't really relate it to my joint pains until it woke me up this morning around 4 am. Then it was like a revelation that ears are cartilage too and this is related to my other problems so I started searching and found your message. The only symptom that I have, that you didn't seem to mention, is that from time to time I have what I call mild flu symptoms. My joints are especially achy; I feel as though I have a fever, eventhough I don't; no matter how much I sleep, I am still tired. This, to me, sounds like Chronic Fatigue, although it has not been sever enough to limit my activity. I assume that it is in some way related to the joint pain that I have all of the time. I am hoping that the development of ear pain will get my doctor to investigate further. I will post any new developments.

 
Old 04-05-2008, 08:23 AM   #10
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Re: ear cartilage pain

Hi pen54,

It looks like we are not alone in this - whatever it might be. I too have achy joints. I guess it's joint pain; though sometimes it feels like some kind of nerve pain with tingling and burning. It travels from place to place, one day its my elbows, one day my knees, one day my hips, one day my neck, and so on - you get the idea. It seems that something is always hurting somewhere. I guess it's kind of like flu/fever symptoms. I have been diagnosed with fibromyalgia, but I don't have muscle pain; it's definitely the cartilage (yeah, my chest sometimes gets so sore I can't touch it), and my skin feels sore just underneath like a bruised feeling, some days are worse than others but it's always there and it travels from spot to spot. It's like maybe the connective tissue of my muscles. I guess I need to get into med school just so I can describe what is hurting. I don't know that I'm especially tired but definitely not motivated though, but I'm so high strung and have such anxiety,that may be overriding fatigue? I too will update with any new information.

 
Old 05-26-2008, 05:31 PM   #11
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Re: ear cartilage pain

I've had horrible ear cartilage pain for about 4 months now. It gets so bad that I will get shooting pain to the ear area if I wear sunglasses or earrings. I have Crohn's disease, TMJ and suffer from other ailments stemming from the Crohn's like arthritis and have taken so many medications that I have picked up a neuropathy along the way and other problems. I hate this pain most of all and wish I could get help. Tylenol helps a little and Advil helps alot but I am not supposed to take Advil since it can flare my disease. I recently stopped taking a low dose chemotherapy med called methotrexate due to a bad case of labrynthitis (inner ear inflammation). I am 34 years old, female and feel like it is just one thing afterthe next healthwise!!!!

Does anyone find any other kind of relief?

My head/neck specialist said the ear pain was related to TMJ and would go away when the TMJ stopped flaring.

 
Old 06-07-2008, 08:28 AM   #12
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Re: ear cartilage pain

Hi roxeypuppers,

We are too young for all this! I too was told it was from my TMJ, and all I have to say to that is... yes, the cartilage is deterioriating in my ear as it is in my jaw and multiple other places. So, I think the relationship has to do with the cartilage in general. Anyway, the only relief I get is something to help me sleep at night so that most nights this pain doesn't wake me from sleep. I have tried all kinds of antiinflammatories with no help. I got a steroid shot on a couple of occasions for other reasons, and that really helped, but what's worse the side effects of the steroids or this whatever it is? Sigh...

 
Old 06-07-2008, 09:46 AM   #13
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Re: ear cartilage pain

Quote:
Originally Posted by Stepper View Post
Hi roxeypuppers,

We are too young for all this! I too was told it was from my TMJ, and all I have to say to that is... yes, the cartilage is deterioriating in my ear as it is in my jaw and multiple other places. So, I think the relationship has to do with the cartilage in general. Anyway, the only relief I get is something to help me sleep at night so that most nights this pain doesn't wake me from sleep. I have tried all kinds of antiinflammatories with no help. I got a steroid shot on a couple of occasions for other reasons, and that really helped, but what's worse the side effects of the steroids or this whatever it is? Sigh...

Hi Stepper,

Thank you so much for your reply! Do you notice if you wear sunglasses or earrings that the pain is worse and unbearable? I usually take something at night to help me sleep too since the pain can get so bad. I am scared to think the cartilage is detiorating too, yikes. It would not surprise me. I wonder if seeing a rheumatologist would be a good idea! The head/neck doc who is a ENT pretty much just blew it off as tmj, easy for him to do. Praying you find some relief! So far the pain is still there, no relief yet, I hope it just stops soon!

Hang in there,

RoxeyPuppers in So. California

 
Old 06-11-2008, 11:20 AM   #14
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Re: ear cartilage pain

Hi RoxyPuppers,

I don't wear earrings, so I can't tell you if that makes a difference, but I imagine if they are heavy earrings that they would pull on the ear and irritate it. Glasses I wear infrequently and haven't noticed that it makes a difference either, but the next time I have to give my contacts a break, I'll try to pay attention and see if that makes it worse or not. I try to be mindful of things that may make it flare, but I haven't been able to connect it with anything. Last month I noticed it worse just before my period, so this month I paid attention, but it doesn't seem any worse with this one. I have seen a rheumatologist and had tests run for lupus, etc. (diseases connected with polychondritis), but everything was normal. But, it may be different for you and maybe just maybe you might get some answers.

 
Old 07-11-2008, 07:18 PM   #15
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Re: ear cartilage pain

I am 54.When I was 30 (in good health), I thought I was having a heart attack (excruciating chest pain). Dr's ran every test in the book and suspected Teetsy. The knew very little about it then. Cartilidge pain is still severe at times, comes and goes and is pretty much everywhere (sometimes even my nose).I have learned over the years, it (whatever IT is) is exacerbated by physical and mental stress (i.e. overdoing it mentally or physically). Never got a straight answer from ANY doctor after the chest pain episode. I researched Teetsy a couple of years ago. Not much out there then.
Maybe you guys will have better luck.

 
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