Does anyone here have or have information on diastematomyelia?
I was diagnosed before age two with diastematomyelia and scoliosis, now coupled with various foot deformities (result of the diastematomyelia and partial lower leg paralysis). The only information doctors ever gave me was two paragraphs on spina bifida. My older brother who did not survive had severe spina bifida, so I'm wondering is this genetic, what's going to happen in the future? If anyone has any information I would really appreciate some help