5 q minus syndrome
Does anyone have any knowledge of this disorder. Following a heart attack last year, I was found to have a blood disorder, where I do not have enough red blood cells and they are enlarged. After countless blood tests, my condition was finally diagnosed as a result of bone marrow tests, which showed I have 5 q minus syndrome, which is a form of myelodysplasia or MDS. I am receiving blood transfusions (red cells) as treatment, but my consultant is trying to get me on to a drug called Revlimid. Does anyone have any experience of this also. I would be grateful for any input.